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Hello! My Name is Melissa and I have a rare form of Albinism called hermansky pudlak syndrome. A symptom of this disease is Idiopathic Pulmanry Fibrosis, which has gradually decreased my lung function as well my ability to do the active things I love! Transplantation is my chance for more time here spent with my family and friends, as well as give me a chance to ride my bike again and get my black belt!

Family and friends of Melissa Webber are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.

Updates (1)

September 14, 2020

Currently waiting to be listed for Lung Transplant

Photo Galleries (1)

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Guestbook

September 16, 2020

To my good friend, Melissa. I'm hoping and praying for the best for you. I''ll be cheering you on thru your journey. I'm proud and inspired by your attitude of "Never give up and never surrender, except to the Lord Jesus Christ!" Your friend Bob Spayd.

Robert Spayd

September 16, 2020

Wishing you the best of luck!

Mikayla Ruth

September 15, 2020

Sending love and support for this journey.

Eric Matthews

September 15, 2020

My thoughts and prayers are with you every day and I just want you to know even though I’m not always there I am here no matter what and if I can help I always well. You will get through this like you always have everything else. You have amazing people in your life and an amazing daughter to get you through with a lot of love ❤️ Heather Webber

Heather Webber