Wayne desperately needs a double lung transplant.
Pulmonary Capillary Hemangiomatosis. Like us, you have probably never heard of it. PCH is a lung disease where the capillaries continue to grow, like the roots of trees, through the lungs minimizing lung space and making it impossible to breathe. Unfortunately, this disease has also put a lot of strain on Wayne’s heart, causing Pulmonary Hypertension and chronic right heart failure. At his last appointment (10/16/2020) his right heart catherizaton showed his heart was working 15 times harder than a normal 40 year olds. The doctor informed us the only treatment left is a complete double lung transplant. Replacing his lungs will not only cure him of Pulmonary Capillary Hemangiomatosis and Pulmonary Hypertension, it will also reduce the strain to his heart and reverse the chronic heart failure. Without a transplant, the disease is fatal.
November 25, 2020
Hello everyone. Wayne met with the transplant team at Integris Baptist, and they told us there is a few things we must complete before he can be listed. We have to meet our financial goal, he has to meet with a counselor to make sure he has emotional support, he has to be cleared by a dermatologist that he has no skin cancer and he has to fix a couple of his teeth that were broken from some of the medications he has been on. Since he will be in anti rejection immune suppressants after transplant, they have to verify there is no infection in his body.
Wayne has continued to progress steadily. His cough has greatly increased, as well as his shortness of breath. He often gets light headed from just walking.
We pray for continued support so he can be listed quickly. Please pray that he remains stable until the transplant can be completed. I wish you all a happy thanksgiving and thank you for your continued support for our family.
November 6, 2020
Wayne will meet with the team at the Nazih Zudhi transplant center in Oklahoma City on Nov. 18th.
Photo Galleries (1)
November 19, 2020
God Bless your son-in -law Dave & Mary.
November 16, 2020
You are always in our thoughts and prayers! We love you always! The Johnson Family
Sterling & April Johnson
October 31, 2020
Love you guys!!
October 21, 2020
Although we are very partial, our daughter could not have found a better man. WE choose to keep him around for a very long time, not just because our daughter chose an amazing husband for herself, nor because he is a great dad, but because he is a great son, even if it is ....in-law, our hearts know no difference. Love you, Dad and Mom Scott