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Wayne desperately needs a double lung transplant.

Pulmonary Capillary Hemangiomatosis. Like us, you have probably never heard of it. PCH is a lung disease where the capillaries continue to grow, like the roots of trees, through the lungs minimizing lung space and making it impossible to breathe. Unfortunately, this disease has also put a lot of strain on Wayne’s heart, causing Pulmonary Hypertension and chronic right heart failure. At his last appointment (10/16/2020) his right heart catherizaton showed his heart was working 15 times harder than a normal 40 year olds. The doctor informed us the only treatment left is a complete double lung transplant. Replacing his lungs will not only cure him of Pulmonary Capillary Hemangiomatosis and Pulmonary Hypertension, it will also reduce the strain to his heart and reverse the chronic heart failure. Without a transplant, the disease is fatal.

Updates (4)

April 17, 2021

Wayne received lungs 4/15/2021. 76 days on the waitlist

February 5, 2021

2/1/2021 wayne is listed for double lung transplant. The next call we get will hopefully be available lungs.

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Guestbook

April 17, 2021

Continued prayers for Wayne’s recovery and for the entire family while he heals. ((Hugs))

Bill and Shi Ingalls

December 22, 2020

Merry Christmas! Santa is always watching...

Anonymous

November 19, 2020

God Bless your son-in -law Dave & Mary.

Anonymous

November 16, 2020

You are always in our thoughts and prayers! We love you always! The Johnson Family

Sterling & April Johnson