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Please Help Jan Ziskovsky with Lung Transplant Recovery

Jan Ziskovsky had a lung transplant on November 5, 2020 at Philadelphia’s University of Pennsylvania – Penn Medical Center after Jan’s years-long treatments for interstitial lung disease stopped working. This was blindsiding and unexpected for Rosemary and Jan, with no time to prepare for the road ahead. Jan’s recovery will be long; her medical team expects Jan to be hospitalized for at least two more months.

Updates (37)

February 15, 2021

Because several people have been asking, we continue to live in Philadelphia and expect to be here until Mid March if not longer. We are staying at the Gift of Life Family House, a motel like facility that was built by the Gift of Life Donor Program to house transplant families. We are fortunate to have this accomodation. They have many COVID safety measures in place, the room is very comfortable, it is close to the hospital and clinic, we are meeting other families who have a loved one newly recovering, recovered for years, getting evaluated to be listed or are waiting for a donor. Our sights are set on April 1 to go home but if it were sooner we wouldn’t object. Since she is newly transplanted systems are still adjusting and are vulnerable. We were particularly grateful to be up here yesterday as Jan developed a rash on her face and neck, after talking to the lung transplant dr on call, went to the emergency department to have her evaluated. In COVID times I can’t go in which is hard (but we get it). After 5 hours she was released as they determined it wasn’t a rash that was a result of something serious. It looks like hives and is better today. Logical culprits such as medicine, laundry detergent or food didn’t make sense as there had not been any changes in any of these. We hope it continues to subside as it is uncomfortable for her (burning and itching). We are learning to adopt the mindset that any changes is reason to take actions vs. assuming it is nothing serious and rely on our home remedies. Thank goodness in this case it was minor and we can use cortizone cream for the symptoms but also glad we followed up just in case. Physically she is getting stronger, walking more and more and rarely using the wheelchair. Hopefully the weather will get better one of these days so we can take a few drives and explore the city.

February 9, 2021

On February 5, we hit Jan’s 3 month anniversary since her transplant surgery. What a difference 3 months makes! While she continues to feel the impact of it all, the data and all of us (providers, me and new friends at the Gift of Life House) who see Jan can see the healing that is occurring. That along with doing some “normal” activities like going out for a ride on a beautiful sunny day really helps lift our spirits and to kow that we are that much closer to going home. She continues with rehab 3x/week, biweekly – weekly tests to make sure everything is as it should be. Follow up appointments with Drs who last saw her in the hospital have been very affirming as they see the improvements. Building strength and maintaining stability are the two main goals. We continue to take in the miracle of it all. Still absorbing how close to death she was and how amazing it is to have received this 2nd chance at life. There are adjustments and some days those adjustments are hard but in the bigger picture definitely possible to manage. Thank you all again for the many acts of support and love.

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Guestbook

January 14, 2021

No signs of rejection - those are beautiful words:) Team Ziskovsky is working it's way home. Jack and I are keeping you in our prayers and sending our love.

Sarah Else

January 5, 2021

Dearest Jan, Marilyn and I will be praying for your recovery. Delight yourself in the Lord and he will give you the desires of your heart. Please say hello to your mother for me. Your brother always, Dennis If you ever want to call or text 630-234-0447

Dennis Free

December 17, 2020

Here is to applesauce and continued PT! Sending love and best wishes for a brighter 2021! Sarah

Sarah Else

December 13, 2020

Our thoughts and prayers for strength, comfort, and healing for Jan and Rosemary. Hugs.

Dennis & Cathy Rice