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Dear Friends and Family,

We are writing to share the hardest decision we have ever had to make. After a long process of deliberation and evaluation, Christopher has decided to proceed with the heart/liver transplant process. He is now a candidate at Stanford Medical Center. After a lifetime with congenital heart disease, six heart surgeries, several other heart-related procedures, three pacemakers, multiple hospitalizations, and nearly dying on more than one occasion, Christopher’s doctors have advised that all treatments to keep his heart going have been exhausted: a new heart and liver is his only option. This will be a long, difficult, and costly process. We embark on this journey with mixed emotions ranging from terror and sadness to excited anticipation for a new lease on life and many more years with his wife, young son, and loving community.

Updates (12)

October 23, 2021

Hello Friends. There have been some complications in my transplant process as of late. I have been temporarily deactivated from the transplant waitlist. This is a result of the fact that they have found a tumor in my adrenal glands. I am currently doing a series of tests to determine what type of tumor exactly and if it is malignant or benign. Even the latter can be problematic and may require intervention. Though I am doing pretty well all things considered and working hard to stay as fit and strong and healthy as possible for surgery, this is disappointing and concerning. It will take a couple of months to sort this all out. In the meantime, thank you for your continued love and support. It means a great deal to me, to Jen and to Ry.

February 4, 2021

Well my kidney and other complications are about as good as it’s going to get so Stanford has decided to proceed. As of today, I am officially listed as “active” on the transplant waitlist. This means that at any day, at any time, I may get a call asking me to get to the hospital within four hours for transplant surgery. They suspect it will be a while, but no-one really knows. So finally, the journey, full of excitement and terror like any worthy journey, has begun. Thank you everyone for your support. You’ve helped me prepare in ways you’ll never know. Many blessings.

Photo Galleries (1)

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February 23, 2021


Yarrow Sweningsen

February 4, 2021

sending love and healing from all 3 of us to the 3 of you.

Katrina Mayo-Smith

February 2, 2021

Jen, Christopher and Ryan - our best wishes on this journey, knowing you treasure each day together. Marcy and Jerry Clausen

Marcy Clausen

December 16, 2020

May your heart feel the love of the community you help to heal. Sending love and wellness from Kim and Rick.

Kimberley Caldewey