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Dear Friends and Family,

We are writing to share the hardest decision we have ever had to make. After a long process of deliberation and evaluation, Christopher has decided to proceed with the heart/liver transplant process. He is now a candidate at Stanford Medical Center. After a lifetime with congenital heart disease, six heart surgeries, several other heart-related procedures, three pacemakers, multiple hospitalizations, and nearly dying on more than one occasion, Christopher’s doctors have advised that all treatments to keep his heart going have been exhausted: a new heart and liver is his only option. This will be a long, difficult, and costly process. We embark on this journey with mixed emotions ranging from terror and sadness to excited anticipation for a new lease on life and many more years with his wife, young son, and loving community.

Updates (21)

September 14, 2022

Dear Friends-

I’m still dealing with fluid retention and some other small complications. Despite this, things seem to be going well and moving in a forward healing direction. I definitely feel stronger each week while also having up and down days in equal measure. All that said, I am happy to report that starting next week I will be getting to go home on the weekends. Hopefully, that will soon shift into me going home for good. I’m still very much recovering so I am not able to visit much with others and still have to take many precautions as I am very immunosuppressed at the time (but will be less so as time goes on). Jen is feeling less stressed these days and still doing an amazing job of caring for our son and for me. We also want to give a big thank you to her parents, May and Paul, who have provided a great deal of childcare and overall support. Thank you May and Paul! And thank you all for the deep-hearted prayers, love and logistical support you’ve all sent our way. We are blessed with you as our community.

With love from a new heart,


August 19, 2022

Christopher was discharged from the hospital last eve…. He’s doing well with his recovery. He’s in a comfortable home and being well cared for.♥️

He will be going back weekly for clinic visits with his team and has home health coming to the house for visits throughout the week.

I can’t believe it’s only been a month since his surgery, it feels like a lot longer ago that he went into the OR.

♥️Thank you for keeping us all close in your thoughts and hearts and for all your prayers and support. We’ll continue to update as time goes on. The road to recovery will be long and not without difficulty, and, we have so very much to be grateful for. May that continue to be the leader in the path ahead.

Photo Galleries (2)

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February 23, 2021


Yarrow Sweningsen

February 4, 2021

sending love and healing from all 3 of us to the 3 of you.

Katrina Mayo-Smith

February 2, 2021

Jen, Christopher and Ryan - our best wishes on this journey, knowing you treasure each day together. Marcy and Jerry Clausen

Marcy Clausen