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Dear Friends and Family,

We are writing to share the hardest decision we have ever had to make. After a long process of deliberation and evaluation, Christopher has decided to proceed with the heart/liver transplant process. He is now a candidate at Stanford Medical Center. After a lifetime with congenital heart disease, six heart surgeries, several other heart-related procedures, three pacemakers, multiple hospitalizations, and nearly dying on more than one occasion, Christopher’s doctors have advised that all treatments to keep his heart going have been exhausted: a new heart and liver is his only option. This will be a long, difficult, and costly process. We embark on this journey with mixed emotions ranging from terror and sadness to excited anticipation for a new lease on life and many more years with his wife, young son, and loving community.

Updates (15)

June 8, 2022

Good day friends. So after eight scans of various types, Stanford is still unable to find cancer. That said, it is also still their belief that I have cancer due to a rapidly rising lab value. Unfortunately, if that lab value hits 1000 I become disqualified for transplant (which at the current rate of rise is about 3-5 months). So to hopefully expedite the transplant, they have asked me to be admitted to the hospital and wait for surgery there, eventhough it is still months away. Being in the hospital will allow them to advocate for me to be higher on the waitlist. However, this means I will be in the hospital for several months now and then 1-6 months post-surgery (possibly up to a year total). So, sometime during the week of the 20th, I will begin this next phase of my journey. While it is daunting my concern is also with my wife and son who will suddenly be basically a single mom (with some big help from the grandparents). I ask for your thoughts and prayers to be sent their way as well. Thank you for all your loving support. I could not have done this without you. Blessings.

January 29, 2022

I am officially back on the transplant list today. They said the adrenal gland tumor is too small to worry about. They are also still looking into possible liver cancer and I will have a couple of more tests coming up. But it’s good to be back on the list at least. 

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Guestbook

February 23, 2021

❤️

Yarrow Sweningsen

February 4, 2021

sending love and healing from all 3 of us to the 3 of you.

Katrina Mayo-Smith

February 2, 2021

Jen, Christopher and Ryan - our best wishes on this journey, knowing you treasure each day together. Marcy and Jerry Clausen

Marcy Clausen