I got congestive heart failure after giving birth to my daughter who is 16 years old. I’ve been dealing with this heart disease for 16 years to the point that my heart has declined over the years. I’m in need of a heart transplant and continuous help with donations up to I get my heart transplant and after. I need help cover my heart transplant and rejection medications that can run for thousands of dollars a month. I will be on this rejection medication for life so my new heart doesn’t reject me. There were days I was too sick to cook for my daughter, so I had to order meals for us to eat, had a hard time completing chores and so fatigue that I couldn’t do my hair so I had to pay someone to braid my hair because I couldn’t do my hair. There are days I’m so exhausted to the point I have to stop in between bathing or showering. There are days that I’m so drained fatigue and exhausted to the point I couldn’t get out of bed. Trying to provide for my daughter and I with meals and bills to make ends meet is a struggle each day. When it came time for us to move at the spare of the moment and directing the movers. The last few things that were left in the apartment I wasn’t feeling well to focus enough to tell what I was keeping rushing to get things done and throwing things away to the point I threw away parts of my things and my daughters pictures from when she was an infant and toddler up to elementary school. I feel like I have lost part of her life and I can’t get that back. Now she doesn’t have much to look back on but memories. I am so mad with myself that it happened. I had to slow down with working and eventually had to stop working because of my health declining. Getting excited that I can go to work after my doctor released me to go back after getting my LVAD. I tried to go back to work my heart want let me. That day by day is hard for me.
Your expected to survive, take care of your self and the ones that depend on you to take care of them . How can you do that if you aren’t able to work? I’m struggling more than you can imagine . It’s a scary place to be and I worry each day . The system sucks, not fair to me and others that’s in need of help can’t get help because of the system . They are putting people in poverty to thes point that is causing them to lose their home and cars, bills being disconnected and cut off. For the ones that want to work even though thier ill get screwed. For 16 years I’ve been pushing myself to work no matter how I was feeling knowing that I had to provide for my daughter and I. Trying to live life to the fullest with my daughter and I exploring different things, places that life has to offer and do things together. I want to work more than you know. I was so looking forward to going back after I was released to go back to work after I got my LVAD. I’ve had a heart attack on Mother’s Day and a stroke in December in 2019. In January I got an LVAD after getting the LVAD. I almost lost my life to the point they had resuscitate me. I had to be put on a ventilator after getting my LVAD because I couldn’t breathe on my own. I had a difficult surgery. Had to go to rehab learn how to walk, write, speak to I had to take speech therapy and learn how to hold the trunk of my body to hold myself up so that I could sit up on my own. Trying to learn how to do everything all over again was so hard for me to accept. I know I had to get better so I can take care of my daughter so she wouldn’t have to take care of me. My daughter was my motivation to get well I’m very blessed to be here. I wouldn’t wish this heart disease on anyone
Every morning I wake up and open my eyes I thank God that I get to see another day and be with my daughter who needs me and I need her. My daughter is my everything love her to pieces. Needing help with paying for rejection medications and to care for my daughter and I is hard. People think just because I’m sick that I’m supposed to just sit at home and not live. It’s like they don’t expect me to continue to live my life. I’m going to live life to the fullest, cherish every moment with my daughter and make memories. So every chance I get when I have the strength and energy in my body I go out to listen to music, an occasional dinner with my daughter or take a small trip and try to catch a concert that I can afford with her. I’m not going to stop living just because I’m sick. I make sacrifices for us to live.
#BLESSINGS TO YOU ALL#❤
Family and friends of Shemere Perry are raising money for the nonprofit Southeast Transplant Fundraiser to fund uninsured medical expenses associated with transplantation
The Southeast Transplant Fundraiser nonprofit organization. That will help families who can not afford medical cost, in need of help with their transplant and rejection medications. I want them to know that they are not alone including me. We are in this together and we need each other along with support. We are strong and a fighter. We got this!! I want to reach my goal so that I can be able to help them in their time of need and myself. My goal is to raise $250k to 1 million . I’m grateful for all the donations I receive in any way.
Thank you for your support!
