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In October 2017 my pulmonologist told me I had Interstitial Lung Disease. In January 2018 my case was discussed at a University of Cincinnati Interstitial Lung Disease Conference and it was concluded by the Physicians in attendance that I have Idiopathic Pulmonary Fibrosis.
My pulmonologist said life expectancy was 3 to 5 years and lung transplant was a discussion. I shared this with my best friend of 33 plus years and she was appalled. To me a lung transplant was out of the question but my grandson-in-law unknowingly gave me a change of heart. Albeit there is no cure a lung transplant improves quality of life.
I was prescribed Esbriet which is not a cure but slows IPF progression. After a web-ex meeting with Madison VA Pulmonary Clinic early this year I was approved for further transplant consideration. Recognizing hardships it would impose on us to come to Madison Wisconsin for an extended stay I have since been approved through VA Community Care and I am nearing the end of the evaluation phase for transplant at OSU Wexner Medical Center.
If all goes as we pray for I should be listed for transplant by year end or early 2021. Most of my expenses will be covered by VA / Medicare but not all. It is expected we will have to be in the Columbus Ohio area 2 to 3 months. This expense is something unexpected and with Covid any chances for available no cost housing is next to zero. It’s been a long journey thus far but soon I will sport a new pair of lungs, thankful for the donor, your prayers and financial help and a new journey will begin.
Thank you for your consideration.
My family and friends are raising money for the nonprofit Help Hope Live in honor of me Leslie Gregory, to fund uninsured medical expenses associated with transplantation.
We chose to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the GIVE button.
Please Share this page with your family, friends and community on your social media platforms and ask them to share it as well so others may consider a donation.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
THANK YOU for your PRAYERS and SUPPORT. I no longer can say I have Idiopathic Pulmonary Fibrosis because I had a dual lung transplant. I am currently in rehabilitation, doing very well and projected to be released next Tuesday, January 12th. I am required to stay in the Columbus Ohio area for about a month and am asking any donation to help offset this non covered medical expense. Any donation would be most helpful but important are the Prayers that I have received.
Thank You!!
Hi Again,
Dec 17th I received a Double Lung Transplant! I moved from hospital to rehab Friday. I no longer have Idiopathic Pulmonary Fibrosis. They fond a tumor in my right lung but all test thus far has not indicated it spread. We have stay in the area probably another four to six weeks. Please, prayers have brought me through this to this point so don't stop and consider a donation for the unexpected expenses. Thank You and God Bless!
NEWS FLASH! I HAVE BEEN LISTED FOR TRANSPLANT! THANK YOU FOR YOUR PRAYERS!
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Les,
Thoughts and prayers for you and your family!
Marianne Smith
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Leslie Gregory
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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