Hello I Have Idiopathic Pulmonary Fibrosis and I need your help!
In October 2017 my pulmonologist told me I had Interstitial Lung Disease. In January 2018 my case was discussed at a University of Cincinnati Interstitial Lung Disease Conference and it was concluded by the Physicians in attendance that I have Idiopathic Pulmonary Fibrosis.
My pulmonologist said life expectancy was 3 to 5 years and lung transplant was a discussion. I shared this with my best friend of 33 plus years and she was appalled. To me a lung transplant was out of the question but my grandson-in-law unknowingly gave me a change of heart. Albeit there is no cure a lung transplant improves quality of life.
I was prescribed Esbriet which is not a cure but slows IPF progression. After a web-ex meeting with Madison VA Pulmonary Clinic early this year I was approved for further transplant consideration. Recognizing hardships it would impose on us to come to Madison Wisconsin for an extended stay I have since been approved through VA Community Care and I am nearing the end of the evaluation phase for transplant at OSU Wexner Medical Center.
If all goes as we pray for I should be listed for transplant by year end or early 2021. Most of my expenses will be covered by VA / Medicare but not all. It is expected we will have to be in the Columbus Ohio area 2 to 3 months. This expense is something unexpected and with Covid any chances for available no cost housing is next to zero. It’s been a long journey thus far but soon I will sport a new pair of lungs, thankful for the donor, your prayers and financial help and a new journey will begin.
January 6, 2021
THANK YOU for your PRAYERS and SUPPORT. I no longer can say I have Idiopathic Pulmonary Fibrosis because I had a dual lung transplant. I am currently in rehabilitation, doing very well and projected to be released next Tuesday, January 12th. I am required to stay in the Columbus Ohio area for about a month and am asking any donation to help offset this non covered medical expense. Any donation would be most helpful but important are the Prayers that I have received.
January 3, 2021
Dec 17th I received a Double Lung Transplant! I moved from hospital to rehab Friday. I no longer have Idiopathic Pulmonary Fibrosis. They fond a tumor in my right lung but all test thus far has not indicated it spread. We have stay in the area probably another four to six weeks. Please, prayers have brought me through this to this point so don’t stop and consider a donation for the unexpected expenses. Thank You and God Bless!
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December 7, 2020
Les, Thoughts and prayers for you and your family!