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My son Joseph was diagnosed with IPF (idiopathic pulmonary fibrosis), a rare lung disease on March 30, 2020. When speaking to the specialist at UC San Diego, he gave Joseph two years to live as he only has 20% of his lungs functioning. Joseph has dealt with many setbacks in his 21 years of life. With wearing hearing aids and his hearing declining every year, at 16 he became deaf. With the help of technology, he now gets to hear again with cochlear implants.

Joseph brings so much energy when entering a room. He has the biggest heart and smile. This disease has taken all that from him. He can’t laugh or talk without stopping to catch his breath. He has lost most of his appetite and with his weight declining, he will have to get a G-Tube placed. Joseph is fighting this disease with all he’s got. It’s hard to do daily life when you can not breathe.

Updates (3)

April 2, 2021

On 1/21/21 Joseph received a bilateral lung transplant. He had a few complications. On 2/22/21 Joseph was discharged from the hospital. We are living here in San Diego. Joseph is doing great. ❤️ Thank you to his donor God bless the family.

January 22, 2021

1/21/21 Joseph received “The Call”. He is getting new lungs. Please continue to keep him in your prayers!

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Guestbook

April 30, 2021

Stay strong!

Salvador Vasquez

December 6, 2020

Best of luck and many blessings.

Carol Amore

December 2, 2020

We wish you the best Always Binky ❤️ Love you please take care...

Nubia Coria

November 30, 2020

Binky, i know its not much, but i know it will help. May God be with u through all this & give u complete healing. But remember u have to trust & believe in him also. This is on behalf of myself & my boys Israel & Matthew Rivera.Our prayers r with u.

Marina Deharo