I am asking for help to get funding for a Velochair. This will be the last vehicle I’ll ever own. It’s utterly eco friendly, as it’s powered by me!
I have Primary Progressive Multiple Sclerosis and Epilepsy. Winter is my favorite season as the humidity is properly frozen and cannot aggravate my neurons. No matter how cold it is, I can always put on another layer. Humidity is my personal kryptonite, causing MS aggravations and it even used to trigger seizures before we found the right combination of medications. I consider myself a four-legged human, as my balance requires my extra set of legs to walk safely.
July 25, 2022
Just when I was thinking that maybe I could consider going swimming again my ileostomy pouch blows after only three hours. Thankfully I was at home. I am so utterly glad that I made the decision to not risk any pools at all with this monster.
July 21, 2022
It has been a long time since I last updated anything on here. My body tried to die twice in the past year.
• In Aug of 2021 was very not fun as my husband told me I had to go to the hospital when I could not walk at all. After being carried out by the EMTs, hours in the ER, days in the hospital, the verdict was my white blood cell count had gone below 1! This was due to a resurgence of the Ebstene Bar (sp?) virus which is now believed to be a contributing cause of MS.
• In February 2022 I discovered the pain level above "I will not scream" is "Screaming Banshee!" and never want to go there again. Yes I ended up getting carried out of the house by the EMTs, spending hours in the ER, getting admitted, but this time I got the bonus of surgery. I went from the hospital to a nursing home and back to the hospital. I did not get to go home until March 26th. Sleeping on our tiny couch downstairs for weeks until I could safely climb the stairs was actually wonderful. However, my digestive system is now rewired and I get to poop out of my tummy into an ostomy pouch. Well, actually I have an ilestomy, and just to make it more difficult it healed deeply inverted. The good thing is I AM STILL ALIVE.
Today, July 20, 2022: I finally feel well enough that I did some Gardening! I planted five of the six plants that I bought last weekend! I'm a person again. I have actually walked around the block this month. Saturday I went sailing with Adaptive Sports Connection. I have been to the Columbus Zoo and Aquarium and been able to walk one section of it before being utterly wiped out. When I do things I end up taking the next day pretty much completely off. Yesterday, I think I read a book all day, as Monday I actually did my MS Yoga class for the first time since before February. I do believe I'm actually starting to have my normal level of energy.
Photo Galleries (3)
September 1, 2021
September 1, 2021
June 3, 2021
We are praying for a successful surgery this morning for you Tasia!