Accessibility for all: Helping people connect with who and what matters most
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Jacob has a story straight from a movie. His is the story of a 30 year old man (a Marine Vet) who woke up in 2020 after 8 years of being in a coma. For the last eight years Jacob had no communication with the outside world, however, in January last year, the staff at the community where Jacob lives began to notice he was tracking with his eyes. Amazingly after eight years, Jacob was “awake”. However, even though he was awake he was unable to move and unable to speak. He has a syndrome called Locked in Syndrome (LiS). LiS is a condition in which a patient is 100% aware but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in the body except for eye movements. With the support of the staff at his community, they have developed a manual system of communication where Jacob spells one letter at a time and the other person recites the letters until the correct letter is reached. Slowly they formed a communication system and are able to talk through Jacob focusing on letters on a board and the other individual spelling in out, then reciting what Jacob has spelled.
The world is open to Jacob and he is 100% alert and ready to share. He has a wonderful sense of humor, a great laugh and obviously can spell great! Through further testing, we have determined that Jacob can use a specialty tablet and software tracking his eye movements. When he is ready the device speaks for Jacob and he can again interact by himself with the world, through one eye gaze at a time. Unfortunately, however, the ability for Jacob to speak with the world is not cheap and he does not have insurance with can cover the cost. Given he is unable to work, let’s find a way to help Jacob raise enough money so that he can say “Thank you” to all of you himself.”
There is hope for Jacob. He has been assessed for a Dynavox eye gaze tablet that will use his eyes to allow him to speak. The Dynavox tablet would use his eye gaze to allow him to talk and even to use the internet.
Jacob’s Dynavox computer is around $16,000.
Family and friends of Jacob Creasman are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Injury.
Jacob has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Thank you to all who have given to help Jacob! Jacob has received his control bionics eye gaze computer! The computer allows him to use a keyboard to speak. It also allows him access to Facebook, YouTube, texting and more. Jacob is working daily to master his new device. It will take time for him to use it quickly. But he is making progress. With donations Jacob has also received a cough assist machine a be a vest to help him cough.
Thanks to Hope Help Live, WBIR Channel 10 News, Control bionics and many generous people who have donated! Jacob’s eye gaze computer has been paid for. He says thank you to you all and especially thanks God for making this possible. He will be receiving it in about a week! Any extra donations will go towards a cough assist machine that Jacob needs to keep his lungs clear. Stayed tuned for a video of Jacob using the eye gaze computer!
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EVA Facial Mouse - Fundación Vodafone España (i tested)
EyeTracker - BVG Software Group (i didnt test)
Look to Speak - Google inc (i didnt test)
dancomtx(a)gmail,com - you can contact me
Thank you for your service! I wish you all the best.
God bless this courageous Marine! Semper Fi Brother!
Semper Fi Brother!
Blessing to you!!
I have just read of your story. Your you tube news video came up as I was scrolling.
What a miracle that you woke up after 8 years.
Now God wants to use you to speak out. You are an amazing man
Your story has really affected me. The song I Can Only Image is now on repeat for me too. You’re in my mind and I wish to send you all of my love and hope. You’re such an inspiring fighter!
God Bless. Hope you have applied for his benefits through department of veterans affairs?? If not please do so...
Marine, always a Marine. My prayers go out to you Jacob Creasman I wish you the best.
Thank you for your service, Jacob. You are amazing. Prayers for you - Semper Fi .!
Dr Jacqueline Le Pham
Good luck, brother!
My name is David, and I am from northeast Pennsylvania. If you ever want to message you can always contact me. Thank you for your service and continuing to be the hero you were meant to be.
David N. Corrado
Jacob much love are hearts are with you, you can do it!
Hi Jacob, my mom had a stroke when I was 6 years old that resulted in Lock-in Syndrome. As a child I was confused and upset to see her in that condition. Your smile reminds me of hers, I wish I could have done more to help her, but hopefully I can do something to help you. People love you and you are worthy of every bit of it. I wish you all the luck to live your best life, and I know you will be able to. I admire your immense courage and perseverance Jacob, best wishes and with warmest regards. - Nader
Hey Jacob! Thinking about you and hope you’re doing well!
God bless you Jacob
I was so touched to hear Jacob's story and to see the strength he exhibits. I had an uncle who was also a Marine, and he too suffered a brain aneurysm when he was only 32 years old. Unfortunately, I lost my uncle but I pray for Jacob's recovery.
My deepest thoughts and prayers for Jacob.
Admiring your bravery and sending prayers and love from Gatlinburg.
Praying for God's continued blessings and healing upon Jacob. I'm looking forward to hearing more about your progress.
Even a small gesture can make a world of difference.
Keep fighting. Never ever give up.
May you regain everything plus more and spread wisdom on the power and effects that faith, hope and love have on your life and those that love you.
GOD Bless Jacob and I hope he's able to get the device he needs to be able to communicate. GOD Bless his nurses too :)
From one Marine Corps Family to another. Semper Fi!
Praying for you and hoping for continued healing.
What a story. I am humbled by the beauty of this human connection in a time of such struggle. I pray that you raise enough!! Love from Georgia
Erin Straight Patterson
God bless you Jacob.
We hope you get well soon!! We hope your new equipment will help You communicate better:) sending hugs and prayers!!! The johnson family
One tough Marine, Semper Fi, Brother. Continue to fight, we are pulling for you. Ken C. from Just Us Marines, Knoxville, TN
Please Watch the movie “The diving Bell and the butterfly” This exact thing happened to another man and they made a movie about it it will help others to understand !! Someone needs to make a TickTock about this fundraiser!
Please watch the movie “ The diving bell and the butterfly“ This exact thing happened to a French man and they made a movie about it! You must watch it to understand fully what this is like.
Proud of you Jacob!
Jacob, you are a fighter beyond measure. DON'T GIVE UP! God bless and watch over you.
Have FAITH in God.
Thank you for your service to our country. May the Lord bless and heal you.
My heart goes out to Jacob. His situation could happen to any one of us at any given time. Jacob I’m praying for you to recover fully one day.
Please help Jacob and his worthy cause.
what a great thing you are doing for him. he deserves a chance at a life where he can communicate and bond with those around him. no one deserves to be alone during a time like this. For Tricia Limpus to take it upon her self to be his voice is going beyond the norm. Kudos to her and i hope enough money is raised to give Jacob the tool he needs to communicate his needs to those around him.
We are praying for you and your family. Thank you for your service.
God blessed this Hero for giving him the ability to be an active part of this World again.
Now I'm blessed to be able to help - if only just a little bit.
Your smile inspires me. My heart hurts for you but your spirit warms me. God be with you. God is with you.
Mrs Christine Leitner
My son, Brian, died in 2017 from a brain aneurysm. To be able to help this young man in some small way helps with that pain. God bless.
Keep Fighting Hard!!!
Happy Easter Jacob!
Anonymous in Farragut, TN
Jacob, your smile lights up the room! God bless you and your advocates and caregivers. My mom also has locked in syndrome, she is the light of my life, and I'm sure you are that light to the many people in your life. I hope you are able to get your new communication device very, very soon.
Prayers for continued healing, provision, peace and rest from our Lord Jesus. May you feel His presence in a mighty way.
Contact HealthWellFoundation.org They are based in Maryland and give grants for all different types of diseases/illnesses. Worth a try!!
Sending prayers for you Jacob. God bless you and your respiratory therapist Tricia Limpus! May you get the equipment you need soon!
In honor of Jacob and his care takers, including Tricia Limpus.
J Ford Little
God Bless You
Good luck Jason! I am rooting for you!
Happy Easter, Jacob. I hope that you get to read all of these words of encouragement. I just wanted to tell you that God has not brought you this far to leave you. Praying and believing you will have a complete recovery from this. You will have a wonderful testimony. Xoxo
This free-your-voice device will set you free for communications, but not in the ordinary way to communicate, but an unusual, or, rather, a very unorthodox way.
Praying for your recovery, and I look forward to hearing from you when you get your new communications device. God Bless your wonderful therapist who is your Guardian Angel.
I've tried to out give God - but I never can. I share with you from the resources, mercy and grace He constantly provides me. You have a voice and it is my honor to contribute so that you can effectively share it. May you be reminded daily in your inner man just how deeply the Lord loves you.
I hope you are able to find your voice with this communication system Jacob! Don't give up!
Your story touch my heart. I just want to say, thank you for your service. I hope you find a way to communicate freely very soon. Please keep everyone updated on your progress.
I am praying for your recovery!
You're an inspiration Jacob! God bless, and keep strong!
Craig and Amanda L.
May god help you during this difficult time keep your head up you will get there
I'm so glad they found a way for you to communicate. God Bless You.
Thank you young man for your service to country.
I'm hoping our country now comes to provide for you.
Semper Fi Brother Keep fighting never give up!! You are an inspiration to all!!
Gunnery Sergeant Cooper USMC Retired
Semper Fi, Marine!
Thank you for your service!! We pray God comforts you and gives you the peace that only He can give through every step of your recovery.
Powell Power Equipment, Inc.
Jacob, I love and miss you so much!!! Although I’m probably not your favorite Respiratory Therapist anymore! Ha Ha! OohRah! Marine!!!
Thank You Jacob , for you Are a True Soldier and The Holy Spirit is Very Evident in Your Walk with Christ Jesus .I Hear You . I am Looking Forward to meeting you someday and You Have Inspired Me Tremendously. Your Friend Randy,
Thank you so much for you service!
Hello Jacob- one of my favorite songs is MercyMe’s ‘I Can Only Imagine’ too! Saw your story on WBIR and I wanted to help you get the technology device you need. I’m a RN and have cared for someone with Lock Down Syndrome and I cannot imagine how frustrating it would be to not effectively communicate to others. You are a true inspiration and I will be praying for you. May this Easter Season remind us of the hope we have in Jesus! And if you haven’t watched The Chosen TV Series, get someone to get access for you. It’s a free app (The Chosen) and season 2 is getting ready to begin. I think you will really enjoy watching it. :-)
Your story is powerful. I pray for you, your parents, and Tricia.
I donate this in honor of my very healthy Marine Grandson ho is an active Marine!
May God bless you!
Thank you for your service to our country. Your in my prayers. Looking forward to the story that you now have the equipment you need to talk to the world
Hi, I am the CEO of Control Bionics and just saw your news article. We have a system called the NeuroNode Trilogy which I think would be very valuable for Jacob. It would allow him to communicate both through his lip movement and eye control with speed and low fatigue. Being a Marine he may also be eligible for VA funding. Please feel free to contact me as we have people in your immediate area that could show you what is possible. email@example.com www.controlbionics.com
My younger brother, Jacob, has been in a persistent vegetative state for 9 years this March from a car accident on his way to school his senior year.
I saw Jacob C.’s story on my local news in Knoxville and it really hit home. It gives me hope to hear this story, and I hope he gets the technology to communicate that he needs and deserves. Stay strong Jacob!!
It's an honor to help you find your "voice". Prayers for continued recovery, and thank you for your service.
Praying for God’s blessings and healing.
I hope we can get this done! Being able to communicate with you would be amazing!
Praying for you Jacob!
What a miracle you are Jacob! God Bless you and your recovery.
Hoping you raise all the money you need!
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Jacob Creasman
Help Hope Live
2 Radnor Corporate Center
100 Matsonford Road
Radnor, PA 19087
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