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Don’t let this breath be John’s last….

John has been dealing with progressive lung disease for years and now has exhausted all conventional treatments including removing part of a diseased lung. He needs a double lung transplant soon to survive his worsening bronchiectasis, ABPA (allergic bronco pulmonary aspergillosis) as well as severe asthma. We’re asking family, friends and co-workers to join us in fundraising for the non-profit HelpHopeLive.org in honor of John, to assist with expenses he’ll incur after surgery. He expects to be in a Boston area hospital 3-4 weeks immediately following the transplant. He will also be required to live within an hour of the Boston area in order to attend regular clinic visits post surgery.

Updates (12)

May 4, 2021

At home for almost 3 weeks now and feeling wonderfully . I am walking a mile every day including a pretty steady incline up to the main road in my development. The only limiting factor is my legs get tired but there’s absolutely no shortness of breath! I am also using weights for my exercises to strengthen my arms and my legs. I am also re-experiencing the basics in life without struggling. For example taking a shower without having to sit down stop and rest or need assistance. I’m able to do dishes without sitting down and resting. I even got to go to the hardware store and walk around (with my mask on of course) . What a treat since I haven’t seen a store in over a year. Doing all these things without giving it a second thought. Today I went back to see my pulmonologist David Strumpf in Troy for the first time in almost 3 months post transplant. The entire office staff had to come in to congratulate me and were amazed at how well I looked compared to pre-transplant. They were so glad that I was doing so well. I owe the whole team there a lot – if not for all their efforts of scheduling tests ,forwarding records , the support and guidance from Dr. Strumpf I wouldn’t be where I am today. Hats off to all of them. Tomorrow my wife Karen and I will celebrate our 42nd wedding anniversary. A few months ago it was questionable whether or not I would see that happen. We were looking forward to perhaps attempting a little outside dining somewhere to celebrate but the weather does not look like it’s going to cooperate. We’ll save that for sometime in the future. Back to Boston next week for a few tests and a follow up visit with the transplant team.

April 24, 2021

4/13/21 Home at last two months to the day after my lung transplant. It’s been quite the journey lots of hard work but worth every bit of it. I was able to walk about a quarter of a mile in my neighborhood for the first time since I moved there a year ago. I also was able to go up and down a full flight of stairs without stopping in without shortness of breath. It all felt surreal and amazing at the same time. I can’t wait to see what I’m able to do next!

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Guestbook

March 23, 2021

This is the remaining donation from the Eddy Visiting Nurse and Rehab Association fundraiser for John. We hope this find him and Karen doing well in Boston!

David Orenstein

March 23, 2021

John, Keeping you and your family in my prayers. Take things one hurdle at a time. Great to see you smile. #StrongerTogether Rich

Rich Wagner

March 12, 2021

Wonderful news! Keep up the great work. We know you both are anxiously awaiting that discharge date. All good thoughts sent your way! Sue and Bill

William Stilan

March 12, 2021

Sending positive vibes John! The Dambrocia Family!

Mollie Dambrocia

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