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Don’t let this breath be John’s last….

John has been dealing with progressive lung disease for years and now has exhausted all conventional treatments including removing part of a diseased lung. He needs a double lung transplant soon to survive his worsening bronchiectasis, ABPA (allergic bronco pulmonary aspergillosis) as well as severe asthma. We’re asking family, friends and co-workers to join us in fundraising for the non-profit HelpHopeLive.org in honor of John, to assist with expenses he’ll incur after surgery. He expects to be in a Boston area hospital 3-4 weeks immediately following the transplant. He will also be required to live within an hour of the Boston area in order to attend regular clinic visits post surgery.

Updates (16)

August 15, 2021

Today is 6 months post transplant! I am feeling good although apparently still having some issues with some bugs that don’t want to leave my lungs and am currently on IV antibiotics. Walking 2 miles per day and continuing my strengthening exercises and I realize how important it all is to continue to make gains. Karen and I were able to go on vacation to the Delaware shore- a trip that I look forward to every year! Just being by the ocean rejuvenates my body, mind and soul. This year was a little different as I really just got my feet wet- no swimming but I enjoyed walking on the beach,relaxing and reading. I had struggled so much on oxygen to even get from the parking lot to the beach the last time I was there 2 years ago. I’ve also been able to see my little joy Millie! We babysat and she was just the best girl. Loved to get down on the floor and crawl around with her. She is crawling and pulling to stand and using her voice although not sure what she is saying. Our son Chris ,daughter in law Kelsey and Millie were finally able to come and visit us. Just as my confidence was building to try and venture out to experience a bit of normalcy, COVID is rearing its ugly head again. I’m wary of taking any unnecessary chances . I treasure the gift I received and believe in protecting it. Won’t find me without a mask that’s for sure!

July 4, 2021

It is now the 4th of July, Happy 7 months to granddaughter Millie Anne, and I am approaching 5 months post transplant, how time flies. I am feeling great still being cautious in public even though I have received both Covid-19 vaccines. The mask won’t be going away for me anytime soon as I have too protect my precious new lungs. Starting to slowly venture out in public. Still doing monthly visits to the transplant clinic in Mass General in Boston. Meeting up again with Millie Anne was so precious when we saw her in May. Since then she has learned how to crawl and eating foods. It is such a Godsend to be able watch her grow. To think a few months ago I wasn’t sure that would be possible. So grateful for science and medicine of today. The heavy duty meds are giving me some hair loss, it’s getting very thin but that’s a side effect of the prescriptions I am on as well as shakiness. I’ll take it as I am alive and well and able to do things that I wasn’t able to do for years. So thankful for this major event in my life, thank you to my donor and their family whoever you are. I hope to find out some day so I can thank them in person. This is a wonderful journey that couldn’t have been possible without the support from my friends, family and co-workers and acquaintances. Our fundraising has stalled so please consider donating to the cause. Again thanks so much for helping me and I hope to give back in the future to help others that are struggling with these horrible diseases. I pray for those who are going through difficult times, it is a very hard road to travel but it’s worth it to stay alive and enjoy the life we have left. My new motto is life is too short and very precious so enjoy it because you never know what you are going to wake up with. Don’t take things for granted, life can change drastically in a heart beat. Donate blood, give to charities, help others, it’s all good for the mind and soul. As this site says Help HOPE Live. Thank you

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Guestbook

July 6, 2021

Hey John, I'm glad to hear that you're improving!! You'll be in my prayers!!

David Wood

July 4, 2021

John, It was great to hear from you today. I so glad recovery is going well!! Now that that I have your number we can keep in touch

Rich Blanchard

March 23, 2021

This is the remaining donation from the Eddy Visiting Nurse and Rehab Association fundraiser for John. We hope this find him and Karen doing well in Boston!

David Orenstein

March 23, 2021

John, Keeping you and your family in my prayers. Take things one hurdle at a time. Great to see you smile. #StrongerTogether Rich

Rich Wagner