MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
We regret to inform you that there is nothing we can do for you. You have 1-3 years to live.
Shocked in disbelief, I watched as my brave son lay in a hospital bed with three specialists at the foot of his bed all saying they can’t help him. His young bride in tears and friends in disbelief surround him. These doctors give references to another doctor who may have alternative methods of helping, but there is nothing they can do for him. The diagnosis is fibrosing mediastinitis with severe pulmonary hypertension, and the only cure is a heart and double lung transplant. Trying to process what just took place was unfathomable. My son seemed to process it like he processed life, “give me the data and I can come up with something that will work.”
Well, that was October 17, 2016, and we are praising God he is still here. Ben is doing well considering all the heart catheters, angiograms, blood tests, hospital stays, office visits, hospital and doctor searches, disease searches, medicine changes with side effects, and traveling thousands of miles.
I believe he has gone full circle in his search since then and is back to square one.
His heart is very enlarged now and cannot last much longer because of the severely high pressures built up inside the arteries to the lungs. The heart is trying to pump life-giving oxygen and blood through tiny, mostly occluded vessels. His whole right lung has been cut off from blood and oxygen. It’s an idiopathic disease as no one knows how he got it. Rare diseases list only a few people ever to have a mildly similar version of this disease. Every breath is a struggle leading to decreased function and mobility. Every chest pressure he feels is his heart taking on damage.
Your donations for his heart-double lung transplant will greatly help with the expenses of travel and five months of boarding near Stanford University, rehabilitation, and many other costs associated. The costs of transplant will continue for the rest of his life.
He is the kindest, most considerate, bright and talented person you would ever hope to meet. I have never heard him utter one unkind word. Ever! He always focuses on the positive side of everything, even throughout his medical journey. He is an amazing uncle to his nieces and nephews, and his plans for the future are to experience the joys of fatherhood. I pray he gets to experience that as well for there is no greater joy in the whole world than being a parent.
I ask for your prayers.
I ask for your monetary gifts.
Thank you and God bless you.
– Nicki Lemmond
Family and friends of Ben Lemmond are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.
Ben has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Other ways to double your donation is to check if your company does donation matches.
Thank you for your support!
Loading Images
May you know God’s love through this difficult time, may you and your family know that you are cared for through it all.
Tamara Hebert
Love you and Lyndsey and think of you every day! ♥️
Amanda Gibbons
All the best to you and your lovely family
Sally MacFarland
Suli and I send lots of love and support. We're here for you!
Erin Harbinson
Any family of Morgan is family to me and Jennifer. You and your family will be in our prayers. Take care and best wishes.
Jason Yenor
Wishing you a speedy recovery!
Mike Anderson
We love you!
Annika Karlsen
Prayers for all involved
Jeff & Kim Lemmond
Sending love and healing.
Love the Goheans
Courtney Gohean
Fight On, Ben!! The Lord be with and your family.
Kevin Dougherty
Love ya buddy
Brian, Holly, Tucker and Wickett
Brian Ashley
We are friends of Laura and Lindsey and heard about your upcoming transplant. We will be saying prayers!
Alexandra Ornelas
I hope this helps assist you and your family. No thank you needed - you have my support.
Matthew Roncone
Praying for God\'s blessings for you & Lindsey. Also, pray God will guide the doctors & nurses that take care of you Ben.
Steve Parsons
Love you Bendsey!!!!
Jenny Pearson
Sending so much love and healing energy your way, Ben. Keeping you and your family in my thoughts and prayers.
Theresa Amatore
Best wishes, we're rooting for you!
- Adam and Sarah
Adam Couch
Sending positive thoughts.
Love,
The Stovers
Angie & Chris Stover
Prayers for Ben are underway.
Christopher & Anne Dougherty
This is from "Pete Across the Street" next to Will and Sharon's house.
peter Kruczlnicki
We are keeping hope alive! Keep the faith. Best, The Fitzgerald Family
Nancy Fitzgerald
Praying for you and your family. Help Hope Live is such a great organization ❤️
Lauren Mammucari
Ben Prayers for you
Much love, Abby
Abigail Foxx
In honor of my precious friend Mary Ann Lemmond❤️
Anonymous
Passing along love and best wishes for Ben's medical journey and road to recovery. Keep up the good fight!!!!
Rich & Megan
Rich Waite
You just a boy. You aren't not talk ataway! Hmm mm
Anonymous
Praying for you and sending you all the best!
Wade and bethany Sutton
Ben - our thoughts and prayers are with you.
Donald & Brenda Stover
Ben, wishing you strength and patience in the days ahead!
Kimberly Dougherty
We love the Lemmond Family! You are in our prayers!
Mimi Jara
We are sending so much love and prayers to Ben.
Tara McCormick
Not always eye to eye but always heart to heart!
William Lemmond
Our thoughts and prayers are with you guys!
Robin, Don and Donna Moseley
Robin Moseley
Prayers and thoughts for you and your family.
Elizabeth Pachella
As a friend and business associate of brother Will, I am happy to help in this small way. Also sending prayers and good wishes for a successful outcome!
Robert Donze
Ben and Lindsey, I am praying for both of you and trust the Lord will help you both in this life changing battle! Love to you both!
Polli Bitterman
Ben and Lyndsey,
We are thinking of you and praying to have a organ match quickly.
Bill and Delphine
William Sieredzki
You are all in my heart and prayers. All my love, Aunt Mary Ann
Mary Ann Lemmond
It goes without saying that I love you all and will do anything I can to help. Mert and Nicki, I’m a phone call away. Love and prayers, Teresa and Steve
Teresa Lemmond Wright
Sending you thought and prayers!
Christine Sieredzki
Love you Ben
Stay strong buddy
From your old friend Dud
Jason Osborne
We are keeping you all in our prayers.
Nancy, Liam and Jim
James Kelly
Thinking of you and your family, Sharon. XO
Paige Douglass
Ben you and Lyndsey are in my continued thoughts and prayers!
Terri Guske
Sending lots of strength and love.
Lisa Bianchini
Best of luck
Sally MacFarland
Keep fighting Ben!
Kristen Swartz
I’m so sorry y’all have been having to go through all this for so long. Sending love and prayers for strength. ❤️
Jaci Quam
Sending you love and support.
Joanna and Will Bradley
Live y'all!
Willie King
I love you, Ben and Lyndsey! I want you to feel better and breathe easier every day. I hope this campaign helps in the long run to ultimately spend less time in the hospital and more times with family and friends.
Jane Pearson
We are praying for you Ben and Lyndsey.
Timothy Taylor
Love you Ben and Lyndsey.
Annika Karlsen
Our thoughts are with you all during this trying time ❤️
Kevin and Kelli Althouse
Sending you all our love and prayers ❤️
Laree, KP, Preston & Cooper
All 5 of us love you so much and are thinking of you constantly! ❤️
~McClintock Family
Lindsey McClintock
Sending our love and support! Remembering all the good times and game nights with you both.
Alyson and Nate
Alyson Miller
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Benjamin T Lemmond
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment