Family and friends of Elizabeth Barnett are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.
Elizabeth has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Updates (3)
July 27, 2021
On July 14th, 2021, I got my new heart and liver!
February 12, 2021
My Bonfire store is live! Buy a snazzy coffee mug, a comfy t-shirt or even a cuddly hoodie. All proceeds will benefit my Help Hope Live transplant fund.
February 8, 2021
First, thank you for visiting my Help Hope Live page and supporting my fundraising efforts.
I was born in 1980 with several complex congenital heart defects including having a single ventricle and single atrium. I also had dextrocardia, pulmonary stenosis and double outlet left ventricle. My prognosis was not good; a respected pediatric cardiologist actually told my mom to go home and have more kids to keep her company when I died.
Obviously, she completely ignored that advice and took me to Mayo Clinic in Rochester, MN. In 1986, I had a modified Fontan. At the time it was a palliative surgery designed to get the kids to maybe see their teenage years.
Well, not only did I see my teenage years, but I went to college, worked full time as an HR Manager and lived a full and active life.
In June 2018, I was diagnosed with a severe Fontan complication called Protein Losing Enteropathy. I was also diagnosed with Fontan Associated Liver Disease, or cardiac cirrhosis. The Fontan circulation causes blood flow in the hepatic vein to become congested, therefore damaging the liver permanently.
So, as I approach my 41st birthday, I have been approved for a heart and liver transplant at Vanderbilt in Nashville, TN. I know that I am so lucky to have seen my 40's, but I want more time. I recently married the love of my life and I want a chance to grow old with him. I have two amazing, hysterical step kids and I want to be around to see the fascinating adults they turn into. I also have a niece and two nephews, one of which calls me Aunt Boo Boo Heart, that I want to have the ability to chase around and play with until they are the ones that are tired.
I have a lot of motivation to help me fight and survive a double organ transplant, I just need some financial assistance along the way. There are so many transplant related expenses that insurance doesn't cover; like the rent I'll pay in Nashville and I could be there for 6-9 months. One of my post-transplant medications will cost $500 a month. I will be making regular trips to Nashville for the rest of my life to be followed by their transplant team.
I am eternally grateful for all the love and support that I have been given that has helped me make it this far. And I will appreciate all the love and support I will have thru this process. I promise I will spend the rest of my life paying it forward and putting good karma back out into the universe.
Please like my Facebook page The Feisty Fontan to follow my transplant journey or at www.thefeistyfontan.com.
Photo Galleries (2)
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Guestbook
October 7, 2021
Liz, we are so thrilled you’re ‘on the other side’ and starting to have the life you were always meant to have! We’re so grateful for your friendship and support for Kamil and Sara and are so thankful Kamil has made lifelong friends through this difficult journey. We’ll always be cheering for you!
— Slomka Family
Evelyn Slomka
July 15, 2021
Cheering for you and your new kickdrum heart! Say love ❤️
Kim Kassab
July 15, 2021
Say Love
Nancy Wham
July 14, 2021
Say love
Jackie Guthrie
July 14, 2021
Stay Strong! Say Love!!
Lori Strong
July 14, 2021
SAY LOVE! <3
Aimee Dotson
July 14, 2021
Say Love!
Bonnie Culbertson
July 14, 2021
Say love!
Wendy Pliska
June 22, 2021
The day you get the call, the day you get the transplant(s), the day you get your second chance is the same day someone you do not know and will never meet will move on from this world into heaven. This person loved you so much they gave you their heart. Remember and cherish this person. Tell your children, tell your friends, tell everyone how love saved your life.
When you see a butterfly, ask it if it is your donor who flew by to say Hi. When you see a rainbow, ask your guardian angel if is there for you to honor your donor.
Praying for you to have Love, Life and Organ Donation; The most beautiful journey of your life.
Ken Lovely
May 22, 2021
Praying for you and your family! Wishing you renewed health, strength, and many happy memories ahead
Lori Bitely
April 29, 2021
With love to you from Canada and fans of Avett the North! You've got this, we've got you! Say love :-) xo
Martha Turner
April 3, 2021
Say love!
Randy Parks
March 31, 2021
Say Love!!
Ryan Steinbock
March 31, 2021
Say love
Tyson Pfingston
March 31, 2021
Say love, Liz!
Bob Hill
March 30, 2021
Say Love!
Mary Hocking
March 23, 2021
Praying for you!! #SayLove
Karen Szakelyhidi
March 21, 2021
Shalom
Cheryl Alexander
March 19, 2021
SayLove.
Allie Mesang
March 18, 2021
#SayLove!
Wendy Pliska
March 18, 2021
#saylove
Kelly Latimer
March 18, 2021
Keeping you in my prayers, Liz. Much love to you and your family!
Beverly Allen
March 17, 2021
I'm sure we have shared the same air at an Avett Brothers show sometime ago, somewhere.
I wish you the very best with this journey and a full recovery!
Kris
Kris Haisten
March 17, 2021
Say Love
Jamie Calnan
March 16, 2021
For that Kick Drum Heart!
Love you!
Kimm Silveus
March 15, 2021
Say love —sending you lots of love and prayers!
Lisa Marth
March 14, 2021
Good Luck Liz!!
Karen Szakelyhidi
March 14, 2021
Sending all kinds of love and support your way.
Tiffany Engledowl
March 13, 2021
Say love! Thinking of you.
Kate Bassett
March 12, 2021
God bless you and keep you close to Him!! You will be in our prayers and close to our hearts!!
Steve and Pam Bonagurio
March 10, 2021
Thinking of you Elizabeth! Say Love!
Tiffany Stauffer
March 10, 2021
See you down the road at a show living your best life!!
Brian Hillner
March 10, 2021
Rooting for you Elizabeth! Can’t wait to celebrate with you at an Avett’s concert soon!
Sara Hire
March 10, 2021
Best of luck!!! Say love!
Liz Egler
March 10, 2021
❤️❤️❤️we came for family❤️❤️❤️
Julianne McCormick-Anesh
March 10, 2021
Sending love and best wishes to Liz!!
Connie McKee
March 9, 2021
Here’s to a speedy recovery! Say love.
Teresa Giacomini
March 9, 2021
Sending love and strength for your journey! You got this and we got you!!
Kara Walsh
March 8, 2021
There's hope for sure. Stay stong. Say love.
Elvan McMillen
March 8, 2021
Sending you healing thoughts!
Eileen Sweeney
March 7, 2021
Thinking of you fellow RITA. My husband just had his 20 year liver anniversary, he\'s doing great and I know you will as well!
Tracey Sanford
March 7, 2021
So much healing energy coming your way from NH. Hugs!
Shaunda Belanger
March 6, 2021
Thinking of you! Avett fans have to stick together!
Kate Bassett
March 6, 2021
Best wishes to you on finding a donor quickly!
June Oliphant
March 6, 2021
Amazing story!! Wishing you the best of luck in your health journey, you're an inspiring, strong woman
Jennifer Spiegel
March 6, 2021
Sending live from a fellowRITA❤
Bridget Grimm
March 6, 2021
Liver Lover!
Vikki Metheny
March 6, 2021
Team LIZ!!! You got this! Can’t wait to be dancing again at your next concert!
Steve Powell
March 6, 2021
Prayers and love to you my friend for a successful transplant and a quick recovery.
Chris Cole
March 6, 2021
Avett love and strength to you from a co-inhabitant of the attic!
Noel Pumphrey
March 4, 2021
Sending healing thoughts!!
Sharon Alleman
March 3, 2021
Best of luck fellow RITA!
Kellie Marquet
March 3, 2021
best wishes!
Wendy Pliska
March 3, 2021
Wishing you all of the love and hope in the world ❤️
Lisa Noble
March 3, 2021
Liz - sending all sorts of healing thoughts your way!!
Jolee Faison
March 2, 2021
Say Love.
Joni Villafane
March 2, 2021
Prayers and love for you Liz!!
Breanna Trimble
March 2, 2021
Go get your Kick Drum Heart, Liz!!!
Michael Ganz
February 20, 2021
May the only thing shorter than your wait be your recovery. Always here for you friend.
Monica Wells
February 17, 2021
Say love
Tyson Pfingston
February 17, 2021
Say love
Caryn St. John
February 15, 2021
God bless you! I’m praying for you!
Pat
Patricia Francoforte
February 14, 2021
Beth- I’m rooting for you! Big props to Arianne who alerted P West of your situation. Good luck with everything! XO
Laura Wehrley
February 11, 2021
Wishing you the best with this journey!!!!!
Karen Flagg
February 10, 2021
Wishing you all the best and praying for every door to be opened and every need to be met. ❤️
Lori Bitely
February 10, 2021
Will continue praying for you and your family!
Judy Swinehart
February 10, 2021
We love you Liz and are rooting for you all the way! Love Mike, Niki, and our girls!
Michael Grajewski
February 9, 2021
Hope this helps you get your kick drum heart. Say Love!
-Beth and Jason Levy
Elizabeth Toot-Levy
February 8, 2021
Thinking of you Liz- stay strong - you’ve got this!! Love your hair in that pic by the way
Heidi Jo
February 8, 2021
Sharing this information with our wired community! Keeping you close in prayer and love! xo
Dawn Huberty
February 8, 2021
We are praying for you and your doctors!! Greg and I know that you can make it through!!
Tara Newcomb
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Help Hope Live
Note in memo:
In honor of Liz Barnett
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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