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My sister Carol has recently been diagnosed with Idiopathic Pulmonary Disease (IPD) which causes progressive scarring on her lungs and prevents normal airflow. In other words, she has extreme difficulty breathing even on oxygen and will require a lung transplant to live. This disease affects about 200,000 people in the US each year, there is no cure, and it’s unclear what causes it. Without a transplant, the expected life expectancy is between 2 and 5 years from the date of diagnosis.

Updates (7)

June 5, 2021

Carol and her family are so grateful for your support. While awaiting results from pre-transplant testing, Carol developed an infection and was hospitalized for a few days while they got it under control. She is doing much better now but as a result it has led to more testing and doctor visits to determine whether they do corrective treatment prior to the transplant. The sheer number of doctor visits can be exhausting but the doctors want to make sure that Carol will have the best results possible with the transplant by eliminating potential complications in advance. It’s a balancing act to do as much as possible in advance that then delays transplantation. The challenge is that her lungs don’t get to take a time out and the disease continues to progress making it more difficult to breathe. Carol has been doing her best to build up her strength. Anything she can do to get stronger now will help with recovery later. Carol has been a trooper and so far she’s in good spirits taking it one day at a time.

Thank you again for all your prayers and support!

May 21, 2021

Carol and her family want to thank all who contributed or participated in the Help Hope Live 5k event in honor of Carol. In addition to raising money for a great cause, it was nice to see family and friends gather together.

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May 29, 2021

Carol is in my prayers. Here's hoping the wait is short.

Janet McCoy

May 18, 2021

Best wishes for a successful procedure and recovery!

Abby Miller

May 12, 2021

God bless and we will be prayer for a successful procedure and recovery.


April 14, 2021

Praying for a successful procedure!

Amy Mitchell