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My sister Carol has recently been diagnosed with Idiopathic Pulmonary Disease (IPD) which causes progressive scarring on her lungs and prevents normal airflow. In other words, she has extreme difficulty breathing even on oxygen and will require a lung transplant to live. This disease affects about 200,000 people in the US each year, there is no cure, and it’s unclear what causes it. Without a transplant, the expected life expectancy is between 2 and 5 years from the date of diagnosis.

Updates (8)

September 30, 2021

Carol got the call at 8:30 in the morning on Thursday September 16 that there was a lung available. By 3pm she was on the table and had a new lung by 6pm. Today is September 29, 2020 and Carol was released from the hospital late this afternoon. She is doing wonderful and is ready to move on to the next phase of her recovery. Over the next few weeks she will be closely monitored on an out patient basis. They will be watching her recovery closely and making sure no infection or signs of rejection set in. Carol will be gradually working on building her strength and exerting that lung. She’s been completely off supplemental oxygen since just a day or so after the surgery. She is very grateful for all the love and prayers sent her way.

June 5, 2021

Carol and her family are so grateful for your support. While awaiting results from pre-transplant testing, Carol developed an infection and was hospitalized for a few days while they got it under control. She is doing much better now but as a result it has led to more testing and doctor visits to determine whether they do corrective treatment prior to the transplant. The sheer number of doctor visits can be exhausting but the doctors want to make sure that Carol will have the best results possible with the transplant by eliminating potential complications in advance. It’s a balancing act to do as much as possible in advance that then delays transplantation. The challenge is that her lungs don’t get to take a time out and the disease continues to progress making it more difficult to breathe. Carol has been doing her best to build up her strength. Anything she can do to get stronger now will help with recovery later. Carol has been a trooper and so far she’s in good spirits taking it one day at a time.

Thank you again for all your prayers and support!

Photo Galleries (2)

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October 16, 2021

Carol, Prayers from a fellow IPF lung transplant recipient. Love, Joshua and Laura Sarchet

Joshua and Laura Sarchet

August 27, 2021

Carol, thinking about you and sending prayers your way for successful surgery and quick recovery. Can't wait to see you back actively doing the things you love to do with good friends and family! Many fond memories of dinner parties, line dancing, camping and canoeing Here's to your brand new breathing apparatus for lots of new adventures! Hugs and much love, Carol Kruse

Carol Kruse

May 29, 2021

Carol is in my prayers. Here's hoping the wait is short.

Janet McCoy

May 18, 2021

Best wishes for a successful procedure and recovery!

Abby Miller