At 4 months old, Josie was diagnosed with a condition called Pachygyria. This condition caused her to have frequent seizures known as infantile spasms. After months of uncontrollable seizures and spending a countless amount of time and money on medication and hospital visits, her condition finally stabilized.
As a result of her diagnosis, Josie has and will continue to experience cognitive, physical and developmental challenges as well as the possibility of seizures occurring at any time. As to be expected, the financial burden of meeting Josie’s needs is great.
While insurance does help cover some of the cost, there is still quite a bit that is not covered; a wheelchair accessible vehicle being one of them. An accessible van will relieve the burden and difficulty of transporting Josie to and from school, therapies and for other everyday needs.
Josie and her family have chosen to seek support from family, friends and community through Help Hope Live toward the cost of purchasing a wheelchair accessible van. Please consider helping her and her family reach their goal in order to provide this need for Josie!
Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you so much for your support!
For more information about Pachygyria
https://rarediseases.info.nih.gov/diseases/7300/pachygyria/cases/24499#2483
