Hi! My name is Ashley and I am a mother of an extraordinary, beautiful, and loving little girl named Anastasia Rose. Since Anastasia was growing in my belly, things have not been easy.
In utero, we knew that Anastasia limbs were growing extremely small and behind, she had suffered from brain bleeds and fluid on her brain, she had a six polydactyl toe on her left and was having issues swallowing. Due to these serious complications, Anastasia was monitored very closely at Children’s Hospital of Philadelphia where she was delivered May 1, 2018. Anastasia spent 127 days in the NICU where she under went many procedures. In the hospital, she had breathing issues, surgeries for a G – tube for feeding and nutrition purposes, intestinal malrotation and tethered cord spinal cord surgery. Through all of Anastasia’s challenges she always stayed strong and has held such an admirable tolerance for pain.
June 20, 2023
Hello everyone it has been a while since I wrote up a post so I apologize. Ana continues to make progression in her own time :) Inch stones are our mile stones! I did want to mention she has undergone some procedures and surgeries in the last month but we are now preparing for her biggest yet. Ana's scoliosis curve has gotten really bad. The goal was to hopefully wait for surgery until 7, but her orthopedic surgeon needs to operate on her now on August 22, 2023. The surgery will be placing rods in her back that will connect to her ribs and spine to hopefully "straighten" her curve out. She will have magnetic growth plates that will "grow" with her for the next few years. Surgery will take around 5-7 hours. As you can imagine she will be hospitalized for a while and then need time for recovery and therapy to continue her progress. I am wishfully hoping that in time this will help our little Ana walk unassisted and stand alone! More to come and we will keep you all posted :)
Thank you for your love and kindness!!
June 3, 2021
Go Flyers Go!
Photo Galleries (1)
July 10, 2023
So sorry, I did not add my donation correctly when I cashed out at the Westville Brewery fundraiser.
July 10, 2023
Sorry we couldn’t make the Brewery gig last Friday. John and Cindy had invited us and we wanted to come out and support. Good luck and God bless.
July 8, 2023
Thank you for a great night at Westville Brewery!