My name is Megan Schliesman, I am 28 years old, and I was recently diagnosed with Nephronopthisis, a recessive genetic kidney disorder that causes my kidneys to fail.

When I first felt sick, the doctors told me that it was a urinary tract infection or a kidney infection. At first, I didn’t think much of it, I was also reluctant to see physicians because I was uninsured. I followed the doctor’s orders and then went back to work, but I continued to feel sick. Finally, a doctor listened to my symptoms and ordered blood work; they found that my potassium was so low I could have a stroke and my creatinine was also at a concerningly low level. Once I had bloodwork done and a doctor interpreted it, they realized there was a larger problem at play. I was rushed to the hospital in Sioux Falls where I spent twelve days and nights while doctors worked to figure out what was wrong and why I was so sick. Once I was diagnosed, I had surgery to have a catheter inserted into my peritoneal cavity so I could start dialysis immediately.

I do twelve hours on the cycler machine every night. My kidneys are at ten percent functioning and I in need a transplant. A transplant will give me my life back, I have been unable to work or live a normal life since being diagnosed and started treatment. The extent that this diagnosis and disease has affected my life is immeasurable; I can’t travel to Anime or Tattoo conventions, I cant work normal hours, and I have been relegated to resting in my room for the majority of the day.

While I am now insured, all the medical costs won’t be covered. After I get a transplant, I will have to stay for an extended period at the hospital, about four to six weeks. During that time, they will start me on immunosuppressants which are vital to my recovery and life. These drugs can cost thousands a month. Insurance does not cover the costs of my immunosuppressants, the extended hospital stays, and any other treatments that I will need. Donations will help me with the financial burden of a transplant. If I can get the finances in line, I will be able to focus on my health, life, and new kidney, all things that have been taken away from me in the recent past. With your help I can start to live the life I love again.