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He has been making amazing progress increasing his endurance and strength! His physical therapist and I were brainstorming on next steps to continue to increase his balance to allow him more and more independence since his reconstructive surgery for his lower extremities in May 2021. This surgery, in the best non-medical terms I can translate he got his femurs shortened, relocated his patella’s, got screws to realign his tibia and ankles and this was done to BOTH legs.
The solution we came up with based on his current needs and skills is to obtain a mobility trained service dog! If you know Tyler at all, he LOVES dogs! He’s been the driving force in adopting 2 senior dogs, George and now Nana.
We are working with Project C.H.A.N.C.E for the mobility service dog. Their program has been in operation for many years and have bred and will train Tyler’s service dog. We were lucky to be a part of this litter that was born in March! Waiting lists for service dogs can be YEARS long. Tyler has named the puppy Mickey (after his favorite Mouse!)
Mickey’s training will begin when he is approximately 5-6 months old and it will be about a year process. In the mean time we practice with Theo, another mobility service dog with Project C.H.A.N.C.E.
We are asking for any support with the funding of this endeavor. Normally service dogs can cost upwards of $25,000 and NONE of that is covered by insurance. Thankfully, Project C.H.A.N.C.E is a 501c3 and are able to partly cover boarding and training from their donors. This still leave us with a $14,000 balance to cover.
We are working on securing grants and paying out of pocket currently, but I’m humbly asking for donations to help defer the costs.
We truly, truly appreciate the support and love from the bike drive, and hope you can help again.
Lots of Love,
Tyler and Caitlin Powderly
Tyler’s History: Tyler came to me from foster care at age 13 and was adopted in August of 2019. He went through YEARS of neglect both in foster care and before that with his biological family. When I first met Tyler he was in a stroller and would only crawl on his knees. I made it my priority to get him the therapy and care that he deserves and frankly is entitled to! In the first year that he was with me, he moved to a wheelchair, then a walker and finally being able to ambulate on his own within the house and short distances. This recent surgery will be beneficial in his ability to walk with more stability although it will be a long road to recovery.
Tyler has a diagnosis of CTNNB1, which is a rare genetic disorder. It replicates cerebral palsy and autism. He is non-verbal but communicates with a device and signs and one of the brightest and most determined young men you will meet! He loves to read, play music, and his laugh is infections!
Thank you for your support!
Hi Friends! We have some huge news and wanted to share. A service dog for Tyler has been identified. We are working with Project C.H.A.N.C.E based in Fernandina Beach, FL for a golden retriever that will be trained to support him with his mobility, balance, counter balance and bracing. This is going to be a HUGE step forward for his independence. While he is still using his gait trainer in school and for any shorter distances, and his wheelchair for the longer days (like Disney days!). A mobility service dog will replace the gait trainer/walker so he can continue to build his confidence and strength!
Of course, his insurance and actually no insurance covers a service dog. So we are again asking for help from our amazing village!
The total cost of the dog, training, and boarding is $14,000.
We have applied for grants and paying out of pocket, but we are asking for any support you may be able to give!
“Project Chance is a 501(c)3 Non-Profit Organization based out of Fernandina Beach, Florida. We have a highly competent training program with a customized behavioral treatment plan.
Our service dogs assist individual children to help them achieve maximum potential and independence in executing therapeutic, social, and physical tasks throughout their lives. We also provide therapy dogs in clinical and academic settings”
Hey everyone! So Special Books by Special Kids came to visit us and tell Tyler's story! Here's the link if you're interested in watching!
Tyler came to me from foster care at age 13 and was adopted in August of 2019. He went through YEARS of neglect both in foster care and before that with his biological family. When I first met Tyler he was in a stroller and would only crawl on his knees. I made it my priority to get him the therapy and care that he deserves and frankly is entitled to! In the first year that he was with me, he moved to a wheelchair, then a walker and finally being able to ambulate on his own within the house and short distances. This recent surgery will be beneficial in his ability to walk with more stability although it will be a long road to recovery.
Tyler has a diagnosis of CTNNB1, which is a rare genetic disorder. It replicates cerebral palsy and autism. He is non-verbal but communicates with a device and signs and one of the brightest and most determined young men you will meet! He loves to read, play music, and his laugh is infections!
Tyler, recently underwent surgery for his lower extremities. In the best non-medical terms I can translate he got his femurs shortened, relocated his patellas, got screws to realign his tibia and ankles and this was done to BOTH legs!
Tyler came to me from foster care at age 13 and was adopted in August of 2019. He went through YEARS of neglect both in foster care and before that with his biological family. When I first met Tyler he was in a stroller and would only crawl on his knees. I made it my priority to get him the therapy and care that he deserves and frankly is entitled to! In the first year that he was with me, he moved to a wheelchair, then a walker and finally being able to ambulate on his own within the house and short distances. This recent surgery will be beneficial in his ability to walk with more stability although it will be a long road to recovery.
Tyler has a diagnosis of CTNNB1, which is a rare genetic disorder. It replicates cerebral palsy and autism. He is non-verbal but communicates with a device and signs and one of the brightest and most determined young men you will meet! He loves to read, play music, and his laugh is infections!
We are looking for donations to fund an adaptive tandem tricycle from Freedom Concepts. Thus far we have raised $2,000 of a $7,000 goal.
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Go Tyler GO!
Carah Gallerano
Wishing you guys all the best from Oz. Keep smashing goals! x
Elaine Mitchell
Go Tyler! Can’t wait for you to get Mickey!
Megan Stanton
Please give to help this wonderful boy get a loving service dog!
Elisabeth LeBrun
I was scrolling the web and I came across this page. My name is Tyler Powderly, and I was immediately intrigued by the story of someone with the same exact name. Tyler’s story is so inspiring. I wish him the best of luck in his journey. Tyler Powderly Strong!
Tyler Powderly
Tyler sounds like an amazing kid, and YOU are an extraordinary mom.
Lisa Wolfe
Here’s hoping you go over the top soon.
Sandra Bogdanovich
Go fast, you two!
Liz Campbell
I hope you reach the goal soon! It looks like it will be great for Tyler in every way!
Kathryn Durki
Love you, Caitlin and Tyler!
Sabrena Snow
You rock, Tyler!! Can’t wait to see you burn out on your new set of wheels!
Elizabeth Worrell
You rock Tyler, I am so thankful I get to know you and your momma and cannot wait to see you soon!
Peyton Esparza
Go Fast Tyler!
Alicia Jackson
Go fast Tyler!! ❤️
Danielle Vinciguerra
Hope Tyler’s recovery is going well!
Molly Costable
One of the proudest days in our Journey has been when Little Tony rode his trike for the first time and could “go fast”!!!
Tony King
Good luck Caitlin and Tyler, I hope you meet your goal!!!
Angie Chapman
You two are incredible
Shannon Joseph
Tyler is capable and will achieve great accomplishments in his life!
Sarah Lively
You’re both an inspiration!!!
Allison Poole
Go get em, Tyler!
Carah Gallerano
Go Tyler!
Crystal Langone
Wishing you guys all the best x
Elaine Mitchell
Good luck!
Chrissy McLane
Caitlin and Tyler -You are beautiful and amazing-sending love
Karen Demuth
Let's get Tyler riding!
Anonymous
Go Tyler Go!
Megan Stanton
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Tyler Powderly
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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