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In December 2018, David was producing a show on the beach in the Bahamas with Damian Marley. He began coughing uncontrollably and ended up in the ER. While treating him, the doctor noticed the shape of David’s fingernails and asked if he knew he had a lung disease. Obviously this was a shocking statement! When he got home, he went to his doctor who said he had pulmonary fibrosis and needed a specialist. Fast forward 6 months and David was receiving a lung biopsy to confirm the diagnosis of Idiopathic Pulmonary Fibrosis.
Pulmonary fibrosis is a lung disease that occurs when lung tissue becomes damaged and scarred. This thickened, stiff tissue blocks the lungs’ ability to deliver oxygen to the blood making it difficult for your lungs to work properly. The more scarring, the more difficult to breathe. The scarring with pulmonary fibrosis can be caused by a multitude of factors. In most cases, doctors can’t pinpoint what’s causing the problem. When a cause can’t be found, the condition is termed idiopathic pulmonary fibrosis. The lung damage caused by pulmonary fibrosis can’t be repaired, but medications and therapies can help slow its progress while easing symptoms and improving quality of life. David was considered stable and in maintenance mode until January 2021 when he got COVID 19 and double pneumonia. This caused more scar tissue to form leading him to the need for a bilateral lung transplant.
David has recently completed the two-week evaluation to get on the lung transplant list. Once on the list, we will be “on call” waiting for an appropriate donor of both lungs. We will have to live in Jacksonville, FL close to Mayo Clinic for 4 months. All donations will be used for bills not covered by insurance, temporary housing for the 4 months we will be away from home and other out of pocket expenses associated with medications and post care.
Many have asked how they can help so we have chosen to fundraise through Help Hope Live. We have chosen this organization in part because they assure fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to David’s fundraising campaign, click on the Give button.
Thank you for your support!
I thought I had posted since David received his double lung transplant but I guess I never finished writing it!! We got THE call at 11:30 pm on April 10 from Mayo Clinic that they had lungs for David. Of course, we were in Freeport instead of Jacksonville when the call came! We drove all night to be at the hospital at 6:30 am. After 12 hours of tests and preparation, they deemed David suitable for the lungs. At 10 pm the surgeon called me and said they had received the lungs and it was a perfect match for him and they were beginning the surgery. I was kept updated through the night with messages from the operating room. The surgeon called me at 7:30 am to let me know they had finished. The first 2 weeks were nerve wrecking as David was sedated for 10 days. They had to leave his chest open for 5 days before closing because one of the lungs was a little large and also had to be put on the EKMO machine to strengthen it. One they closed him up, they ended up giving him a temporary tracheoscopy to get him off of the ventilator. Once he was awake, he started moving full steam ahead! Physical therapy began coming in right away and he began walking and breathing on his own without ANY OXYGEN! After 3 weeks in ICU, he was moved to the transplant floor. One week later he was walking laps around the floor and then dismissed from the hospital to our apartment in Jacksonville. Since May 8, we have been going back and forth to Mayo for follow up blood work, rehab, physical therapy, bronchoscopies, esophageal tests, multiple doctor appointments, etc. just about every day. I (Delaina) have been the caregiver to make sure ALL of his medicines are sorted and given on time as well as driving him every where and making sure he has the correct amount of food so the meds don't make him sick to his stomach. We are now on the other side!! We waited, prayed, trusted, prayed some more and had faith that this was the exact right thing to do for David's health. We got word yesterday that he is being released and we can start making plans to move back home! We still have to come back once a month for a while and then it will be less frequent. We are excited and grateful beyond measure for the selfless donor, Mayo Clinic and their excellence for making all of this experience possible. As the doctor said, "You are now in maintenance mode." If this is maintenance, we got this!! We are blessed to have so many wonderful friends and family who have contributed to our fundraising campaign (cuz this ain't cheap!) and who have kept us in their prayers. Thank you from the bottom of our hearts!
Last night was another adventure! David had an overnight sleep study on the campus at Mayo to see if he had sleep apnea. He wanted me to go with him since they allow the caregiver a place to sleep, too :) We met with the doctor a few hours later and learned that he does NOT have sleep apnea! Mayo is so thorough to cover all the bases in preparation for his lung transplant. We are so thankful to be going there.
We have relocated to Jacksonville now to be closer to Mayo Clinic. We moved into an apartment this last weekend. David has already started cardiopulmonary rehab therapy to get stronger before the transplant. We have been told to keep our phones on at all times for THE call that he has a donor. It's a bit nerve wracking because it could be today, tomorrow or in 6 months!! We are both working remotely and keeping in contact with our sons. Remembering this is a temporary situation gets us through each day. Thank you all for the donations and prayers! We appreciate it more than you know!
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Rejoicing with you!!!!! Prayers continue. Much love, Linda
Linda Montgomery
David, You're a Believer and a Winner! He will see you through this.
We love you and keeping you in our prayers.
Richard and Ginny
Richard Dostie
Dave so sorry to hear what you are going through - sending hope and love to you.
Donna Tine
I love you bro. I really do.
David Schultz
David, Keep the Faith and sending good energy your way.
Salli Frattini
Stay strong, Dave! I know you got this!
Jacquelyn French
Thinking of you so often Dave...sending lots of healthy thoughts and hugs...
jendowd
Jennifer Dowd
Praying!
Linda Montgomery
We love you Dave & Delaina.
Love,
Ken & Nicole Misterly
Ken and Nicole Misterly
Prayers for a successful surgery and healing.
Cindy Hancock
All the best on your full recovery David!
Michael Allegretto
Best of luck, David
Teresa Blanchet
You've got this Dave. And all if your friends will be there to help. ❤
Gayle DePoli
Get well Dave..
Adalberto Chavarria
Prayers for everything to go smoothly.
Nicki Ludwig
Dear, Papa) We hope that you are getting well! Sending you our love from Ukraine
Dasha Vadym
Dear Dave & Delaina,
We love you and hope this helps,
Ken, Nicole, Maggie & Duncan Misterly
Ken and Nicole Misterly
Praying and sending lots of love!!! Linda
Linda Montgomery
Many prayers coming❤
Kathy Law
Hey Sir,
So sorry to hear about what is going on in your life. You are a strong and optimistic person. Having spend a few years in some tricky show biz situations I know you have the strength and fortitude to over come this!
Take it easy.
Ax
Andrew Spencer Spencer
Send you all my Love
Neil Dorward
Neil Dorward
You are both in my prayers.
Tiffany Ingram
Praying for your family! Love you!
Sandi Wilson
Praying! More coming your way in a couple of weeks!
Linda Montgomery
I am praying for God’s healing hands all over David and for peace and comfort for you both.
Amanda Goldman
Praying for your peace and HIS provision over every small detail!
Tammy Jernigan
We from VRS- Brazil wish you the best!
Hugo Mercier
We love you! Our prayers are with you!
Lisa Rudd
Praying for God’s healing.
Terri Storter
There's no challenge you can't beat! You're got this Dave!
Tony Kremer
Anthony Kremer
keeping you and your family in our prayers. sending love and light!
kris balboa
Kristine Balboa Mathason
Im praying g for your healing and the doctors performing the surgery.
Cindy Hancock
Cindy Hancock
Please get better and stay safe!! Sending you love.
Diana And patrick Schmedeman
sending you so much love! you are a rock star and i miss you
lissette decos
Sending you lots of strength and love my friend!!!!!
Jose Tillan
Wishing and hoping for the best. Sending positive vibes your way my friend. Wish I could give more. Hoping the goal will be reached soon.
Krendle Krendl
Praying for you!!
Angela Rogers
Loads of love your way
Dizzy Partridge
Dave, there’s no way me and the guys could ever repay you for the life lessons and worldly experiences you gave to us early on in our careers. We love you & your family and will be here to help anyway we can, as many times as we need to. I’m going off walkie now.. cover me.
Pete Garcia
You got this Dave! ❤️ Much love from Long Beach California
Neil Belen
Our family is praying for you and your family.
With all our love,
Patrick & Rachel Jackson
Rachel Jackson
Love to our big daddy.
Angela Aaron
Life is our journey and that's why we need to always enjoy the ride! Dave is a true example of someone who's always been the best kind of traveler!
Jinger & Mark Kalin
Get well ole buddy and we will go boating.
Robert Frazer
Sending so much love and healing to you Dave...know how many of us are here sending you support....
lots of love and strength...
oxox
jendowd
Jennifer Dowd
Peggy and I love you and your precious family. We are always here for you!
Mike Cruce
Dave!
Sending you all the healing energy in the world your way! You are in my thoughts and prayers....
Big, big hug, love and light!
Audrey
Audrey Morrissey
Dear Dave
I have the best memories of you , always positive no matter what , fun and happy . Most of all you always looked out for your team which you treated as family.
Stay strong , you got this !!!
Sending you lots of love
Lisa
Lisavette Saylor
Dear David, sending you strong hope for a successful transplant and journey ahead. You are in my prayers and thoughts, Salli F.
Salli Frattini Hess
I am right behind you Dave, with my prayers, light, strength and love, always and forever!!!
Mandy Diaz
Sending best wishes. Speak soon.
Dave Burch
Love you Dave, stay positive and healthy always.
Shadow Holden
Sending prayers & good wishes for your health, David
Jo Kirwin
We need you karaoke strong for years to come!
Anonymous
Hi Dave - sending you love, support and positive vibes! Love ya man!
Paul Himmelfarb
David we are praying for you and we love you. God Bless you will recover fully. By HIS STRIPES YOU ARE HEALED! Love, Lisa and Robert Monoson
Lisa & Robert Monoson
Praying for you Dave! You got this!
Carlos Hernandez
You will get through this David!
Chantal Prudhomme
Wish you well. You are in our prayers.
Michelle Vancil
Love y’all!!!! Praying for you guys!!!!
Kelli Pressley
Make checks payable to:
Help Hope Live
Note in memo:
In honor of David B Simpson
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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