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My doctors have confirmed that my body will not survive much longer without an intestinal transplant. This means that I need a new small intestine. If the good Lord plans to leave me on this Earth a little longer, I’ll be getting the transplant at Cleveland Clinic in Ohio. There are only a few hospitals in the country who do this sort of transplant, and Cleveland Clinic is the best.
I’ve had to move to Ohio (leaving my home in Florida), where I’m renting an apartment at The Transplant House of Cleveland. My transplant team required me to be in Cleveland while I wait for a matching donor because we have found that, due to many blood transfusions over the last 6 years, I have multiple antibodies, one which is ever-changing and must be monitored and tested every 72 hours by the labs at the Cleveland Clinic so they can be prepared with matching units of blood that will be needed for my transplant surgery. These antibodies also make it difficult to find an exact matching donor, only 2-4% of them will match me. So unfortunately, it could be months, possibly years, before we find that perfect donor. However, I have faith that God will provide that match in His perfect timing.
Once we finally find my donor and I’ve had the surgery, I’ll be in the hospital for several weeks, then possibly a rehab facility, before I’m released to go back to my apartment at the Transplant House. I’ll stay there, most likely another 3-6 months. I must stay there to be close to the hospital where I’ll have follow up appointments several days a week until my team of doctors believe I’m past the probability of rejecting the new organ. They also require me to have a full time caregiver 24 hours a day for my safety.
I have been on Disability since my health took a drastic turn for the worst in 2015, and have been unable to work. So my finances are extremely limited. Needless to say, it’s going to cost 10’s of thousands of dollars to pay for my expenses while I’m in Cleveland. Housing, travel, daily needs, deductibles and other medical related expenses not covered by my insurance, including but not limited to pre-surgery treatments, after-care, rehab facility charges, caregiver salary, and ongoing anti-rejection drugs that I’ll be on for the rest of my life.
Family and friends, I’m asking that you help me raise the funds I need for these medical related expenses associated with my organ transplant. Donations can be made in my honor to the nonprofit, Help Hope Live. This 501C3 organization assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For those of you who have not followed my story all along, I’ll give you a summary as brief as possible. I was diagnosed with anal cancer in 2001. My doctors recommended extremely aggressive chemotherapy and radiation. The treatments worked and 10 months later, I was cancer free. However, over the next several years it became apparent that I was not healing from the radiation damage. It had severely burned the majority of my GI system, female organs, and more, causing many problems over the next 14 years.
In 2015, I found out it was even worse that I had thought. My scarred intestines had tightened and tangled over the years and had finally become completely obstructed, which took me into emergency surgery to remove portions of the colon and construct a colostomy. We had to repeat the procedure two months later when I had a second obstruction. My health got worse from there. I was getting sicker and sicker and my doctors couldn’t explain it and finally said there was nothing more they could do for me.
I found a doctor in Florida who agreed to take my case. So I left my home in Kansas City to relocate near my new doctor. I had a major surgery where he removed everything that was burned up from the radiation including a full hysterectomy, gallbladder, appendix, rectum, anus, colon, and a portion of the small intestine, then replaced the colostomy with an internal ostomy called a BCIR. After this surgery, I became even sicker. I lost so much weight, I was barely 80 pounds, withering away, and my kidneys and other organs started shutting down.
Finally I got to a doctor who realized my small intestine was so scarred from the radiation burns, that it was no longer able to absorb nutrients or hydration. I was slowly dying of malnutrition! The only solution was to put me on Total Parenteral Nutrition, TPN. I was hooked up to an IV to receive the TPN 24 hours a day for the last 5 years. It saved my life, but also took a toll on my body. It has been tearing up my liver and pancreas, causing constant infections, and wearing out my veins, among other complications. I’ve had nearly 20 surgeries in 6 years, months upon months in hospitals, and one treatment after another attempting to give me some sort of quality of life.
Now I’m to the point that my body has said, “Enough!”. For multiple reasons, the doctors have confirmed that I can not continue like this much longer and the only solution is a new small intestine. That is what brought me to the transplant team at Cleveland Clinic. I can’t survive without this transplant, and I can’t stay here and undergo the transplant without the funds to do so. So I pray that I’ll get the help I need to make this happen and finally, after 20+ years of suffering, regain a somewhat normal life again.
Thank you for your support and may God bless each and every one of you!
I want to take a moment to thank my designated care-givers and explain their role to all of you.
My mother, Kathy Merriott-Hamby, who has been my life source since the day my illness got out of control, will be with me for the 12+ hour transplant surgery. Seeing me into the O.R., then anxiously and nervously awaiting good news from the surgeons is nothing new to her. She's been my strength and biggest cheerleader for nearly 20 surgeries in 6 years' time. Thank you Wayne Hamby, my step-father "Pops" for letting me take your wife away once again and for your ongoing love and support from homebase! So Momma will take on this role once more and will stay for several weeks while I begin a long recovery in the hospital, initially in ICU, and possibly in a rehab facility before being approved for release to my own apartment in the Cleveland Transplant House just a few blocks from the clinic campus.
That is when she will return home and my son Zachary will take her place and move in with me in my apartment. The transplant team requires me to have a caregiver with me 24/7 until they see I am stable enough to be on my own. This time period could be a couple of months to as long as a year. It all depends on how well I do and if rejection becomes a problem. My beautiful daughter-in-love, Danielle Poole-Wallace will be with us part or all of that time, depending on how long it takes and what their jobs require. Luckily they both can work remotely so we're hoping this will work out well.
When they are ready to leave, my dear friend Amber Pennington, who is my sister in my eyes, has graciously agreed to step in and take over my care from there. I must also thank her amazing husband Baron Pennington for being onboard and in absolute support of her helping me. This will take her away from her family and home in Warsaw, Missouri for an unknown length of time.
My son, Cameron Wallace is unable to take extended leave from his work on the west coast. So he'll be flying in for short visits to relieve whoever is on duty at that time, and will continue to cheer me on from a distance.
I'm incredibly blessed to have additional back up caregivers who are willing to come and take a turn if needed down the road. So thank you JoJo Biggs, Cathy Favia, Beth Dooley, Mary Broski, Ronnie Creek. You all continue to amaze me with your love and support!
This is an enormous commitment, and I'm sure both a physical and emotional challenge, for all of these incredible people, and I can't begin to imagine how I can ever repay them. But know this, I love you all beyond measure and I know that God is blessing you as we speak. I can only hope that someday I can return the favor to you or others in need in some significant way.
To the rest of you reading this, please keep these very special souls in your prayers. I hope you all are as blessed with loved ones like these as I am!
With love and gratitude,
Kristie Dawn
Another THANK YOU to all of my donors and prayer warriors!!!
As I mentioned in my last update, my son Zachary and I will be traveling to Cleveland Clinic in a week for analysis and testing. Your donations are making this possible. Thanks to you, I'm able to pay for my flight (Zach is paying his own way as part of his support), my hotel, meals, medical specialist co-pays, and the $700 balance of my 20% co-insurance that will be due prior to a surgical procedure that will be done on that Wednesday. Without your help, none of this would be possible. But as you can see, the cost adds up so quickly! So your continued support will be appreciated so very much!!!
God bless you all!
Kristie
Things are moving along!!!
I've had multiple calls with my team in Cleveland in preparation of this crazy journey. Last week my son Zach, my number 1 caregiver, and my amazing friend and chosen sister Amber Pennington, my 2nd caregiver, and myself had a 2 1/2 hour video call with my transplant coordinator. She educated us on the entire process from beginning to end, the good, bad, and the ugly.
I'd be lying if I said I didn't shed a tear or two as the reality and graphic descriptions of what is to come hit me rather hard in many ways. The bittersweet consequence of my survival being dependent on another's demise, the difficulties of it all lining up in a perfect match, and the miracle of it all coming together successfully, and ultimately the way it will alter my life forever was emotionally overwhelming to say the least. But I am ready to move onward as a Christian soldier with faith that God will put myself and my future donor where we are "for such a time as this," Esther 4:14.
Zach and I will be going to Cleveland Clinic Transplant Center October 9-16th to meet my transplant team, undergo many additional tests and analysis, and further education. Before we leave, we will all know exactly what organs need to be transplanted, what antibodies I have that could make finding a matching donor more complicated (due to the many blood transfusions I have had over the last 6 years), any cardiac and vascular issues that will require special attention, and a transplant and treatment plan will be in place. It will then be submitted to the Hospital Transplant Board for their approval, which will take a few days. Upon that approval, it will be sent to the Ohio Solid Organ Transplantation Consortium for their review and recommendation. They have 5 business days to approve or deny my request. Once they say yes, we run it through my insurance, who has already approved all the pre-surgery analysis, so it is most likely they will approve it with no issues. Then I could be placed on the list as early as mid November! It's already been determined that I will take priority over many already on the list due to my advanced condition, broken down veins, constant infections, and the fact that I've already been on TPN for over 5 years and every day it is damaging my organs more an more.
So Please keep me and my team, and all those selfless donors out there in your prayers that this continues to move along at God's speed. Thank you!
Love and Blessings,
Kristie
THANK YOU, THANK YOU, THANK YOU to all who have donated already!!! Cleveland Clinic has required me to see several specialty doctors and run multiple tests over the last few weeks and continuing this week. They need to be certain that I don't have any cancer that I'm unaware of and that I have nothing that could possibly cause an infection, which in turn would prevent me from receiving a viable organ before surgery, and could cause rejection or death after surgery. So I've had 4 biopsies, which have all come back benign, I'm waiting on the results from my gynecological exam, and will have PET scan and Dexa bone density test this week. I saw my dentist, who confirmed no gum disease or cancer, but after 21 times of receiving anesthesia over the past 6 years, many treatment and maintenance drugs, and the malnutrition that I suffer from, has reeked havoc on my teeth. So Cleveland Clinic is requiring me to have all that dental work done before they will approve me to be added to the transplant list. That will be approximately $5,000 worth of work, plus $50 co-pays for every specialist I have seen, totaling $300. So thanks to all of you, I've been able to take care of these requirements. So I thank you from the bottom of my heart!!! Once again, I have been so humbled by the support you all have given. Unfortunately, this has already depleted my fund A LOT! So I ask that you continue to do all you can to help. God bless you all!!! With love and gratitude, Kristie
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Hi Christie this Guy Harleman I hope your doing fine.I know we haven\'t talked in a long time but I still think about you and your family well take care and I will pray for
Guy v Harleman
Love you Kristie!
Elizabeth Miller-Dooley
Prayers heading your way from your Texas gals Kristie! Donna Poole is keeping us informed and we are keeping you and your awesome caregiving team covered in prayer. Holy Spirit, shower Kristie’s body, mind and spirit with your comfort, hope and healing. Strengthen her body to welcome and celebrate her transplant. Open her heart to receive your abundant love and grace. Thank you Lord that your thoughts and ways are higher than ours and you have great plans for Kristie. Jesus we trust in you.
Rachelle Dooley
I pray for your miracle and know that God is listening. I'm a longtime pen friend of your Aunt Pam. I will continue to pray for your healing. I hope you will have a good Christmas,
Patti Airel
Prayers for you on your journey. Strength for healing.
Erin O’Dwyer
Kristie, Sending you much love. It's been a long time since I've seen you from our high school days with Dorie in KS but thinking about you and your beautiful smile!
Love and hugs, Amy Hogan West
Amy West
God Bless Kristie as she goes through the transplant process. It’s not easy! Praying for you everyday
Tara Barker
Best wishes for a speedy recovery! We will be keeping you in our thoughts and prayers. Allison and Scott Griffin
Allison Griffin
Kristie, we’re praying for you and your recovery. You’re friends from Texas,
Thomas & Mellonee Swonke
Mellonee & Thomas Swonke
Get well. We are praying for you!
Love Ron and Carol
Carol Poole
Our love and prayers are with your always
Mark,Pam, Quinn and Samantha Poole
Mark and Pamela Poole
Praying for that donor match soon!!! Praying for you Kristie. So happy you are at Cleveland Clinic and approved for the transplant!!!
Donna Poole
Our thoughts and prayers are with you and hope your health journey results in a complete recovery. Our love, Rita, Russell, Cameron and Gavin
Rita Poole
I heard your story from our mutual friend, Sabrina. Wishing you physical and mental wellness
Cassidy Heiss
Sending our love & prayers.
Dane & Pam Baker
Kristie you are close in our hearts and prayers. You have had a difficult journey but always remember you have an army of people who love you dearly and supporting you. May God bless you always is our prayer! Love you friend, Ed and Jo
Fredenberg Ed and Johanna
Kristie, God continue to be with you as you continue your health journey. I am and will be praying for you.
Alexa Ray
Love you precious cousin
Rob Parker
Hope this helps
Jack Merriott
KRISTIE, WE ARE PRAYING FOR YOU. ALTHOUGH YOU DON'T PERSONALLY KNOW US, JUST KNOW YOUR FIGHT IS INSPIRING WHEN WE SEE YOU ALWAYS SMILING.
RICH & ERIN
Rich and Erin Fraser
Kristie I pray for you everyday & have you on our prayer list at church. You are one of the strongest person I know. I love you & would love to see you agin, God Bless
wanda merriott
Kristie,
You are truly one of the strongest women I know, and you have been in our prayers constantly as you have fought your battle. Your strength, grace and the love from so many will bring you and your family comfort, support and successful results as you continue your journey. You're in our hearts!
Love,
Karen and Larry Dierks
Karen & Larry Dierks
Continued prayers and best of luck
Connie Swafford
Prayers for you and your family hun.
Jana White
Prayer for healing and strength on this journey strong girl!
Lindsay ONeill
We love you! Jim and Kathy Austin
Kathy Austin
Our love, hope and prayers are with you and your family. You are such a beautiful person inside and out, we hope your prayers are answered and you will be able to regain your health and true happiness.
Mary and Gary
love you so much ❤️❤️❤️❤️
Robert Parker
God Bless you! ❤️
Leah Bromley
Sending love, hope, best wishes, and positive thoughts to you! Love Julie
Julie Smith
Sending lots of prayers for strength and healing and peace ❤
Donna Conaway
Sending love, hugs And countless prayers to you! Love, Theresa & Family
Theresa Russo Steiner
We love you, Kristie
Nancy & Mark Arbuckle
Thinking of you every day Kristie ❤️
Rebecca Cooney
God Bless Kristie❤️
Cyndi Reid
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Kristie Goza Wallace
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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