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Welcome to E’s fundraising page! Friends and family of E’s are raising money to fund a wheelchair-assessible van to transport him to and from his many appointments easily and most importantly- safely.

E is a happy three-year-old living in a small town in Michigan. In February 2021, E was diagnosed with a rare genetic illness, KIF1A Associated Neurological Disorder (KAND): KIF1A.org. KAND affects E’s ability to walk and talk, as well as his overall development. Because of this, he uses a walker and leg braces or a stroller to move. A safe, accessible van will allow him to stay in his stroller (and possible wheelchair in the future) instead of being lifted in/out of a car seat for appointments and trips.

Updates (6)

October 13, 2021

Yesterday, E had his very first field trip! Bussing was not supplied so I drove to the local cider mill/apple orchard. I wish I had some great story to tell about how it was an amazing trip and I’ll forever look fondly on it. Unfortunately, that’s only partly the case. Being outside with natural terrain, it was necessary to bring his medical stroller. I appreciate it because it keeps him safe, however, I curse it every time I deadlift into the back of our Equinox. The internet says it only weighs 44 lbs but it feels like WAY more.
But, we made it to the orchard and I was able to push him around throughout the venue. We picked pumpkins and apples and naturally ate cider and donuts. It was a beautiful day and overall an experience I know so many parents pray for.
We are SO excited for our first in-person fundraiser this Sunday, 10/17! Yoga with Goats only has 16 tickets left and we hope to see a packed field on the forecasted sunny day. We are working to have some more in-person events before the end of the year so keep checking back for announcements.
Finally, a moment of gratitude. I check our page daily, multiple times, and every time I see our thermometer climb my heart soars. This adventure, for me, started as a means to be able to drive E safely to his appointments but has become window into the hard realities families like ours face. I know in my heart that many amazing things are coming, beyond the van, and I am so grateful for the opportunities I don’t yet know about- all because of your attention and support. So thank you, Reader, for choosing to peer into our lives, learning about our world, and supporting us throughout our journey.

Do Good. Be Well.
K

October 6, 2021

Another week and some more wins! We continue to see support from our local community (and beyond). I can’t explain how unreal it is to check our fundraising thermometer and see it continually grow. This week we were reminded how frustrating it is to stand in the rain while waiting for the school bus and how we will cherish sitting inside the van, warm and dry.
We’re gearing up for our first in-person fundraiser, Yoga With Goats! Of course we’re a bit nervous but looking forward to seeing everyone safely. Have you ever done goat yoga? I haven’t. It will be an adventure for sure! If you haven’t grabbed your tickets yet, click the link under “Fundraisers” to get more information. Tickets are limited!
Have you wondered what goes into modifying a van to make it wheelchair accessible? Check out this video from BraunAbility (one of the leaders in modifications)! I’m a visual person and really appreciate the graphics to better understand it all.

Do Good. Be Well.
-K

Photo Galleries (3)

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Guestbook

October 22, 2021

Ethan, may God bless you and your family!

Lisa Nelson

October 22, 2021

Praying for you buddy!

Stephanie Lamb

October 22, 2021

Can’t wait to see Ethan on his new wheels!

Andrea Thompson

October 17, 2021

Goat yoga fundraiser donation ♥️

Nicole Paige ( the goat yoga)