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THESE GIRLS NEED YOUR HELP!!!
In April 2021, my daughters Cadence and Adaline were diagnosed with a rare genetic disorder known as MSTO-1 related disorder. Because of this disorder the girls are not crawling or walking. They are both receiving therapy and there is hope they will eventually walk normally! But in the meantime, I am a very busy mother of five children (Auddie age 9, Cadence 6, Adaline 5, Ariel 4, and Gavon 2).
Thanks to the WONDERFUL individuals who have donated thus far, I have been able to purchase our new van! And now we are on to phase two of our fundraising:
Your donations will go towards a necessary bathroom and living room renovations to make our house more accessible for the girls, as well as purchasing the proper exercise and playground equipment Cadence and Adaline need. The equipment will help to strengthen their muscles which will encourage and enable them to walk sooner. The playground and its surfacing (rubber tile or fake grass) will make it easier for them to play outside. After all, no one likes to scoot on their bottom in the dirt!
Cadence and Adaline are happy, joyful girls even though they are not able to run around and play with other children their age. They laugh, tease and have fun all the time; they are especially happy when their siblings play with them. Everyone that meets Cadence and Adaline adores them because they are smiling, loving children. Your gift of any amount will help these two beautiful girls become independently mobile and have as close to a normal life as they can get!
Thank you for giving!
We are raising money for the nonprofit Help Hope in honor of Cadence and Adaline Knight to fund uninsured medical expenses associated with Catastrophic Illness.
We chose to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Here is the latest update for Cadence and Adaline:They are LOVING school and becoming more and more active! Recently, I inquired about them joining the dance program with their sister Ariel. The instructor was ALL FOR IT! We are finding ways to incorporate them into the dances but also need to keep them safe. One of the ways we can do that is by using an Upsee by Firefly. It is an upright activity, mobility harness that allows the girls to be connected to an adults legs/ankles and walk. If they have this harness, an instructor could do the dances WITH them!There’s also the Huckleberry Cascade Tandem Hiking Cart, which would give them the freedom to go outside and even HIKE with an adult! It fits to the adult just like a hiking backpack and supports up to 150 pounds! Meaning it is a LONG TERM INVESTMENT!! All donations are such blessings to these girls and help give them opportunities they deserve to experience, just like every other child. Please share the link to this page so these gorgeous girls can have the adventures they deserve!
I've done a lot of praying and thinking over the last few months about what comes NEXT for us. We completed our first major task which was getting the wheelchair accessible van (yay!). But what is the next priority? And the next? So I've broken it down into phases that I'd like to share with everyone:
Phase 1: Van - COMPLETE
Phase 2: Home renovations - these will start with installing a handicap ramp at the main door, then moving into the bathroom to make it easier for the girls to get in and out of the bathroom, bathtub, and on/off the toilet. Followed by making the living/kitchen/dining area all OPEN concept to make getting through the house that much easier for the girls.
Phase 3: Mobility Service dog(s) - a mobility service dog would allow the girls to have more independence in the home and outside. Mobility service dogs can do a variety of things! Including bracing to help the child stand, retrieving objects that have fallen while they're in their wheelchairs, opening doors, and so much more! This is also an extra level of protection for the girls when in public places. I will not get a dog unless I know that we can give it the BEST care it deserves (vet visits, regular exercise, grooming, continued training, etc).
We have started a new season and I am very excited for what the future holds for these two! They started hippotherapy with a woman who is local to us and she has blessed us with an amazing opportunity! We start out with a grooming session for Skippy (the horse), then slowly get ON his back. They got in the saddle for the first time last week and surprised us all by loving it so much! I am so excited to see how this helps their balance and core strength as time goes on!
This message is specifically for your ANONYMOUS donors!!
Thank you so much for you wonderful donations and your hearts for our family! We are slowly getting closer to our goal and couldn't be more excited! We pray that y'all have a wonderful day/week/month/year!!!
Happy New Year everyone! Yes, I realize we're well past the new year but it's been BUSY! The family went to Mississippi to see the Knight side for Thanksgiving and we saw A LOT of family we hadn't seen in a couple years. It was wonderful and the kids were spoiled rotten (haha!). Christmas was a bit of a doozy. We enjoyed Christmas eve with the Faulkner side but when Christmas Day came around, Daddy caught some sort of flu bug. Couple days later, Momma caught it too...then one by one, the kids all had a one day fever and just feeling yucky. Thankfully, after about 10 days, we were ALL better!
Since then, Auddie and Cadence are back to school, Adaline is starting to communicate SO MUCH MORE than last year! I'm so excited for her to start school next year because I know with the extra help she is going to THRIVE! Ariel started walking...and climbing...and hasn't stopped. But we are enjoying the new adventure!
Thank y'all so much for all your wonderful donations and prayers! We are still working on getting a big community fundraiser together but hope to get one in the books soon! Praying for blessings and health to each of you!
Hello everyone! I hope you all are looking forward to Thanksgiving as much as we are! We are so thankful for all the love and support we have received so far and couldn't be more blessed! Cadence and Adaline are doing great with their therapy! I've added a picture of Cadence that her teacher sent me from school. Adaline got a new "toy", aka gait trainer. She was a little skeptical at first but is now attempting to run over her sisters, HA! We are looking forward to spending time with family and having fellowship with those we haven't seen in a while. We pray that y'all have a safe and WONDERFUL holiday!
Hey everyone! A lot of people have asked me in the past what type of van we are looking for or have sent me links to ones they’ve found. I’ve included a picture of the inside layout that we are looking for. What we need is a 15 passenger van with TWO wheelchair tie down attachments.
Now here’s why:
Right now, all of our kiddos are still in car seats or booster. Going to and from church, friends house, or the store, Cadence and Adaline will be able to sit in their wheelchairs and be lifted in/out of the van via hydraulic lift. However, going to and from a big trip like Lolly and Pop’s house, they will need to be in their car seats. A smaller mini van unfortunately does not have the space to meet this need. So we are going BIG! Please keep sharing our story so we can get closer to our goal!
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Prayers for you that our Heavenly Father will surround you with wisdom and strength as you raise these adorable children. I hope this helps a little.
Susan and Tony Jaeger
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Sandra Aldridge
We love you all!!! ❤️
Uncle Mark and Aunt Patti Flitton
May God continue to bless your beautiful family and may a van become available sooner than later.
Mary Franks
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Cadence & Adaline Knight
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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