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THESE GIRLS NEED YOUR HELP!!!

In April 2021, my daughters Cadence and Adaline were diagnosed with a rare genetic disorder known as MSTO-1 related disorder. Because of this disorder the girls are not crawling or walking. They are both receiving therapy and there is hope they will eventually walk normally! But in the meantime, I am a very busy mother of five children (Auddie age 8, Cadence 5, Adaline 4, Ariel 2, and Gavon 1).

Updates (6)

July 7, 2023

I've done a lot of praying and thinking over the last few months about what comes NEXT for us. We completed our first major task which was getting the wheelchair accessible van (yay!). But what is the next priority? And the next? So I've broken it down into phases that I'd like to share with everyone:

Phase 1: Van - COMPLETE

Phase 2: Home renovations - these will start with installing a handicap ramp at the main door, then moving into the bathroom to make it easier for the girls to get in and out of the bathroom, bathtub, and on/off the toilet. Followed by making the living/kitchen/dining area all OPEN concept to make getting through the house that much easier for the girls.

Phase 3: Mobility Service dog(s) - a mobility service dog would allow the girls to have more independence in the home and outside. Mobility service dogs can do a variety of things! Including bracing to help the child stand, retrieving objects that have fallen while they're in their wheelchairs, opening doors, and so much more! This is also an extra level of protection for the girls when in public places. I will not get a dog unless I know that we can give it the BEST care it deserves (vet visits, regular exercise, grooming, continued training, etc).

July 7, 2023

We have started a new season and I am very excited for what the future holds for these two! They started hippotherapy with a woman who is local to us and she has blessed us with an amazing opportunity! We start out with a grooming session for Skippy (the horse), then slowly get ON his back. They got in the saddle for the first time last week and surprised us all by loving it so much! I am so excited to see how this helps their balance and core strength as time goes on!

Photo Galleries (5)

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Guestbook

July 11, 2023

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Sandra Aldridge

November 6, 2021

We love you all!!! ❤️

Uncle Mark and Aunt Patti Flitton

October 14, 2021

May God continue to bless your beautiful family and may a van become available sooner than later.

Mary Franks