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In April 2021, our daughters Cadence and Adaline were diagnosed with a rare genetic disorder known as MSTO-1 related disorder. Because of this disorder the girls are not crawling or walking even though Cadence is three and Adaline is two years old. They are both receiving therapy and there is hope they will eventually walk and talk normally! But in the meantime I am a very busy mother of four children. Our oldest is six and is in first grade, our youngest is 11-months and neither one of them inherited this genetic issue; only our middle two daughters. Perhaps the biggest challenge I face is going to the grocery store or any family outing:
All the girls must be carried and buckled into their car seats one by one, followed by whatever “luggage” I may have to bring along (diaper bag, snacks, blankets, cups, etc). It takes a lot of mommy muscle, but thankfully we’ve been able to manage it! I am blessed that my six year old loves helping me do all this when he’s not in school!

Updates (1)

October 16, 2021

Hey everyone! A lot of people have asked me in the past what type of van we are looking for or have sent me links to ones they’ve found. I’ve included a picture of the inside layout that we are looking for. What we need is a 15 passenger van with TWO wheelchair tie down attachments.
Now here’s why:
Right now, all of our kiddos are still in car seats or booster. Going to and from church, friends house, or the store, Cadence and Adaline will be able to sit in their wheelchairs and be lifted in/out of the van via hydraulic lift. However, going to and from a big trip like Lolly and Pop’s house, they will need to be in their car seats. A smaller mini van unfortunately does not have the space to meet this need. So we are going BIG! Please keep sharing our story so we can get closer to our goal!

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October 14, 2021

May God continue to bless your beautiful family and may a van become available sooner than later.

Mary Franks