MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
It is heartbreaking to watch loved ones suffer, to lose the ability to work, and enjoy family activities. To be able to do simple tasks that we all take for granted like walking up stairs to get a drink of water, or to be able to do things for your family such as the laundry or mowing the lawn. Unfortunately, my family is doing just that and I’m sharing our story of my husband and our oldest child in hope to raise money for a heart transplant and medical expenses for my husband Andrew and the future transplant and medical expenses for our daughter Amber.
Our story began in early 2020, my husband Andrew at the time was 44 years old, and was told he had the heart of an 80 year old man He was diagnosed with a very rare inherited gene mutation (lamin a/c) that is causing many medical issues, but the most serious issue is the damage that is happening to his heart. He has heart failure with mid-range ejection fraction, in simple terms, the left side of his heart is getting stiff and cannot pump his blood. There is no cure, no medication to help with this. His only option is a heart transplant. This is a very expensive lifesaving procedure, about 1 million dollars to start with, then all of the lifetime medications that can cost up to $5,000 a month.
He wants to live to see his 4 children grow up, to see their life choices, to see them married, to be a grandpa, to enjoy growing old with his wife, to enjoy the little things again.
Being an inherited gene mutation, all our children had a 50/50 chance of having this. All had to have DNA testing to see if they did have it, and Amber (age 25) our oldest inherited it. She is already experiencing medical issues caused from the mutation. She is also in heart failure and recently had a dual chamber ICD (pacemaker/defibrillator) implanted. We do not know how long before she will also need a heart transplant, but it is in her future.
It is not easy just starting out in life, to have these huge life-threatening medical issues. The medical costs and all the limitations on simple daily activities. I am hoping to help ease the stress of the cost, so she can focus on her health and getting the best care possible and to be ready for a transplant when the time comes.
Andrew and Amber both want to be free from the stress and pain that comes with heart failure and looming heart transplants, but these are not problems that you can hide from. They need to face them head on with strength and support.
Our family would be forever grateful for any support you can provide. To help with these lifesaving medical costs and help my family to face this burden head on. Thank you – Jaime
Andrew and Amber has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Our journey continues, we are onto our next chapter of waiting a heart transplant. As of June 12 Andrew has been admitted into the hospital until he has a much needed transplant.
Amber will be having her year follow up/testing to see where her heart function is. We are hoping she is still a live the transplant numbers and has more time before she walks that path.
Unfortunately he is a harder match so it could take from 2-3 months is the educated guess on time time.
Hello everyone out there….
My name is Andrew. I have been told to start blogging about my feelings on this “heart transplant” journey, but the problem is: I hate everything about this little adventure, and I suck at writing. However, everyone is asking what is going through my head, so I am going to stumble and muddle my way through this.
I feel like a mutant with all the medical drama myself and my daughter Amber are facing. But then again, I am in good hands while being a mutant. The X-men and the Ninja turtles are all mutants, so the company is ok. During the next few months, or even years, I will keep everyone updated on how it is going: the highs, the lows, and everything in between. The doctors have all stressed over and over that this will be a long process, I may be on the transplant list for years. I guess this is an invite to follow me on my journey, for all that entails. I can promise it will be a long journey, without breaks, or a map, or even a destination known. So come ride shotgun with me.
Loading Images
Thinking about you all ❤️❤️
Mary Mack
Sending lots of love!
Liz Olson
I wish your family the best possible outcome! Love and prayers to you all! ❤
Merry Christmas!
Stephenie Echols
I hope this helps and your family are in my prayers
Melinda Marshall
I love you! ❤
Buffie Cole
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Andrew and Amber Reynolds
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment