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For the 13 years my mom has spent battling her condition she has never let it define or hold her back. She raised 2 children as a single mother & worked hard to provide for us. With every passing year her condition worsened & she never let those around her know it. Those difficult years brought along many struggles & many blessings. She met her husband Rolando (Tito) who loves & annoys her, he is now her full-time caretaker. She also has 2 beautiful grandbabies who absolutely adore her.
Today, her strength isn’t enough to maintain the quality of life she fought so hard for when her disease first took hold. She’s on oxygen 24/7 & even a slight cold could worsen her condition to the point of hospitalization for weeks at a time. Worse, she’s missing out on what others may take for granted. Being able to go on a date night without worrying about lugging around oxygen tanks or the anxiety of running out of it while out, having to make sure everywhere will be wheelchair accessible. Not being able to pick up your grandkids or take them to the park. Living life without the thought of walking up the stairs looming over you.
Today, she waits on the lung transplant list with the hope for a better life. Not for just herself, but for her family who miss the woman she used to be dearly. The person she misses being. For that reason, we ask that you donate to Help Hope Live. Accurately named, because that is what we are asking of you. There are many things that will not & are already not being covered by health insurance such as; monthly anti-rejection medications which she will need to take for the rest of her life and copayments for her hospital admissions, specialist appointments and therapy to keep her heart strong. When she gets the call for the transplant there will be living expenses as they will need to relocate to the transplant center in Charlottesville, VA, for at least 3 months, hoping there are no complications. During this time Tito will need to take a leave from work with-out pay.
Your donations to Help Hope Live could help ease the burden of the financial losses having a lung transplant would come with & allow Sonia & her family to focus on the journey ahead. Hopefully making a full recovery & leading a long, happy life with her loving husband, children, & grandchildren.
Thank you for your support!
Kayla Hughes
Family and friends of Sonia Castell are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.
Sonia has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
1/19/22. It's been 7 days since Sonia had her surgery. First 2 days was smooth sailing breathing tube was out even took a 10 minute walk. On the third day my beautiful loving wife took a turn for the worst. She developed a high blood pressure and fever that spike up to 102 and oxygen level drop. She was put on critical and unstable condition. Breathing tube went back in and she was highly sedated. It was discovered that she has a infection. With all the blood work, xrays, CT scans can't find what is causing this. On the 6th and 7th day which is today. She's been critical and stable. With this type of major surgery anything is possible. I am told three things that it can be possible pneumonia, caught bacteria through the breathing tube, or inflammation in the lungs from the donor or the surgery it self. Today I am told that with every exams and test taken. It does not show the body is rejecting the new lungs. X rays show that the Antibiotics are removing fluid from her lungs. Sedation is lower a couple of times a day to see if she responds to commands. Good news is that she does. It's going to be a slow moving process for her. Slow going forward is small but good news for me. She is still fighting and holding her own. With lots of medication. Please continue to keep my other half in your prayers.
Hello everyone! Sonia was taken to the operating room to get prep up for her new lungs. The lungs are being flown in. Once they are here the surgery will begin sometime early evening. This has been a long battle for many years for her. The time is finally her. It's going to take time for recovery. Please keep my Lively wife in your prayers.
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Te deseo pronta recuperación y que Dios te de mucha fortaleza, eres una guerrera
Rosa Maribel Majano
To my beautiful wife! I know you can\'t see this right now. Soon you will. I miss your loving smile with those piercing dimples. Your love towards me is truly one of a kind. Your positive attitude and your will to move forward. Without any complaints and worries. Is what\'s gotten you this far. I love you for those reason and many more. Get well very soon. So we can start OUR new journey together. Miss and love you like crazy ❤
Rolando Castell
Prayers & positive vibes for her and you, Tito. Love you guys!
Joanne Peebles
Wishing you a speedy recovery. Mark
Mark Hughes
Que Dios te acompañe en este proceso y que ilumine a los doctores que te van a atender. Abrazos reina.
Linda Baglietto
We love you sweet lady!
Irina Gomez
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Sonia Lissette Castell
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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