I NEED YOUR HELP!

June 14, 2026

Kidney update! It’s not great.. (writing this while doing a dialysis exchange) I have had internal issues at my dialysis clinic regarding insurance keeping me from transplant twice now. I have done everything as a patient in my power to fix it and unfortunately it’s much bigger than me. Currently I am 8 yrs on the transplant list at Northwestern Memorial, which means if this insurance issue didn’t happen I would get a kidney pretty quickly. The soonest this can now happen is 2027, purely out of insurance purposes. So I really need to raise money for insurance. Anything donated is appreciated and none of the funds are available to me unless it is a medical expense. Help Hope Live is also tax deductible. This is very hard for me to swallow, as I thought this was the year. Having a transplant once prior I know what it feels like to not be on dialysis, to have freedom and I yearn for that feeling again.

November 20, 2023

Haven’t been on here in quite awhile, for transparency I don’t feel comfortable asking for help so I don’t. I got put on dialysis as of March 28th of 2022. I do peritoneal dialysis which means I can do my treatment from the comfort of my home rather than a clinic. I do frequent my clinic quite regularly for labs, infusions, clinic days, medication, etc. I do treatment 3x a week at the moment for 8 hours per treatment. I have a catheter in my abdomen that is inside my peritoneal cavity and comes out about 20 inches out my stomach for dialysis access. In December of 2022, I had totaled my car in an accident where I had fainted behind the wheel. In the process it did break my catheter which required me to be taken by ambulance to the hospital to get fixed, exchanged and get myself antibiotics was about a 3 day process. I was physically beat up but internally all well. January of 23 my arms started going numb, my catheter broke again due to spanx at a wedding in June of 23, which resulted in peritonitis for the first time. Peritonitis is a deadly infection that is a HUGE no no in the dialysis world. I had to go into clinic for treatment for 2 weeks. I luckily did not have any stomach pain which can be debilitating. I did come out on the other end okay but there is nothing that makes you feel like you’re failing yourself and body by getting peritonitis even though things happen. August 2nd I had fainted again, nothing concluding to why this is happening but in the mean time I got diagnosed with osteopenia. Then September I had fainted again resulting in getting into neurology, cardiology, and just trying to get off any medication or any outside objects that could be a cause to this. In October, my GI issues have always been a problem but I couldn’t eat or drink anything for long periods of time, I started IV Iron i fusions because my iron had dropped to dangerous levels along with my phosphorus. Which led to me doing damage control, I’m trying my best to add and remove from my diet, get my infusions even though there is nothing you could hit me with that cringes me quite like an IV. I’ve had CT, MRIs, currently going through my good vein getting restricted blood flow from what I suspect to be a pinched nerve but I had to quit physical therapy in October because I was so sick I couldn’t move from my bed. I’m only here because I’ve been told if I don’t raise this money I cannot get a transplant because I simply cannot afford it. My support system are my 7 cats at the moment, like I said I don’t like asking for help for myself but my life depends on it at this point. So thanks for listening hopefully next update won’t be so much and depressing.

Xo Janine