Please meet Logan Boone. He is a member of your community and a recent graduate of Batavia High School.
Logan likes to spend his free time listening to pop music and watching Scooby Doo. He is a long time sports fan and will crack jokes at any given opportunity. Logan has Batten disease, a rare, fatal inherited disorder of the nervous system. Batten disease causes vision loss, seizures, cognitive decline, speech and feeding difficulties, and reduced mobility. Logan attends a day program at Cane Run Farms and resides with his grandmother, grandfather, and younger brother.
Photo Galleries (2)
April 7, 2022
May God watch over you and your family
April 3, 2022
I am profoundly saddened that you have this terrible disease. I know first hand the effects this malady has on you and everyone who knows you. As I had a brother and sister who had Battens I can attest to the lasting effects it had on my own family. Please know that I think of my brother and sister often even thou they have been in Heaven for many years. I have supported the Batten Disease Research Foundation and will continue to do so in hopes that a cure will be found soon.
Please know that I will keep you and your faithful Grandparents in my prayers !
April 3, 2022
Gage Boone informed me of the event. Couldn't make it, but decided to donate. Hope the event goes well and Logan has fun!