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Nice, that’s the one word every one describes Josh as. He is such a pure human being. Always self-less, puts others first and always sees the good in everyone.

As many of you have been following Josh’s journey since he’s been hospitalized until now, you can see it’s been an emotional rollercoaster and a long journey. I want to share a little about Josh, what has happened and what will happen in the future to paint a better picture.

Updates (8)

March 2, 2022

03/02/2022: It's been a week since Josh was discharged from the hospital. He didn't want any big announcement or anything. He just wanted to enjoy being home for a little bit. We had to go back down to Milwaukee for another CT scan, pulmonary function test and to follow up with his doctor yesterday. To our surprise, the doctor said there looks like there is improvements in Josh's lungs. Hopefully with time, Josh will be able to ween and be completely off oxygen support. Right now, he's currently on 2-3 liters at rest and 8 liters with activity. The progress seems slow but even within the week that he's been home, I've seen so much improvements. So as of right now, a lung transplant is not in the picture. The plan of care now is to have Josh do pulmonary rehibition to help strengthen his body and lungs. We'll do another follow up in 3 months with the care team in Milwaukee. As Josh's doctor said, "remarkable" that's the only way to put it.

February 16, 2022

2/16/22: It's been a eventful few days. On Friday night, the CVICU doctor offered to Josh, to turn down his ECMO settings so Josh could get a feel for what life would be like without it. On Saturday, they started the ween. He was getting 80% oxygen support with a swipe of 6 (helps push CO2 out of your body) by the end of the day he was at 30% oxygen with a swipe of 2 and by Sunday, he was at 21% oxygen with a swipe of 1. Which meant, ECMO wasn't really supporting Josh. The doctors decided because Josh was tolerating those settings, it was time to take it out. On Monday, Feb 14th, they de-cannulated Josh. This is a huge relief because being on ECMO has it's own set of complications. Plus it means Josh's lungs are doing enough work with some oxygen support. He's still on the nasal cannula with oxygen support. Transplant is no longer in the short term goals. The care team is going to give us another week to do another CT scan, more blood work and more respiratory tests to see if and how Josh's lungs will improve. From there, we'll circle back to transplant or not.

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Guestbook

February 18, 2022

Stay fighting and hoping you get well soon

Anonymous

February 13, 2022

Always praying for you Josh. God is good in all situations. You are not alone. We all fight with you.

Panh Song

February 13, 2022

Keep fighting! Can’t wait to see you go home to your kids with a new set of lungs!

Nouche Do