Thank you for visiting!
As you likely know, my name is Kabir Kadre, and I am partnering here with Help Hope Live, a registered 501(c)(3) nonprofit, in part because they provide both tax deductibility and fiscal accountability to those who wish to support the medical costs of my life with Spinal Cord Injury and the resulting quadriplegia and paralysis.
Thanks to their efforts, and with your generous support, I am able to offset my substantial medical costs and focus on giving what I can to the world through the gift of my life.
Please make a contribution to this fundraising campaign! Click the “Give” button or scroll down to mail a check. Also be sure to take advantage of “Employer Matching funds” to supercharge your gift! For details, please scroll down to the Update titled “Employer Matching.”
Please also share this page directly to others in your community, who might wish to learn about my campaign. I am profoundly grateful for your support!
That’s it for the short and sweet, but if you’re interested to learn more – by all means please do keep reading the “Updates” below for greater detail in the project, including:
– How monies will be spent, (Update – “The hard realities of care…”)
– We will make a formal impact by spreading the MettaCare model of home care that keeps me so healthy and engaged! (Update – “MettaCare initiative!”)
Also, if you or anyone you know is looking for premier “Wisdom Coaching” services, by all means please do visit my website at www.kabirkadre.com as my client roster is not yet full!
For more information, please enter your question in the guestbook where I will respond promptly, or contact Help Hope Live directly at 800-642-8399.
June 10, 2020
Beautiful friends :-),
I have not used this aspect of the platform before today, in the way that it was intended – to communicate with the community of supporters. Instead I have used the “Updates” function as a way to organize introductions to the material relevant to the campaign.
This audio recording of a conversation, however, is so relevant to the deeper meaning and purpose I hold for our MettaCare initiative which is really what your efforts here go to support, and I wanted to share with you all.
Thank you once again for coming to be a part of this community and for your love and generosity.
These are trying times and I wish you the very best.
March 16, 2020
Many employers will help to strengthen your gift with a matching program, often contributing dollar for dollar what you offer!
Please follow this simple 20 second video, or these steps to take advantage of this great supercharge:
1. Click Give.
2.Select “Learn about Other Ways to Give.”
3. Select Employer Matching and type in the name of your company to see if they participate!
That’s it! And thank you once again for your support!
March 16, 2020
The hard realities of care…
From the moment I wake, the very possibility of rising for the day requires the hands and feet of someone else. The simplest tasks, from brushing my teeth to eating lunch all require more physical capacity than I alone can muster. Ordinarily, as we go through our day, simply walking up the stairs to the bank, our movement pumps fluid and blood through our body – for this I require a fitness trainer, time with skilled hands, and disciplined time out of my day.
For many, spinal cord injury and particularly quadriplegia can be an incredibly taxing and isolating event. At the very least, managing life with this level of disability is like running a small business and as you may have heard, most small businesses fail in the first few years.
The dynamics are intense, you must manage budget, supplies, staffing and schedules, “employee” relationships, team dynamics, and vendor relations. This to say nothing of managing your own body and its countless new and resource consuming needs, ostensibly, the product of the business.
Of course many of these are simply household duties, but in the case of injury, these lie on top of those simple home maintenance concerns.
The monthly cost just for medical and health related expenses is over $15,000 and breaks down roughly this way…
~$11,500 monthly for caregivers. This is a team of five supporting one another to cover 15 hours a day of care for my body, for my home, for transportation, and perhaps most importantly for one another.
— $60 a month for payroll service.
—$200 a month amortized for durable medical equipment (wheelchair and showering)
— $450 a month for household utilities due to the loss of internal temperature regulation in the body, and the necessary electric bed to properly care for my skin and ability to sit up and access water and communications in the night.
— $150 a month for medical supplies necessary for urination, bowel maintenance, skin care and protection and team hygiene (glove, etc.)
Maintaining Basic Health:
— $200 a month for high-quality nutrient and herbal supplements. These help to combat osteoporosis, a constantly infected bladder, and a compromised immune system while complementing a clear and positive mind and energized body in the face of the diminished exercise one ordinarily receives just by walking around.
— $700 a month roughly amortized over the year for doctors appointments, related tests, and hospitalizations (knocking on wood ;-).
— $50 a month goes to pharmacy expenses – this is largely just the prescription medication coverage on my insurance, with the occasional antibiotic need.
$150 a month for health insurance premiums (thanks to Medicare!)
Strengthening Vitality and Engagement:
— $950 a month covers my dear friend Andrew (allabilitiespt.com) to show up once a week for two hours, throw me on the incline sliding bench and help me generate some blood flow, weight-bearing, and basic exercise to keep up my bones, strength, and vitality.
— $450 a month for Feldenkrais therapy (www.donnaray.com) – an exceptionally effective nervous system support, and one that I hold accountable for the most notable return of trunk sensation and abdominal control, over any other therapy or treatment since my injury.
— $50 a month amortized for hardware and software accessibility aids like the voice software and microphone I am using to compose this message to you now!
— Not listed but more sporadic are additional costs when traveling to bring caregivers and equipment.
This is a list of some of the basic cost concerns that have supported my well-being and freedom to do work over the last 17 years.
I hope this will give you a better sense of what you are contributing to and supporting in concrete terms. All of these resources are leveraged to give me the best energy, most time active, and most agility to practice my passion of finding the most effective ways to use my life in service and love for the world.
Please see the updates “MettaCare” and “2020 Vision board” to learn more about how I strive to bring that service about. This small business has been running for nearly 2 decades on cash reserves, with luck I’ve just about figured out how to make it sustainable… Thank you so much for your help to cross this threshold.
March 16, 2020
The following text is from the opening salvo of an ongoing dialogue between myself, my care partners, and a handful of other interested collaborators from various places of insight in the healthcare industry.
This dialogue has evolved and we are at the early stages of a substantial business plan/grant to move the initiative forward through four phases over five years. The proposal is intended to draw funding to apply the caregiving intelligence that we have developed in my care over the last 17 years to other homecare situations, and in fact into the healthcare system itself at large.
This plan/grant proposal covers the territory of training home care workers, both professionals and family members, developing a software platform to support care systems, and seeding and contributing to an industry dialogue on care through a symposium series intended to nurture a regional “Care Cooperative” to coordinate the intelligence and wisdom of diverse institutional actors as well as individuals on the ground.
If this campaign can reach its $60,000 goal, it will give me the freedom and flexibility to focus full-time in a leadership capacity with disengaged community towards moving this project forward into production.
So without further ado…
As you may be aware, home care remains an incredibly challenging area within our health system.
Individuals working in the role of caregiver often experience a variety of negative impacts ranging from high stress, to low wages, burnout, and even negative health outcomes of their own. Meanwhile, the “beneficiaries” of care are often challenged for continuity of care, stress beyond their additional condition related to the caregiving relationship, and additional health breakdown as a matter of course.
By way of example, whenever I am visited by healthcare professionals, home nurses, doctors, and the like, they almost universally express surprise at things we have learned to take for granted. Simple things, like the health of my skin, or the level of engagement they find with my caregivers, often seem like foreign elements in their eyes.
There are numerous studies showing that caregivers suffer from isolation and are more likely to find that “care responsibilities keep them from doing other activities that they enjoy.”
Systemically, these care environments often suffer from failures in (poor) communication, poor teamwork, and poor or total lack of coordination. These factors negatively impact not only the receivers of care, but quite unsurprisingly, the givers of care as well.
While the research shows a broad spectrum of negative impacts on caregivers including emotional, physical, and even financial difficulties as very concrete outcomes, we can also see that systemically individuals throughout the relationship can easily find themselves feeling the victim of these dysfunctions.
That victimhood is an insidious and important aspect of the problem, as it goes to identity. Caregivers are often seen, and even treated as “tools” of the healing support experience, and not themselves as human beings, as an integral “member” and even caretaker of the process.
Let me also not fail to mention the obvious elephant in the room – that being our exploding need for in-home care here in the US (and worldwide) as baby boomers make their way into their later years. There is simply not the physical healthcare infrastructure to handle all of these individuals within institutions. As one professional in the field recently put it, there is simply is no way to build the physical infrastructure fast enough. Care will be administered in the home.
There is clearly expanding need, and an epidemic shortage of not only skilled caregivers in a professional sense, but a shortage of skill for the countless nonprofessionals who will be thrust into that role in this and coming decades.
As I mentioned above, in an anecdotal sense, it is quite clear that my own health has benefited from the way we approach our little care system here. In fact there have been numerous and quite practical examples of my health and well-being improving in this context.
We really started an intensive focus on discerning the nature of our care process AND doing so with an intentionally reflective element that allowed us to adapt and adjust, improving in real time. Since that time, a number of very specific elements have seen dramatic improvement:
— Hospital visits dropped off significantly.
— Skin breakdown that had become a persistent concern, nearly vanished.
— Urinary tract infections which were a regular issue, became sparse at their worst and were generally eliminated fairly quickly.
However, it is important to further note that not only my own health and well-being improved in this refined context, but also that of the partners in care who, with me as a nucleus, enacted a greater field of well-being around me. In essence, they and we were in fact creating a culture, or field of care, that was caring for and nurturing them as much as me.
With a nod to the Eastern mindfulness term, Metta, meaning “loving kindness,” and playing on the traditional system of Medicare, we called our new experiment MettaCare, and it really is better care.
Together we had successfully created a nurturing and supportive environment for individual wellness and growth, collective learning, and an integrative awareness expansion for all. One of our care partners in this process, David, coined the term “Omni-Directional Care Awareness” or ODCA.
This environment is characterized by robust interpersonal communication, a sincere friendliness throughout, coherence of effort, and a sensitivity and care for outcomes, not just at the level of the “patient” or “beneficiary” in the traditional sense, but for everyone. Within this, we find a better fluency and adaptability of ideas, and an almost seamless coherence of the care feel beneficial to all.
We have transformed the traditional roles and identities of patients needing care and caregivers providing care, into a more empowered engagement where everyone has the dignified role of participating in cultivating a care field that produces outcomes of health, well-being, and capacity throughout.
Recognizing not only our good fortune to have come upon and have developed this field of insight and wisdom, but also the immediate and global thirst for a better care more widely distributed, we are turning our focus to discover how we might share this value with others.
By formalizing this ongoing evolutionary dialogue and experiment in practice, we can help to meet our nations ballooning requirements for care. This is done, not only by increasing access to skills and process intelligence, training patients, families, and professionals, but also through helping to embed these principles of vulnerability, mutuality, and empowerment throughout our systems of healthcare.
There is much talk today, about “empowered patients” and that is an excellent start, however I would encourage us to go further to discover how can we create empowered families, and empowered communities of care. Therein lies the real transformation.
March 16, 2020
2020 Vision Board
Late last year my dear friend and doctor asked me to put down a vision board of my “Dream Job.”
Mike is an incredible fellow and has managed to surround himself with an incredibly diverse group of scientists, entrepreneurs, cutting edge and leading medical practitioners, investors, educators, biodynamic farmers, spiritual practitioners, and others, many of the top of their field, and all breathtakingly remarkable in their own right.
His interest when asking the question had to do with his own struggle to try and figure out what to do with his unique vantage point and position of privilege in the middle of all of these flourishing resources. In his view, all of these incredible threads must fit together in some profound tapestry, somehow…
In response to his invitation, I crafted the short video you see above. Let me briefly narrate here…
Photo Galleries (2)
July 3, 2020
Appreciate your beautiful spirit and presence in the world!
July 2, 2020
Kabir gives so much more than he receives. Let us work together for balance, peace, and freedom.
June 29, 2020
For a wise and lovely man, with love.
June 18, 2020
i love you.
May 25, 2020
Donation sent with love, strength, and belief in your vision from Denver,CO xo
April 21, 2020
Kabir is my hero! Sending lots of love!
April 16, 2020
Let’s keep the love flowing.
April 3, 2020
April 2, 2020
I am in even more awe of you than I already was, reading and seeing you these past weeks. Please be well, dear dear man.
Miriam van Groen
March 31, 2020
Best Wishes from RWM Home Loans
March 31, 2020
Wishing you well.
March 29, 2020
Much love to you, Kabir!
March 28, 2020
In loving support for one who inspires and encourages by his example of spiritful generosity and courage.
March 27, 2020
Kabir, you are a bright spot on the planet! Love wilt find a way. peace, TR
March 25, 2020
This is a way to help the greater good...a ripple effect that will touch us all...Namaste.
March 24, 2020
Kabir... when I met you at a coffee shop in Seattle with Dana, all of those years ago, you became a beacon of warm, bright light to me. Keep receiving the goodness that comes back your way dear man... you radiate such goodness to the world. I see you and love you! <3
March 24, 2020
Hi Kabir, my donation is on its way via the old-fashioned route, and I am sharing your link far and wide, that you may experience massive support!! Thank you for your vulnerable presence and honesty in asking for help; I know that cannot have been easy. I treasure you. Much love,
March 24, 2020
Stay healthy my friend
March 23, 2020
Kabir, you touch my heart every time we meet. Blessings to you in your journey, my Friend.
March 23, 2020
Very happy to provide what I can to help you, Kabir, particularly in this time of struggle not only for yourself but others. I hope this enables you to care for yourself and, simultaneously, enable you to care for your caregivers.
March 22, 2020
March 22, 2020
The journey begins with a single step. ❤️
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Help Hope Live
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In honor of Kabir Kadre
Help Hope Live
2 Radnor Corporate Center
100 Matsonford Road
Radnor, PA 19087