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Seeking to bring awareness.

22-Year-old Caliph (K) was born special. You see he was born a twin. Caliph and his brother Calid brought tons of joy to the lives of their families. But K was much more special than his parents could ever imagine. K was born with a PTEN gene associated with an increased risk of certain Cancers, benign tumor growths (which is just one of his battles) & neurodevelopmental conditions.

K was diagnosed with Cowden’s Syndrome which affects each carrier differently. K suffers from Vascular and Arteriovenous (AVM) Malformations. Which also affected him with Congenital limb overgrowth discrepancy. At the sweet age of 2 years old K developed a small lump on the top of his left foot. Over the course of a year, little K’s small lump the size of a bad mosquito bite grew to the size of a large egg. We remember times of shopping for the twins dressing them in the cutest matching outfits. We were forced to purchase shoes for K and cut the top off his shoe to resemble a large flap. Hoping the shoe will not fall off his foot while at play. We spent the next 3 1/2 years in search of answers as to what was growing inside our child’s foot. Our search stretched far across the Illinois & Indiana metropolitan areas. K gained an array of physicians from Rush, Lurie Children’s Hospital, University of Chicago, Shriners as well as numerous independents. During our years of searching, no one truly had a definite answer. We trusted many and were failed by most. As time moved on K developed several other growths throughout his left lower extremity. One day K’s mom had an appointment for herself with an Orthopedic doctor. During the exam, the doctor was asked to take a look at the child’s leg. This physician grew frantic & was baffled as to why no one had removed the lump from the child’s foot. Instantly K became a new patient of hers. Soon came an MRI and the promise that she and her colleague would remove the child’s growing lump. The feeling we had was unmeasurable, it had to be heaven-sent after all these years we’ve met our guardian angel. Two weeks prior to his procedure we received a call from the doctor. She stated and I quote “My colleague & I were discussing your child’s surgery & feel if things do not go as planned, we may have to remove his foot”. Remove foot was the last word I heard her speak! I could hear her voice in my ear through the phone but nothing made sense. By now I’m sure you could only imagine the devastating blow that crushed our hearts. What do we do now? Where do we go? Who do we call? Oh God, I’m so lost! No time for the mind to rest, mom called the Radiology location where K had just had an MRI performed and requested 10 copies. The office said well ma’am you’re the parent you can have one for free. But I was in search of miracles, so 10 copies it was. I brought a cocktail table to our upstairs bedroom and placed it at the foot of the bed so I wouldn’t keep my husband up at night. I would lay in bed searching day & night. Then it was decided the top ten medical facilities to come up under his (said) conditions would receive an email of his story, and photos and we would mail the MRI to that office. Less than 72 hours we received an email from Mayo Clinic in Rochester, MN our home away from home. They took our son in with no question. Before we knew it he was assigned a Mayo Clinic number & his first appointment was scheduled on his dad’s birthday (May 21st. 2007).

Updates (2)

May 19, 2022

We arrived at Mayo Clinic this past Sunday. Monday we began to make our rounds. Yes we returned a lot sooner than was planned. This week K was seen by 3 of his surgeon's. Surgery can't be preformed this trip due to scheduling. We will return in 2 weeks. The second surgeon doesn't want to perform surgery until K other surgeons perform another procedure as well as a New pain management doctor tries a new procedure as well. Which we'll be coming back in July for that trail run. K's doctor that wants to wait has informed us that the risk for his next procedure would be extremely risk. This has been his surgeon since he was 5 Years old. Continue to keep Caliph in your prayers. Love Team Kellogg ❤️

March 26, 2022

Cowden Syndrome affects ever 1 in 200,000. People with this altered gene are sometimes diagnosed with conditions such as, Cowden, Bannayan-Riley Ruvalcaba syndrome, multiple hamartoma syndrome,and Proteus-like syndrome.

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Guestbook

December 3, 2024

Praying

PATRICIA CLAIR

October 25, 2023

Hoping and helping to get this young man better.

ANTIONETTE NIX

April 13, 2022

Caliph,
The soul moves first...continue to be strong!! We will support you along the way through your journey!!

Mrs. Campbell

Ericka Campbell