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Hi, my name is Karole MacFarlane and I have Spinal Muscular Atrophy. Spinal Muscular Atrophy is a hereditary disease that progressively destroys motor neurons. These nerve cells reside in the brainstem and spinal cord controlling essential skeletal muscle activity. Things such as speaking, walking, breathing and swallowing are affected. This leads to muscle weakness and atrophy. Motor neurons control movement in the arms, legs, chest, face, throat and tongue. When there are disruptions in the signal between motor neurons and muscles, the muscles gradually weaken, begin wasting away and develop twitching called fasciculations. I have had it since birth and am 50 plus years old! I live a really full life with my wonderful husband’s and daughter’s laughter and constant support.
About four years ago when I attended a disability conference in Phoenix, I discovered several devices that could be helpful for your average wheelchair user. I use the word “average” because I feel like I am not your typical wheelchair user. What sets me apart is I have no use of my extremities. I am virtually a head in a wheelchair. However, there was one device that could help me use all of the other devices! It’s called the JACO robotic arm. This device is amazing! Here is a video for you to watch.
I did attempt to get it through my insurance, but they refused to pay. I have appealed three times. One of my insurances even wrote the JACO robotic arm out of their contract so that they would never have to pay for it.
Just imagine…
You’re sitting at home alone and a mosquito lands on your nose. What do you do? You swat it away. I could do nothing except to watch it bite my nose. I tried to blow it off of me, but it didn’t move.
You live in Arizona and have no way of drinking water yourself.
You drop your phone and you can’t pick it up.
You want to be able to spend time on your own.
You have to ask for everything you need. I even have to be fed.
You want to go outside but you can’t open the door.
You want to be less of a burden to your family.
I could go on, but I feel that you get the picture.
Let me just say that this robotic arm would be life-changing for me. I could feed myself, and get myself a glass of water, pick things up off the floor, go outside on my own.…
My family and attendants have done a remarkable job of taking care of me as long as I’ve needed it. However, I think it would be nothing short of miraculous to not have to continue relying so much on others for my care. My condition has steadily gotten worse over the last 50 years and the amount of help I need from them has only increased. With the JACO Robotic Arm, you wouldn’t just be helping me; you’d be helping everyone who’s taking time off from work to help me in ways most people don’t even consider. Please would you give me a hand? If you cannot give, please still forward so that I can keep the campaign moving.
#GiveKaroleAHand
Family and friends of Karole MacFarlane are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.
Karole has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Hey everybody! The 50-50 Sweepstakes pot is steadily growing! You can get your tickets from me in person or you can order them online at:
GiveKaroleAHand.ticketleap.com/5050sweeps/
Thank you! And thank you for all your support!
#givekaroleahand
Hi everybody! Just a quick reminder that I have a 50-50 Sweepstakes going on! I’m getting closer and closer to my goal thanks to all of you! Happy Fourth of July!
#GiveKaroleAHand
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Im so sorry that healthcare revolves around a bottom line in this country- wish I could give more. Sending lots of love.
Colleen Cups
My family and I are praying you are able to receive this device to help make your everyday needs easier! Our hearts and thoughts are with you. Blessings
Tara & James Pauley
I hope your wish comes true very soon. All the best to and your family.
With heartfelt wishes,
Pamela Chitty
Pamela Chitty
You really touched my heart, sending you love and praying you are able to get the robotic arm.
Susan Chambers
Hope you can get a robotic arm soon!
You’re so nice and deserve something good!!!
Laurel Makula
God bless!
Anonymous
I hope and pray that Karole receives all the monies she needs to get her robotic arm.
EDWARD pedersen
All the best to you!!
Anonymous
Hi Karole
Hope this helps..
Good luck. God bless
Love u
Matante Colleen
Colleen h Erickson
Love you cuz! Matt
Matthew Poulin
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Karole MacFarlane
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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