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Isaiah and his mother Andrea are both wheelchair users and cannot leave home without someone helping load them and their wheelchairs into their non-accessible van. Isaiah is 14 and has a new power chair that weighs over 450lbs. Andrea uses a manual wheelchair, and it is too heavy for her to load on her own. Due to her not being able to load Isaiah and all the chairs on her own, we have had to reschedule or cancel appointments when help is not available. If they had a wheelchair accessible van, then Andrea would be able to take them both to and from appointments and other places without having to rely on others.

Isaiah was born with Hereditary Spastic Paraplegia Type 3A (HSP3A). HSP3A causes his muscles to be very tight and have a lot of spasms in his legs. The spasticity can also cause his bones to deform from the tightness. The form of HSP that he has is progressive which means it will continue to get worse as he gets older. He has had 8 surgeries. His last one was in May 2024. It was on his right wrist and elbow. Isaiah is unable to walk, stand, or transfer on his own and probably never will.

Andrea was born with Spina Bifida and has had over 35 surgeries. Her surgeries have included multiple back surgeries, as well as her left hip being fused. When it was fused, it was fused rotated in about 30 degrees from where it should have been. After walking for about 25 years like that her left knee failed in January 2021 and in March of 2021 it was replaced. Since then if she walks even for a short time, she develops sores on her left foot. She has had to go to use a wheelchair full time. In January 2024, she had surgery to remove all the hardware holding her hip fused so they could cut her femur and rotate the lower part of the leg back out 30 degrees and put in a new plate down the side of her femur from top of her hip to the knee. With hopes that it will stop the scores so she can get back to walking.

Updates (4)

April 29, 2024

Thank you to everyone that came out to our last fundraiser at Jim Dandy. Hope to see you at our next fundraiser that we are still working on ideas for.

April 19, 2024

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Guestbook

November 21, 2022

Thinking of you and your family! Monica and Lizzy Henkel

Monica Henkel

November 19, 2022

From Esai G.

Anonymous

November 16, 2022

Isaiah never met a stranger; he is a friend to everyone. We miss him at Hinkle Creek!

Jeanne Witt