February 11, 2023
Had a ct scan of my lungs. 2 masses found. Will find put next week if they can remove them. Also have alotbof fluid on my lungs with infection a d inflammation. We need to find out if these are neuroendocrine cancer again in my lungs or if its a new cancer… im frustrated, tired, and worried. Ill update soon.
January 4, 2023
Got a call late last night. I was admitted to hospital for liver transplant try number 6. I have completed all my testing . Its a cardic donor so now i wait to see if this liver will work out for me. Beyond stressed.
December 21, 2022
Had infusions today and chemo injections. My dr let me skip blood work said Merry Christmas! He knows how i hate it. My mom came and sat with me for 6 hours today. some sweet friends also brought me a sweet present today.
The only update for now is my eyes have been giving me problems and getting lumps on my eye lids, dr said she thinks its my body fighting and my immune system not working properly that its caused a lump of infection or blood clot. So were watching it for now. I get the weirdest things!
Thank you ladies Cynthia Meacham and Anne Meacham for the sweet gift.
December 14, 2022
I had a ct scan today of lungs and liver. Now i wait to see whT they findand what’s happening next.
December 12, 2022
Update: they were able to band 3 varicies. I have to go back and do it again in 4 weeks to band more. I got put on 3 new meds to help with controlling the bleeding., im doing ok just tired.
November 10, 2022
Today i was called in for liver transplant again. 5th try i had to be admitted at 5 am. Did blood tests, urine, xrays, ekg, covid, and others. After 6 hours the surgeons came innand said the donors liver wouldnt work for me. So i was then discharged. Now we wait for the next call and 6th attempt. Starting to feel very frustrated and defeated.
November 8, 2022
Had the oral surgery today., they took 3 tooth roots out. Ive been nauseous and in pain all day. But thats another check mark off list for liver transplant. Ive slept most the day away. Still very nauseous and getting blood clots in my mouth.
Thank you Treasure and Poppa bear for feeding me, bringing my meds, and watching over me. Tiara had to work alot today.
Hope to feel better in next few days.
I was lucky my platelets are at 51 if they would of been 50 or below i would of had to do blood transfusions. Small miracles. Thanks friends.
October 31, 2022
Well i was called to come in yesterday for beinging a direct backup for liver transplant. I had 9 vials of blood took, ekg, xrays, covid and urine tests etc. after waiting a few hours i was discharged. Unfortunately the donors liver was not working by the time they got to it so it couldn’t be used.
Tonight i got another call to come to hospital in an hour i was a primary for a liver. So back i went. More blood taken . Didnt have to do other tests because they were just done yesterday. So we waited. Surgeon came in and said unfortunately they biopsied the liver and it was not healthy. So it couldnt be used . So so hard on me and my family not to mention expensive. My two girls and Murray all drive separately because they will have to go to work. So in last week 3 trips at 3 cars down ti murray utah. About an hour each ways drive.
I cry every time it is so very hard to go through this and put my family through as well. Im at the top of the list so they will keep calling until it happens . Im beyond stressed and frustrated. But the fight continues.
October 21, 2022
Back at it. Yesterday had to go in for magnesium and hydration infusions. Also chemo injections. Lifes very stressful tight now but i refuse to give up. The fight continues….
October 19, 2022
Last 2 days have been so rough for me. On monday the transplant team called said i was a backup for a liver that matched. I was put on standby. I couldnt eat all day. I packed my bags, and waited. Finally about 11:05 pm i got word that the donor liver could not be used. So frustrating and sad.
Then Tuesday i get a call transplant clinic. They have another liver and that im the primary for it. I had to go to murray at 5:30 pm. I was admitted into hospital. I had iv put in me. I had tons of bloodwork done. Covid and urine tests done. Echocardiogram , and xrays. Of liver done. I had to sign papers, find out exactly all the machines i will wake up to , scared me to death. They gave me meds to calm me i was shaking and so scared. Then we wait. About 9 pm the transplant team comes in and says im sorry the liver wasnt able to be harvested in time for it to be a functioning liver. Do i got took off all the machines and sent home. Its such a rollercoaster ride. So hard. So now i wait and try again. I cant keep putting my family through this or me i hope this works out soon. Im thankful to get a liver but this is so very hard. And knowing someone has to die and be a donor to save you is such a hard thing. Hopefully 3rd times a charm when i get a call because this is so rough.
October 10, 2022
Here we go again. Ultrasound of my heart to check what the aortic stenosis is doing. (Why i get dizzy) they think. Hoping im doing ok , praying nothing else goes wrong.
October 6, 2022
Today i had physical therapy to try to lose some weight and build strength for liver transplant. Im starting 2/3 times a week for now. Wish me luck as soon as i lose the weight we can schedule transplant. Monday i see the cardiac. Dr to make sure my hearts doing ok. Ive been dizzy and fallen teice now. I have a walker but hate to use it. (My pride)
October 1, 2022
So my bloodwork is showing i now have liver cancer as well. Its been a hard week. How many cancers can one person get i asked the dr.? Well i carry the brca 2 gene she said, so im predisposition to alot or many…. Not what i wanted to hear. Going to physical therapy to workout, lose weight and gain strength. Having a hard time. I asked can i still have a transplant with liver cancer? Yes she said it will move me up on the transplant list fsster. So scans soon to make sure cancer is contained in my liver. Im beyond frustrated! Going on since 2014 with breast cancer to start. Then 2016 cervical hyperplasia so then needed full hysterectomy. Then 2019 diagnosed with neuroendocrine cancer in my lungs. Lung resection to lower left lobe to remove 3 tumors. 2 holding steady with many more the size of pencil erasers… 2020 liver failure from fatty cirrhosis… awaiting transplant. The fight continues….
September 24, 2022
Been here since 10 am, 3 dr.’s ordered blood work. My platelets are still 40 ( very low) so adding some new meds . IM very nauseous so a new med for that. Cancer in lungs is holding 2 tumors ones 6.4 mm, one is 5.3mm. Lots of small nodules too many to count but holding steady . Having infusions today i had low magnesium and needed hydration . Oncologist specialist on neuroendocrine cancer next week in slc. Updates soon. The fight continues…..
September 9, 2022
Update:
Well my daughter had the last of the tests yesterday for testing to be a liver donor for me.… she passed all tests!!! We are a match. so thats the good news. When it comes closer to the time they will repeat some blood tests and the mri again. However she can be my donor.
So now i had to push my oral surgery back due to moving, and personal reasons. So i got the last of All shots i had to take today. So the 2 things well 3 things i have to do to schedule this liver transplant is the oral surgery and i have to lose 28 more pounds. Ive lost 22 so far. When i complete that we can move forward. So im doing physical therapy at the cancer institute to help with losing more weight. I have ct scans Monday with followup in salt lake oncologist specialist for my neuroendocrine cancer in my lungs at end of month. My cancer has to keep holding steady also. Then its a go . So i am so thankful but deathly afraid for this surgery on me and my daughter. I also have my donation site up that they want me to have $ 5,000-10,000 in to pay for uncovered meds and copays i will need. So wish us luck i will update again soon.
August 17, 2022
So up in Murray at transplant clinic, my daughter is completing more tests to see if she can be my living donor. Poor girl has been poked about 6 times already, mri, social worker, dietitian, surgeon, chest xray, fibroscan and surgical assessments.. im beyond grateful for her willingness to go through all this. Oh and 20 vials of blood took today..
July 30, 2022
Update:
Well we got cleared from her ct scan of her liver to proceed with her testing to be my living liver donor. So, so far shes passed all the prior tests. They are making an appointment now so she can get a battery of tests, echo cardiograph, mri, heart tests, infectious diseases etc and meet with Dr. Gilroy (liver transplant surgeon). So thats whats next for Treasure to continue this process. Im so very nervous, thankful, scared all kinds of emotions with her going through all this to try to help me live. I sure named her right, she is such a Treasure. Love you.
I now have to finish getting a 2nd hep b shot, the 2nd shingle shot in August. Im scheduled for surgery August 15 at the oral surgeon if i come up with enough by then to pay for it. Then im hoping i can go live on the transplant list and start moving my way up. Were doing all we can to keep the fight up.
Thanks friends . I appreciate all that have donated, shared etc my transplant fundraiser. Im half way to getting my oral surgery money at this point. So thank you all.
July 20, 2022
Well today i went to Russell dental for 1st procedure on my teeth. My appointment was at 4 and i was there until 6:30. When trying to do my filing my tooth and mouth wouldnt stop bleeding. Its my platelets im sure… they went above and beyond to care for me and get this procedure done. So needless to say my mouth really hurts. But still bleeding somewhat. So have to watch for blood clots, nothing is ever easy for me. After this im so nervous to go to oral surgeon to get my 3 root tips pulled… thanks to my daughter Treasure for taking me. She had to leave after 2 hours so Pop came and stayed and brought me home. Will this ever end…
July 13, 2022
Hi just wanted to update, I found a dentist to do some of the work on my teeth to clear me for transplant. Russell dental has gotten me right in and gave me discounts. So the exam to find out what procedures I need was $80. My parents helped me with that. I go next week on July 19 the cost for filings and cleanings with their discount will be $170. Then they referred me to oral surgeon Greg Roberts office to have them take out the 3 root tips I have left in my mouth due to them falling out from my chemo.also have one more racked half a tooth to be removed. I have to do this because when you get the liver transplant an infection in your mouth can be very life threatening. So I told them my story, with their discount I have to come up with $500. For that procedure. My appointment is August 15 if I can raise enough to do it. Today is my daughter Treasures first meeting and class with transplant clinic to see what tests she has to do , what to expect, for her to be a living donor. It’s a lot. I’m scared for us both. She first is a blood match and qualified. Now testing begins to make sure she can handle this surgery. We are on phase 2 of 4 for this process. So I have about a month to come up with enough for dental work. If you can help, I thank you and I appreciate it.
July 9, 2022
Hi friends this all began in 2014. I had a cough that wouldn’t stop. Many Dr visits tests etc in September 2014 I was diagnosed with breast cancer. October I had a double mastectomy. Then 7 reconstruction soon followed. 2016 it spread I had to have a full hysterectomy. I was still coughing, still throwing up and feeling terrible. I had tumors in my lungs that finally grew enough to take 3 out and biopsy them. It showed I have neuroendocrine cancer in my lungs. I had a lower left lung resection in 2019. This cancer is not curable but I keep fighting. Some people can live a long time with it if it stays stable. So I do chemo Injections every 28 days... lots of iron, magnesium, and hydration infusions. Now my liver is failing and I need a liver transplant. So the journey continues. My daughter is trying to be a living donor she is only 21 works and is a college student. I also have another daughter who will be a caregiver for us if this works out. I have been with my fiancé going on 14 years. He asked me to marry him right before I got sick. I told him at that time yes. Then I said I have to beat this cancer first. It has never ended. Now with me needing a transplant I hope to marry him after all this .He has gone to countless appts, surgeries and took care of me along with my girls and family. I need to marry my best friend, my rock! I was found disabled in 2020. I don’t make enough from my disability for all these bills piling up. I won’t give in to this but I need help. Medical costs are crazy. Prescriptions will be expensive for the rest of my life.. I need 3 teeth roots pulled due to my teeth falling out now due to my medication and chemo. I have to raise 700. For dental surgery to stay on transplant list. I’m so overwhelmed. Thank you all for your support. Anything is greatly appreciated.
