Expenses after Hayleighs heart transplant
Most 14 year old teenage girls get to spend their days doing things like hanging out with friends, shopping, going to events, doing what most teenagers like to do. Unfortunately, that reality isn’t the same for everyone. Meet Hayleigh! Hayleigh was born with Hypoplastic Left Heart Syndrome (part of her heart didn’t form fully prenatally) She had 3 open heart surgeries early in life to extend the life of her original heart, antibody treatments to hopefully lower her antibody count, and numerous heart caths to perform routine maintenance. When all interventions had been completed, she was still left with heart failure and needed a new heart, requiring our family to move cross country to California to have Hayleigh listed on the transplant list as she received antibody therapy.
Updates (1)
March 10, 2025
We have officially been allowed to leave the direct hospital vicinity, returning to Rohnert Park! Next step is weekly lab draws, routine check ups, and finishing out this school year so we can return back to North Carolina! During Hayleighs cath Monday- they had to use a balloon to open up her aortic arch due to narrowing in the shunt they had to leave in place during her heart transplant. The narrowing was highly reactive to the ballooning, the doctors were very pleased! We are currently tracking a virus that was present in the donor organ, and has started replicating in her bloodstream- we have doubled her viral antibiotic and it will be closely monitored as we do labs to see if we can potentially avoid her getting sick!
