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About Heather ……
Heather was adopted as a baby and shortly thereafter was found to have many health issues. Over the years she has had many surgeries on her eyes, but in the last 5 years, she has gone through a series of medical diagnosis, surgeries and events that have snowballed into being diagnosed with non-alcoholic cirrhosis of her liver. The doctors found a badly damaged liver, the most outwardly notable symptom of Heathers cirrhosis has been hepatic encephalopathy. When going through an “event” as they call them, Heather doesn’t remember things and can sometimes become unresponsive. Other symptoms she has suffered with include, tremors, balance issues, confusion, drowsiness and short term memory loss, just to name a few. After several hospitalizations each year for the last 4 years, she was finally approved for the Liver transplant list on 8/21/2022 and is awaiting a liver. There is still a question if she may need a kidney transplant, but that’s being monitored.
Currently she is on 16 prescriptions and after transplant will be on anti-rejection medications for the rest of her life. Even after insurance she still has out of pocket and prescription drug costs that may reach over $10k per year.
When going through the evaluation process, they were given information on HelpHopeLive.org.
We understand the financial struggles we all face, but if you could find it in your heart to help out in Heather’s time of need, your donation of any value would be greatly appreciated.
Donations through Help Hope Live are TAX DEDUCTIBLE and will be held in an account for Heather. Help Hope Live will pay providers directly for any out-of-pocket expenses not covered by insurance as long as there is money in the account.
On behalf of Heather and her family we would like to thank you for taking the time to visit
May God Bless you and your donation. Thank you!
For more information on the organization, please visit https://helphopelive.org
Transplant Update
December 27, 2022 --
around 4am, they got “the call” for a new liver. They were due at the hospital by 5pm. Heather spent the day getting paperwork ready and checking the “hospital bag”. She also said she spent the ride to Jefferson in peace.
Once at the hospital, in the transplant unit, they were greeted with 5 RN’s and 2 doctors. Surgery was scheduled for midnight! At 10:30pm, one of the doctors came in and looked grim. Surgery was a no-go. Staying positive, they looked at it as a “test run”, and that the liver was not the one God wanted her to have.
February 16, 2023 –
Since late January, Heather had been retaining more fluid again, like 40+ pounds. The GI doctor sent her to the hospital to get the fluid drained again. While in the hospital for the fluid, they got a call for a liver. Accepted! Within 12 hours of the call Heather was in surgery and got her new liver. She had a couple small issues that needed to be cleared up before being released, so she ended up staying almost 3 weeks in the hospital but was able to come home early March. They are still watching her kidney function to make sure she doesn’t need a kidney transplant also. Since coming home, she has lost over 50 pounds of water and feels better, praise God. Medications are crazy. She came home with 26 medications, but they have been able to reduce that by 3 so far. She still has issues with some memory and word recognition but we will get there!
Jefferson Pharmacy has helped with at least 1 medication. The monthly copay was over $7,000 but they found a grant that pays for the costs. Thank you, Jefferson. That however is only 1 of her medications. Any help you can give towards the medication cost would be a blessing. HelpHopeLive keeps the funds and as the copays come in, they will use the money from the account to defray the costs. Some of the medications are lifetime.
Please say a prayer for the family who lost a loved one in order for Heather to live and remember to hug the ones you love.
Thank you to all that donated and to HelpHopeLive.com for giving Heather an avenue to submit bills for payment.
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Hi. I found you while trying to find my own campaign. I hope you are doing well after your transplant.
Heather Johns
Congratulations Heather you did it !!!
Equipped with a new liver you have a new lease on life. You are so strong and an inspiration to all.
What an honor to call you my wife.
Sincerely,
Jonathan
Jonathan Johns
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Heather Johns
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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