Hello! Thank you for visiting this page. Here it is all about Zippy. He is the most amazing 3-year old and all of your financial support goes to cover his medical expenses. Thank you for all the support you give!
Cyrus, AKA “Zippy”, was born with Arthrogryposis Multiplex Congenita, a condition affecting 1 out of 3,000 live births. Arthrogyposis can cover a wide range of diagnoses wherever two or more body parts are affected by contractures. His specific type of Arthrogryposis makes him 1 in 10,000! (He’s one of a kind.) Zippy is affected in all four limbs and his spine. Basically, he has stiff joints and weak muscles. But he is incredibly strong!
Updates (10)
February 26, 2025
Medical equipment has it's own version of aches and pains like our aging bodies. When our knees need a rest, we might put our feet up or take a bath. Zippy's wheelchair sometimes needs a tune up or parts to be replaced. Recently, we took him and his power chair in for maintenance. He got a new piece that keeps his right arm rest from wiggling around all over the place, some new straps for his legs to keep from sliding, some adjustments and a new screw to hold up the back of his chair (which I had held together with zip ties). We aren't finished with the zip ties though, his joystick is trying to fall off, so we have that (hopefully) secured with zip ties and tape. Each part (each screw, knob, strap, etc.) has to be ordered...through insurance. Each piece costs more than if you needed a lightbulb from the hardware store. And then we wait. And wait. And wait some more. Thankfully, we have a great durable medical equipment team and they order things quickly and efficiently as soon as I send a picture with the issue. But, it all takes time. Thankfully his chair isn't running around amuck running in to parked cars like it did last week though! What a life...the equipment for life - life. Thanks for all your support. It keeps Zippy zooming with a smile.
February 4, 2025
A huge thanks to all our donors! - Your donations made another huge impact in our lives. Zippy now has door open/closing independence! We Hear You Open Doors (https://wehearyouopensdoors.com/) has an amazing device, aptly called The Hero, that allows Zippy to use a push fob to open and close our back door! This has revolutionized the way Zippy gets around! THANK YOU!
Photo Galleries (5)
Guestbook
December 4, 2024
We love you Zippy!
Rommie Johnson
December 3, 2024
From Anna and Fuad!
Anna Sheikh
December 3, 2024
Praying big things for our sweet Zippy!
Kate Zost
