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Carl has been a hardworking cabinet maker his entire life and in 2020, he had been working more hours than he ever had in his career. At the end of October 2020 he tested positive for covid. He quarantined and was ready to go back to work to support his family. His niece, an ER nurse dealing with covid patients, mentioned he may want to get a pulse oximeter to measure his oxygen levels. He did so and realized his oxygen levels were in the 70s, even though he felt fine. He then went to a walk-in clinic, and they also measured his oxygen levels in the 70s. They called for an ambulance who delivered him across the street to the ER and he was hospitalized for 5 days.
Leaving the hospital he was on oxygen 24 hours a day, on low levels. Doctors were not sure how to proceed with treatment because they did not yet understand how covid affects the body. Finally after several months his doctors decided the best course of action was physical therapy. In August of 2021 during a physical therapy session in the hospital he had a small stroke. After that he continually needed more and more oxygen and was in and out of the hospital.
He was finally recommended to a specialist in Chicago, IL in May of 2022. Being on such high levels of oxygen is tough on Carl, and logistically almost impossible. His family took off work for many doctors visits, because the entire car had to be completely filled with oxygen tanks for a visit that would only last a few hours. After his consultation he was immediately admitted. He spent 7 weeks in the hospital 3 hours away from home. There he was diagnosed with Pulmonary Hypertension and was finally released on an infusion pump he must wear at all times.
His wife, Cinda, had to retire early to take care of him and had to go through training to change and administer the medication every two days, but were determined to do anything they had to in hopes that this would help heal his body. He was alive, but not able to fully live because he was bound to his oxygen concentrator and unable to get around much. A month after he was released he was admitted again at his first check up, his heart was getting stronger but his lungs were getting worse. The lung transplant team was then called in. After many days of testing, it is believed he has a very rare form of Pulmonary Hypertension, called PVOD and is in dire need of a double lung transplant. He is currently still in Chicago waiting for his transplant, and must be within a short distance of the hospital for at least 3 months post operation.
Carl loves to spend time with his family, his daughters Heather; and Erin (Charles) and their daughters Jocelyn and Gracelyn; and his son Travis (Charla) and their two sons Linkin and Maddox and wants to watch his grandchildren grow. After working long hours at a job he enjoyed to immediately having covid and no longer able to do the things he loves has been very hard on him and his children and grandchildren. Doing small things like attending church, going to his grandchildren’s sports games to taking them to the park have been nearly impossible.
Carl and Cinda both had to retire earlier than planned and they are in much need of help with all of these costs. During the long stays in Chicago, his wife Cinda had to stay in hotels and pay for meals as well. They have now found an apartment nearby, but the costs are astronomical. The cost of the apartment, all of the hotels and the cost of anti-rejection medications he will need afterwards which are not completely covered by insurance, are such a large burden they cannot financially afford.
Family and friends of Carl Allison are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.
Carl has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Carl is free at last! He had spent the last 302 days in hospital/in patient rehab! He is joining his wife Cinda Allison and sister in law Theresa Franz at their temporary(10 months so far) apartment in downtown Chicago! Now outpatient therapy 3 days a week until he is strong enough to go home to Indiana.
Please pray for this next step of figuring out medication/a routine getting around.
Need healing and strength prayers also.
So many praises!
Blessings to each of you!
We are praising God Carl finally made it to Shirley Ryan rehab in Chicago! So grateful to all the doctors, nurses, therapists and all who cared for him this past year at Northwestern. It was a long difficult journey thus far and now the hard work of rehab begins. Please pray for him as he goes through this process and remember the donor family in your prayers that gave Carl more time with us. All the prayers have kept us going. Thank you all!
Carl has been working hard on his strength and was able to walk down the hall yesterday!
It has been an awesome week for Carl, he has FINALLY gotten to eat, and today is his birthday and they celebrated with cake!!
Carl got moved at the beginning of the week to a corner room with two big windows and a great view. It helps him to have something beautiful to look at. He is finally doing better since getting infections under control. Awake more and able to be on a trach collar again for 4 to 6 hours which allows him to talk a little. Praying he gets stronger this week and able to do it longer each day.
He longs to eat or drink and it's not been possible since he got his new lungs last October. He will need to be off the vent for several days then he can work with speech therapy again to swallow. We are praying for this and for his diaphragm to strengthen. Thank you for praying with us!
We are still at Northwestern Hospital. Carl is getting some strength back and can stand with help to get up for about half a minute 3 or 4 times when physical therapy comes in. He is on a 6 week course of antibiotics for a bacterial infection. We have about 4 weeks left on that. His lungs are doing great, but his carbon dioxide levels are hard to manage because his diaphragm is weak.
He is still on a feeding tube, but it was moved from his nose to his stomach and intestine. The speech therapist should be working with him this week to work on swallowing so he can get to being able to eat something.
Please pray over these things. We are grateful for all the continued prayers and so grateful to God for carrying us through each day. He is faithful.
Update from Carl 1/3/23
Carl had a good week! He did not seem to be in much pain and was able to be off the ventilator during the daytime hours each day except Thursday. This is definitely good progress! We are praying that he will continue to be off the ventilator during daytime each day this coming week! He is mainly breathing on his own with a little oxygen help through the trach collar during the day. We believe this is what the respiratory doctors are looking for so Carl can move to the next step to get him off the ventilator. They are working towards getting it back to where he will be able to speak again soon. Keep those prayers coming!
Carl is still in the ICU, he has a trach currently. They have had to replace it a few times due to it not functioning properly. They have taken quite a lot of fluid off his lungs, which they say isn't totally abnormal. He has been using a trach collar for a little practice a few hours a day. More testing to figure out why he has trembling and hot flashes, he's still hanging in there!
Friday night Carl had stood up with much help during physical therapy, even lifted his feet in place. Passed the swallow test enough to have his first soft bites of food. That night he went into cardiac arrest, he is currently on a ventilator once again. He is breathing pretty much on his own but getting rid of the co2 when he sleeps is causing heart problems. After much discussion with doctors they feel the best thing to do at this time is to put another trach in. It should be a smaller trach than before. Talking will come after healing from Surgery hopefully just a few days.
Surgery will be this afternoon if everything goes as planned.
Thanks for all your prayers! It helps us so much knowing we have prayer warriors!
Carl is off the vent and has had the trach removed! He is on very low amount of oxygen via nose canula and has a bipap at night. He needs prayers to help him learn to swallow again and regain strength! We pray he will get strong enough soon to go to a rehab that is across the street from Cindas apartment. Keep those prayers coming!
Carl is doing well but is still working on getting off the vent. His goals now are to get off the vent, be able to swallow, and get stronger. He has upped his time daily on the vent this week, which is positive.
Doctors at Northwestern want him to be vent free and be able to stand or walk shortly. If not they may move him to another hospital that can give him more physical therapy than he is getting. Doctors are trying their best to push that date back, prayers are appreciated!
Carl received his new lungs on 10/11 and they are doing well! There was a bit of a setback, his heart was struggling and he had developed bacteria in his kidneys. They got him on dialysis temporarily to clean his kidneys out and his heart is doing a little better. Yesterday he had to have a surgery to clean out his chest cavity, it had some bleeding but seemed to have stopped and they put in a trach so he could get off the vent. He did so great today and got to sit up for the first time since before his transplant and got to stand assisted a few times too! This man is strong, we appreciate all the prayers and financial assistance! We are blessed!
Carl is out of surgery and doing well!! Continued prayers for healing!!
Carl is currently in surgery getting his new lungs!!!
Carl has finished radiation and has OFFICIALLY been listed for his double lung transplant! Thank you to everyone for your prayers and financial donations! We can not do this without you!! Keep praying for patience and for the prospective donor and their family.
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Thinking of you and your family!
Jordynne Shelton
Continuing prayers!
Sending our Love!
Mark and Theresa Franz
Praying for strength and healing!
Beverly Grubb
Praying for a quick recovery! We love you all!
Rachel and Jack Marshall
Rachel and Jack Marshall
God be with you Carl! He already is because He gave you these new lungs. Step by step, sometimes forward, sometimes back, He is with you on this journey. He has specifically gifted you this assignment to serve His purposes for His plan for your life. Don't waste a moment!
Cynthia Leman
Get well soon! You and the family are in our prayers!
Love,
Dan, Jessica, Logan, and Dorothy Baxter
Dan Baxter
Lifting up many prayers. Standing with you.
Anonymous
Thoughts and prayers are with you all!
Timothy Jean
Carl & Cinda, you are in our prayers. God is holding you close. He is our strength and hope.
Randall & Lisa Sperry
Your family has been prayed for!
Amy Chenault
Praying for you Uncle Carl!
Alicia Sperry
Thinking of you and praying for you and your family.
Love
Tom and Jane Jean
Tom and Jane Jean
Praying for you & your family, and looking forward to seeing you at church soon.
Shirley Leung
We are thinking of Carl, Cinda and family, praying that things go well and the transplant is successful.
Tim and Cathy Severson
Cathy Severson
Donation by Bert and Dorothy Borden who are praying for the family!
Bert and Dorothy Borden
We continue to pray for you Carl and Cinda. We are praying for the day you walk into church a healed man. God be with you.
Dale & Becky Phenicie
We are praying for you, Uncle Carl!
Elizabeth Rodewald
Thinking of you & sending prayers every day.
Lisa Colwell
Get well soon!
Austin Castro
Sending love and prayers for Carl, Cinda and family.
Ladell & Carol
Carol Franz
You and your beautiful family have been through so much in the past couple of years. You have been so strong and fought through this time together and your faith has kept you going.
God's comfort and strength will also keep you going through this next journey on the road to being able to enjoy life again.
Sending love, hugs and continued prayers. We love you all so much!
Christine Schwartz
We love you! Praying everyday. - Tyler, Kelsey & Theo
Kelsey Canan
You got this Carl. My man doesn’t quit til the job is done. That’s a fact. I’ll see you soon.
Brett Irle
Hi Carl. Sorry to know you are going thru this. You were my cabinet making neighbor for 20 years. Hoping for a full recovery.
Dwain Pate
Praying for you dad with all my heart!
Heather Allison
Praying for healing!
Mariah Hird
Praying for the entire family!
Lord please bless Carl with many breaths of fresh air through new lungs!
God is good!
Mark and Theresa Franz
Love you dad, praying you get the double lung transplant soon and can start living again!
Erin Harmon
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Carl E Allison
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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