July 15, 2023
Xoxo
Anonymous
July 11, 2023
I love you so much Brenna, you impact more than you realize. I am such a lucky friend, I love you so much, and I hope that this surgery can help your quality of life significantly. Dearly from your goosely little sibling :)
Anonymous
July 11, 2023
❤️❤️
Kody Drinnon
July 11, 2023
Best wishes to you Brenna ❤️
Lindy Gerlach
July 10, 2023
Send lots of healing prayers
Torri Gambacorta
July 10, 2023
I’m so excited for you! I know you’re beyond tired, but you’re so close ❤️ hugs!
Kody Drinnon
July 10, 2023
Good luck, Brenna ❤️
Anonymous
July 8, 2023
Love you Brenna! ❤️
Mar Valle
July 6, 2023
You got this Bren! Xoxo
Rachel Wilks
July 2, 2023
Good luck!!!! <3
Anonymous
July 1, 2023
I love you!!
Leea Port
June 14, 2023
Just a little something extra to help you reach your goal of 15k today! Really wanting you to be able to get the surgery you need, my beautiful cousin. Love you!
Jana Banana
April 23, 2023
Love you xx
Keep on keepin on!
Rachel Wilks
April 19, 2023
We are wishing you the very best and sending you so much love and healing prayers.
Tammy Maxwell
April 16, 2023
Brenna - wishing you so much love and happiness and all the best!!
Francesca D'Andrea
April 14, 2023
We stand with you fam!
Loomis UCC
April 12, 2023
I hope you get the care you need soon and have an uneventful recovery!
Anonymous
April 3, 2023
Prayers for lots of "good" days while you await your surgery. Love you!
Anonymous
April 2, 2023
<3 <3 <3 <3
Emily DeMaio
April 1, 2023
Hoping you are able to have this surgery to help your symptoms and pain!
Jana Kandoll
March 31, 2023
Love you!
Rachel Wilks
March 28, 2023
Love from Ariel and Hazel ❤️
Ariel Pooley
March 20, 2023
Hoping and praying for you and your family, Brenna <3
Hannah Hill
March 19, 2023
Prayers over you in this healing journey and for the Lord’s hand over you through it all!❤️
Janae Hannu
March 14, 2023
Our thoughts and prayers are with you in this healing journey!
Sara Tapio
March 13, 2023
Sticker funds!
Aspen Kelly
March 11, 2023
Pray all goes well.
Gloria Brangman
March 9, 2023
We love you and we're praying for you Brenna!
Anonymous
March 5, 2023
Wishing you all the best in your treatment and recovery. You got this!
Anonymous
March 1, 2023
Love you!
Amalia Traffie
February 24, 2023
I love you so much Brenna!! I know in my heart you will raise the funds that you need for this surgery. We’ll all be praying along side of you until that day comes, then we’ll be praying for a perfectly successful surgery! ❤️
Meleah Kandoll
February 18, 2023
Praying for you Brenna! Here's a little something to get you closer to you goal Hun! Love you miss you !
Shannon Seppala
February 17, 2023
Sending love and prayers ❤️
Anonymous
February 4, 2023
Here’s to getting you a little closer to your goal. Love you so, so, so much, Bren!
Kevin Diemert
February 3, 2023
Brenna! Good luck on your healing journey
Malia Funk
January 31, 2023
Great to hear you've found a surgeon! Best of luck Brenna!
Mimi Tran Zambetti
January 31, 2023
Brenna,
Since we used to enjoy so much worship music together it seems only fitting that I share some inspiring lyrics from a new song I've been listening to, It's called In Jesus Name and the chorus goes like this-
I pray for your healing
That circumstances would change
I pray that the fear inside would flee in Jesus name
I pray that a breakthrough would happen today
I pray miracles over your life in Jesus name.
I Love you and think & pray for you often,
Laurie
Laurie Sanchez
January 31, 2023
Best wishes
Carline Beck
January 31, 2023
❤️❤️❤️
Anonymous
January 30, 2023
Brenna I am so sorry you have been dealing with all this. You are in my daily prayers. Praying for a Miraculous Healing on your body. Miss you so much here in Toutle. Love Hugs and lots of Prayers. Jackie G.
Jackie Grenier
January 30, 2023
Here’s the article you wanted me to post Brenna!
All your joints hurt. Ice won’t make it better. The painkiller won’t kick in for an hour. It’s constant aching, burning pain. This is what people with Ehlers-Danlos Syndrome live with before they’re diagnosed. Even once they are, flare-ups like these can last days, months, even years.
I’ve met people who have this, and it’s not only painful, but also unfairly difficult to get treatment for it. There’s no cure, as it’s a genetic disease affecting connective tissue. Doctors also haven’t learned much about it because it’s rare.
Most people get diagnosed at roughly 10-12 years old, but many aren’t officially diagnosed at all or are diagnosed at a later age since doctors have trouble identifying it. Even though it looks like some other diseases in terms of general symptoms, there are very unique symptoms that make it possible to tell if doctors knew about it. Brenna Ann, a woman with EDS, said, “I’ve had chronic issues my whole life, so it took 22 years for me to get diagnosed.” Flare ups can be caused by not giving your body the rest that it needs, so living undiagnosed for that long means that she was living in pain for 22 years.
Not only is it a problem that nobody knows about it, but insurance companies won’t cover the treatment for it because it’s so specialized. In daily life, treatment is limited to managing pain. The most effective treatment is usually an expensive surgery. But since it’s categorized as a rare disease, like many rare diseases, it’s not covered. Even though arguably, it’s more important for the treatments to be covered by insurance for a rare disease as they are often more serious and/or debilitating. “I have a doctor now that will treat me, but the cost up front is 52,000 dollars. Most people with Ehlers-Danlos Syndrome do not get any treatment unless they are rich or have access to a large community willing to help,” says Ann.
The last large problem that many people with EDS face is discrimination from the community. Ann was faced with people telling her that it wasn’t real, that it was a demon, and that she had unconfessed sin. She was told to get out of bed anyway, that her diet, supplements, exercise or any aspect of her lifestyle needed to be changed and it will go away. It’s a genetic disorder, so none of these temporary treatments will work. Dylan Kandoll, Ann’s cousin, also has EDS and has faced people telling him that it’s all in his head, that he’s just making excuses, lazy, or that it has to be something else because it’s a rare disease so it can’t be EDS. All of these come even after an official diagnosis from a doctor. These are things that they, and many others, have been told by family and friends. Not just random people that hear about it on the internet.
Obviously there is a problem with this, but me ranting about the problem won’t fix it. So what is the solution? It only takes about 30 minutes to learn the signs and symptoms of EDS, so doctors could at least have a disease specialist come in and talk about it so that they can diagnose it even if they don’t know how to treat it yet. The diagnostic criteria is only a page long, so it could easily be done as part of a regular physical or in high schools as part of sports check ups. This would dramatically increase the knowledge and diagnosis rate. Maybe there won’t be more specialists to help treat it, but there could be more awareness and possibly enough people with it to become covered by insurance. And the biggest thing that we can all do is not discriminate against those who are going through a chronic illness. If you’re going to suggest something for treatment to someone close to you, at least do some brief research with a reliable source on what treatments actually work and which ones don’t or could even harm the person.
Laura Brouse
January 30, 2023
Love you Bren
Kenna Aichele
