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River and his new liver need your help!

River(13 m.o.) was born with a very rare metabolic disorder called Maple Syrup Urine Disease(MSUD). He was diagnosed on his newborn screening and we are so lucky he is still here and with no brain damage! Since he was diagnosed at 6 days old, he has had to be on a very special protein restricted diet, have blood drawn fairly frequently, be seen by metabolic and genetic specialists, and always has been at risk for metabolic crisis which can result in brain swelling, coma, or death.

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Guestbook

December 4, 2022

We’re sending all our love to your beautiful family. May healing find you in every way.

Rebecca Bean

November 29, 2022

River, you have great things ahead of you. My heart goes out to you and your family.

Gabi Munoz

November 29, 2022

all my love to you and river

mackenzie smith