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Our daughter Riley was born with Spina Bifida, a complication in the spinal column which caused hydrocephalus and a lack of sensation below her knees; and Turner’s Syndrome, a separate and unrelated complication which led to a heart defect at birth and short stature. After being born, Riley had three surgeries on her back, heart, and brain in her first month of life. Riley has been stable since, and we are grateful! However, as Riley has grown to be seven years old, her lack of sensation in her legs has continued. As a result she uses a manual wheelchair for her mobility, in addition to other medical equipment to aid with standing, walking, transferring, toileting, physical therapy, eyesight, etc. While Riley’s boundaries are being removed day by day and her horizon remains wide ahead of her, she will likely need a wheelchair, other equipment, occasional surgeries, and other aids to ensure she can thrive as a young girl and later as an adult.
Riley has been blessed with not only stability, but also a MAGNIFICENT, infectious, hopeful, and genuine personality. Riley has the sunniest outlook on life, and though she has walked a difficult path as a (now) seven-year-old, she is always looking forward with a glint of hope. She has expressed a desire to be a banker, a boss, a restaurateur, a hotel owner, and other things! She even hopes to live on a farm someday where she can care for animals. Riley loves playing with her dolls, watching shows, dancing to music in the living room, and being with her friends and family. She’s also involved in adaptive dance, baseball, and is taking swimming lessons! Riley is a hard worker, and yet is always present and ready to make a card for a friend who is sad. Riley is a joy to be around, and has the best belly laugh you’ve ever heard (with a witty sense of humor to go with it!).
Near-term, the most immediate need we have as a family is to purchase a wheelchair accessible van for transporting Riley to school, appointments, and her favorite activities. After that is obtained, all other funds will go toward expected 2023 expenses including a new wheelchair, a bladder surgery and recovery (likely out of town), orthodontia (to help correct her airway for better breathing), physical therapy, and other medical expenses. Long term we hope to purchase a home and modify it to be ADA accessible so Riley can access as much of the home as possible.
Riley is the ministry we have been given by God to pour our lives into for the next fifteen years and beyond. Donating to Help Hope Live will allow us to invest as much as we possibly can to care for her and ensure she can thrive both now and in the future, while being free from the anxiety and stress that comes from such large expenses. Thank you so much for your partnership in this ministry of ours for our girl. We are grateful for each and every one of you.
Blessings,
Josh and Sarah
Family and friends of Riley Drury are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.
Riley has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Wow wow wow wow wow! We are blown away by all of your generosity to Riley! I wanted to report that last night we were able to bring home our new accessible van!! Riley LOVES it and is thankful she can see out the windows! (a big reason we picked this one out) Our prayer is that this vehicle lasts a LONG time and takes Riley to places she has never imagined (like, maybe Yellowstone? ;)
This has been such an answer to prayer for us, so thank you for participating!
As a reminder, all gifts over the stated goal are going towards a new wheelchair next year and a probable surgery for Riley in the Spring. We'll keep you updated!! Until then we pray you have a blessed holiday season!!
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Go Riley!! Love, the Dickeys
John Dickey
We love you guys!
Patrick Drury
Go Riley! Love watching God work through you and on your behalf. We’re honored to call you our niece!
Brittnay Casey
Love ya Josh. You’re a good man and a great father.
Anonymous
Blessings to your sweet family. Riley is a very lucky young lady to have such loving and supportive parents. She will do great things!
Carrie & Bob Doyle
Love y'all!!
Chris Tuttle
Hey Josh,
In 2016, my wife and I lost a Turner Syndrome daughter, and it turned out to be a great ministry tool for us. Here’s to supporting your ongoing ministry. She’s beautiful.
Blessings,
TJ and Ansley Benson
TJ Benson
Love and believe in the best life for you and Riley!
Jonathan Spainhour
Love y’all so much!
Christen Carter
We will continue to pray and stand with you in all of your decisions and love for Riley. I hope all of her needs are met and your financial burden is just a bit lighter! Love you.
John and Leah Casey
Go Riley! Love y’all
Haley Lane
Hope this helps!
Anonymous
Praying for y’all continually
Megan Herring Strickland
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Riley Kate Drury
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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