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The Story of Baby Scarlett Rose

Newlyweds, Annie and Ryan Landefeld, were delighted to discover they were expecting their first child just weeks after their September wedding. On June 20, 2009, they welcomed a healthy, beautiful baby girl, Scarlett Rose, into the world. Scarlett passed all newborn screenings with flying colors. Beginning around 10 weeks of age, they noticed that Scarlett wasn’t moving her legs, arms and head as much. She appeared to be floppy. They knew that something wasn’t right so they decided to seek the help of a Neurologist. On September 11th, after extensive medical testing, they were given a devastating diagnosis of SMA Type 1 (www.fsma.org), which stands for Spinal Muscular Atrophy.

Updates (1)

June 9, 2020

Hello,

If you would like updates on Scarlett please visit her Facebook page Scarlett’s Hope. We update her page several times a week. She continues to fight a battle against SMA Type 1. With the help of donations through Help Hope Live we have been able to cover a lot of her out of pocket medical expenses that are not covered by insurance. We continue to have high medical costs associated with her care. We greatly appreciate your help!

Thank you,
Annie and Ryan

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