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Scarlett is 15 years old and her motto for life is NEVER GIVE UP. She suffers from a rare disease called Spinal Muscular Atrophy (SMA) Type 1. Scarlett will never be able to walk, stand, sit, eat, breathe, or move her body without assistance. Scarlett faces a difficult battle and requires extensive medical support. Most SMA babies do not live to see their 2nd Birthday, but Scarlett continues to beat the odds. Her mind and spirit are unaffected. She dreams big just like any other girl her age. She uses a special computer with her eyes to communicate. She loves going on outdoor adventures with her parents, dance parties with her nurses, and always asks to wear a big hair bow. (Select “see all” to continue reading).
A fundraising campaign has been established with Help Hope Live. Help Hope Live is a non-profit organization. Donations are fully tax-deductible. All contributions are administered by Help Hope Live.
Please consider donating to support Scarlett Rose. As William James once said, “Act as if what you do makes a difference. It does.” We greatly appreciate your support and help!
Thank you,
Annie and Ryan
If you have any questions, Annie can be reached at alandefeld@me.com
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In support of Scarlett Rose, in memory of Susan Wenker, from Bev & Mike Porter, parents of Meghan Porter Chute, Nicholas's wife.
Beverly Porter
To Scarlett in loving memory of Susan Wenker - grandmother and soon to be great-grandmother of our baby boy.
- Nick and Meghan Chute
Meghan Chute
The Parker Family of New Richmond, OH, wish to support our sweet cousin Scarlett and others in need, in honor of her loving grandmother Susan Wenker, recently deceased whom we hold in our hearts.
With love to all the family, and hope for healing and joy.
Pamela Rosenbaum
In memory of Susan Wenker
Ben & Josie Sampang and Family
In memory of Susan Wenker with Love from the Wagners
Anita Wagner
Sending our deepest condolences to Susan’s entire family. Our family will keep you in our prayers,
Love, Lisa, Joey, Layla and Lucas
Lisa/Joey Jordan
In memory of the most loving human being I have ever known, Susan Wenker
Anonymous
In loving memory of Susan Wenker on behalf of Phoenix Children's Audiology <3
Lynn Eyde
From the calafiore family . Wish you the best for your new van and continued good Health for that Beautiful princess.
Chris Calafiore
Go Scarlett Go! You are beautiful!
Craig & Casey Sommerfeldt
We love you Scarlett and Family! Never Give up!!
Kacey Farrell
Go Scarlett Go! I hope you get to go on the most amazing road trip in your new van!
Jamie Horton
Keep up the good Job Scarlett and family!
Grandpa
Stephen Phillips
I hope you all will love your Ford Transit as much as we've loved ours. Total game changer! Good luck with the fundraising. Hugs and safe travels for the future, Amy and Colby
Amy and Colby Bagshaw
Prayers for you to reach your goal
Ron Simms
Sending love and blessings. Paul and Linda Hinson.
Paul and Linda Hinson
Scarlett you are so strong and beautiful. We Love you. Aunt Corrie&Uncle Gavin
Gavin Hays
Scarlet is our neighborhood hero. Merry Christmas from the Cevasco Family
Dan Cevasco
Best wishes! Love from Kate who is in Cincinnati too!
Jennifer Magato
Merry Christmas! Best of luck reaching your goal.
Betsy Knecht
Prayers to you for reaching your goal. You are such wonderful parents .
Nancy Shumaker
Love you Scarlett more than you can imagine
Tom Wenker
Sending love to all of you ❤️
Lesle Zayat
Scarlett was in my daughter’s class virtually at Madeira Elementary and I think of her often. I love the adventures she’s having and I hope this helps you continue with those!
Judi Ketteler
Love you neighbors!
Best,
Morgan & Josh Hinson
Morgan Hinson
I'll share your fundraiser with others. I hope you hit your goal very soon! I really admire your family's strength and determination. Go Scarlett!
Helen Asbury
Merry Christmas Scarlett
Randall Wenker
God bless you all.
Anonymous
Keeping your sweet girl in our prayers!
Heather Capallo
Merry Christmas to you all! We love seeing updates of Scarlett.
Stephanie Hazinski
Much love ❤️
Jacque Graham
We love you Scarlett and Annie!
Jana Gundy
Hope you can get your Van soon Scarlett!
Kyley Howard
Keep having fun Scarlett!
Xoxo
Maria McLaughlin
God Bless Scarlett! Annie & Ryan you are amazing parents and we are so excited to get you this van!
Doreen Corrigan
Sending our love and support to Scarlett Rose and her family.
Rob and Anita Wagner
Scarlett, you are a light in all our lives! Let’s get you your new van! ❤️
Jill Gliha
Scarlett, you are an inspiration!
Pat,Libby, Allen and Cooper Beiter
Elizabeth Beiter
Dear Ms. Scarlett Rose,
What an awesome video - you really get out and about! I pray that you will receive a Christmas Miracle - A Lovely Van for your lovely, amazing self! Although we have not met, your Uncle Matt shared this campaign with me and I hope to meet you one day! Love and blessings to you sweet girl! God Bless you.
Love,
Melissa
Melissa Chen
Scarlett, wishing you all Gods blessings.
Beautiful Girl
Mary Perri
In loving care of miss Scarlett Rose
Anonymous
In support of Scarlett Rose Landefeld, together much can be accomplished.
James Gagermeier
Scarlett & Family: We saw the post on MM&F and were moved by you all, especially you, Scarlett! <3 The Del Cid Family
Jessica Del Cid
I hope and pray for a Christmas miracle to get my Scarlett a new van.
Peggy
Margaret Moser
From a fellow Flyer Alumni and friend of TJ & Jill Gliha’s, please know that your family is in my prayers.
Connie Rustad
Lots of Love!
Kelly and Hamilton Family
kelly hamilton
God created us for loving our neighbors. Thank you for allowing me to love on you a bit today. May God bless you and keep you until you meet him face to face!
Anonymous
Keeping Hope and her loving family in my prayers.
Margie Winterhalter
Much love to Scarlett and all those who love her!
Hector Ramirez
Praying for your family and that you receive the van!
Thank you for sharing Scarlett with us! ♥️
Jennifer Perez
Such a special video with so many memories. Pretty incredible to see how much you all have done. May God bless you and your daughter.
Kelby Dreisbach
Love you Scarlett
Anonymous
Sending love and blessings!
Peyton Callahan
Any friend of the Gliha’s is a friend of ours. Especially a beautiful, vibrant, strong girl like Scarlett. We are also partial to girls whose middle name is Rose, as that is our daughter’s middle name as well. Keep fighting Landefeld family, you’re an inspiration to those that know you and people like us that are just learning your story!
Noah and Kelli Rothman
You both are incredible parents and are doing an amazing job! Sending so much love to you and Scarlett!
Jessica Dana
Keep filling the world with hope. You are beautiful and a gift from God.
Anonymous
Go Scarlett
Anonymous
Keeping you all in our thoughts and prayers.
Rob & Angela Reindl
Robert Reindl
Sending warmest wishes to Annie, Ryan, and Scarlett and remembering Scarlett's grandfather and his love for Scarlett.
Laura Bickett
In memory of Donald Wenker and also in honor of Scarlett Rose Landefeld.
Robert & Anita Wagner
In memory of Donald Wenker.
Many condolences from Jordan Family.
Love, Lisa, Joey, Layla and Lucas Jordan
Lisa Jordan
Thinking of your family.❤️
Natalie Drake
Our thoughts are with the Wenker family during the loss of Grandpa Don. Annie, Ryan, and Scarlett, you are always in our thoughts and prayers.
Love,
The Helfrich Family
xoxo
Renee Helfrich
Our donation from Herb and Monica Blackburn is for the remembrance of Don Wenker. He was a good and gentle man that I had known through New Jerusalem Community. He was delightful to discuss faith and family. He was very inviting about his personal faith journey about Jesus in his life that inspired me in my faith walk. Herb
Herbert Blackburn
Annie, your strength, dimples and sheer magnetism have brought you a curious beautiful daughter. Ryan is so lucky to have 2 wide eyed ladies to adore him.
Always love
Mary
Dear Scarlett,
I don't know you yet but hope to meet you some day very soon. I know my Mommy and Daddy love you very much and think about you all the time. I sent a surprise to NTAF for you and I hope that it helps you.
Love your new little buddy,
Baby Jacob Shorr
Jacob Shorr
Happy Valentines Day Scarlett Rose! Hope you all have a blessed year. I pray daily for your family and that god gives you all the strength you need to get through each day! God Bless and may god keep a light around you! XOXO- Jennifer and Evan
Jennifer and Evan , H-Town
My heart is filled with Hope for Baby Scarlett and her parents. What a beautiful family and a touching story! Your courage is clear and it is inspiring.
The struggle you face is so real. It is a gift to me to have a tiny part in helping. My son, David, was unable to receive the stem cell transplant for which we raised funds during his battle with Stage IV lymphoma. "Big Dave," 6'10" (with a heart to match), at age 25, died in June. He would be so, so pleased to see the pictures of this precious baby knowing he was actually able to share a bit of his love with her through an NTAF challenge grant.
Those of us who have a part in continuing the legacy David created, "Big Dave's Big Gift," are thinking of and praying for you today and will be always. Please feel free to contact us at any time. We care.
God bless you.
Suzanne Turner, Durham, NC
Praise the Lord! You're all together in your own cozy home. Stay in the moment...each moment is full of love and joy. Scarlett is a sparkling reflection of the love you have for one another.
Hugs from the Brownings,
Bob, Sharma, and Ryan
Sharma Browning, Cincinnati
Dear Sweet Scarlett Can't wait to play "this little piggy went to market" on your sweet little toes again. Gramma Suzie love you very much.Dear Scarlett you get prettier every day. Love Grandpa Don.
Grandmom & Grandpa-Cincinnati Ohio
Hi Scarlett and family. I have just learned of you. I will be praying for you and sending your story out to friends and family. God Bless you. I thank Paul Rosenberg for sending me your story, I promise to keep it going.
Debbie (Tyler and Joseph) Smith, Las Vegas, NV
Lifting prayers up for you Scarlett and family. My daughter has been keeping me informed and thinks the world of the entire family. My daughter is Stephanie Buehler Daphne, Alabama.
Debbie Rivers
Hang in there Scarlett! We're all praying for you. Happy four month birthday today! Hugs and Kisses.
Aunt Wendy/Cincinnati
We are rooting for you Scarlett! You can do it! Tell Mommy & Daddy to be strong, I know it is hard.
Hillary Schmid
Hello Scarlett! We are praying for you and your Mommy and Daddy each and every day! You are such a beautiful little baby girl inside and out! Hang in there, Honey! Love, Kelly
Kelly Lime/Phoenix
Scarlett is always in my prayers!
Hector Ramirez Northridge, CA
You are in our thoughts and prayers daily!! You have the most beautiful smile - We have all your pictues on display on our "Prayer table" for 1st grade PSR - the kids love you, too!!
Kathy Buchholz/St. Louis Missouri
We love you baby Scarlett.
Aunt Corrigan & Uncle Matt, Cousins Holden and Keaton, Las Vegas
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Scarlett Rose Landefeld
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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