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The Story of Baby Scarlett Rose

Newlyweds, Annie and Ryan Landefeld, were delighted to discover they were expecting their first child just weeks after their September wedding. On June 20, 2009, they welcomed a healthy, beautiful baby girl, Scarlett Rose, into the world. Scarlett passed all newborn screenings with flying colors. Beginning around 10 weeks of age, they noticed that Scarlett wasn’t moving her legs, arms and head as much. She appeared to be floppy. They knew that something wasn’t right so they decided to seek the help of a Neurologist. On September 11th, after extensive medical testing, they were given a devastating diagnosis of SMA Type 1 (, which stands for Spinal Muscular Atrophy.

Updates (4)

January 19, 2016

Scarlett made a little cameo in Cincinnati Children’s Holiday video.

January 19, 2016

Sorry for not updating sooner! I try to update her Facebook page often so you can see updates there (Scarlett’s Hope). Thanks for following our journey!

Photo Galleries (1)

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