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Ken Sims, who’s been battling hereditary Cardiac Amyloidosis for 2 very long years is now ‘Rounding the Bases Again!’ After receiving the Gift of Life: a new heart August 30, 2023, he’s ready to play hardball – against Amyloidosis! This is, and always will be, a lifelong battle. There is no 9th inning! Ken for the rest of his life will battle Amyloidosis… and fight the fight of a transplant recipient. Ken longs to be the man he used to be – tinkering around the house, working, taking day trips, even catching a baseball game when he can. It’s been an extremely difficult journey, for us both. And, need I say, COSTLY. We are fighting with everything in us FOR HIS LIFE.
Fundraising is a vital part of our journey. It assists Ken and our family with expenses incurred both pre and post transplant, as well as in managing the Amyloidosis. Please donate to Help Hope Live in Ken’s honor today, and ask your friends and family to give, too. Every dollar raised helps immensely. Without you, walking this journey with us, this wouldn’t be possible.
Thankfully God saw fit to walk with us when we needed it most. And we hope he continues to do just that. Ken’s goal is simple – to be the man he used to be, living his life as normally as possible.
** Family and friends of Ken Sims are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation. Ken has chosen to fundraise for
Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800-642-8399.
The first day we've be dreading. We knew this was coming. But still not ready. We spent July 4th in Phila, at Jennerson. Ken had a catheterization scheduled for July 5th. That day, the 5th, we learned his cardiac output had severely declined and his heart wasn't pumping effectively, thus not getting enough oxygen to his lungs. They wanted to admit him, but ultimately gave him a week to get everything taken care of and to be back, prepared for hospitalization until he receives a heart. His status on UNOS hopefully will be upgraded from a 4 to a 2.
Ken and I had a great vacation in June of 2023 in Ocean City MD. Few minor adjustments to be made, but knowing what's coming down the road we are choosing to make as many memories as we can.
Ken has finished all of his pre eval testing, and has, as of today, officially been "listed" on the National Transplant Regisry.
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To Kenneth & Susan
May you find strength and hope during this challenging time. I pray that blessings of support and abundance come your way, easing your burdens and lighting your path forward. You are not alone, and I hope you feel the love and care of those who stand with you. Wishing you brighter days ahead and all the resources you need to overcome this moment. Stay strong.
Kenya Walker
Hope this bit helps. I have been keeping you both in my prayers. Blessings and love sent your way.
Jennifer Demaree
Sending much love and strength ❤️❤️
Daniella Gordon
Love you guys❤️
Michele Perkins
Praying for you all.
Jennifer Demaree
You and your family are in our prayers..
Suzanne Edwards Smerdon
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Kenneth Sims
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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