MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
Ron has always worked hard to support his family but in 1990, he developed heart disease. Since then he has had multiple heart attacks, pulmonary embolisms and other heart related problems. In August, 2012, he was referred to the Philadelphia University of Penn Hospital. Ron was to have an ablation in March 2013 but crashed on the table so his doctors decided he needed to have the ablation and a LVAD implanted at the same time. Ron underwent this procedure in May, 2013 but only a few months later his LVAD developed a blood clot in the pump. He was rushed into surgery to replace the pump but doctors decided the only option left for Ron is to have a lifesaving heart transplant. He was put on the list. We are waiting for that call at any time.
But we need your help! The cost of transplant surgery itself is staggering. The cost of survival is even more expensive. Post-transplant medication alone will be from $2000 to $3000 a month. He will have to take these medications for the rest of his life. Yes, he has insurance but the copays and deductibles will still be several thousand dollars a month. Ron needs me as a caregiver to be home with him at all times making it impossible for me to work. I quit in June 2013 when he came home from the hospital and doctors instructed us that he cannot be left alone. This has decreased our income drastically.
Due to the astronomical expenses associated with heart transplantation, a fundraising campaign in Ron’s honor has been established with HelpHOPELive, a nonprofit organization that has been assisting the transplant community for 30 years. All donations are tax-deductible, are held by HelpHOPELive in the Mid-Atlantic Heart Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. Please consider a donation today.
Thank you in advance for your consideration in our desperate attempt to give Ron a second chance at life; a second chance to see his grandchildren grow up; a second chance to grow old with his wife Pat.
Ron and I thank you for your generosity, support and all your prayers.
Patricia Lawrence (717 225 1762)
It has been a trying few months for Ron and I. He has been in and out of the hospital with all kinds of complications. He just came again from the hospital where he was being treated for over 30 pounds of fluid retention. They cannot find out the reason for him retaining the fluid even though they did every test imaginable. He is working on losing 5 pounds more of fluid and they will reduce the fluid meds. I am praying that with the reduction, he will not start retaining the fluid again. Please continue to pray for him as this also causes him to get down. Thanks for your support in everything.
Ron had a scare last Thursday. Doc called from Philly and thought he might have a bleeder going on. So we went out and he was admitted. They did all kinds of tests but found no bleeders. Thank God!!! We came home Saturday night and he is doing good. He is still having trouble with fluids and I am waiting for doc to call back. They will probably increase his fluid pills again.
Ron is doing good. Being he was confined to bed for 7 days after surgery, his legs are weak. He is working very hard to overcome this. The doctors say he needs more intense therapy to gain his strength. They are sending him to inpatient rehab on Friday. Please continue to pray for him.
A GOOD NEWS UPDATE- We are pleased to share our news that Ron received his Gift of Life - his heart transplant - on Wednesday, March 13. Thank your for your support of our continued need to fundraise.
Ron is still having problems with his fluid retention. Doctor says he is on 1A indefinitely due to the VAD complications he just had last week and his LDH numbers still being higher than they should. Please continue to pray for him that he doesn't have more complications and they call soon for his transplant.
Thanks to all for prayers and donations!
No news/call yet. Still waiting but he is holding his own.
Happy New Year, everyone!
Ron is back on 1A due to his LDH numbers rising again. This is what caused the clot in the first VAD. Praying that doesn't happen before he gets a new heart.
Thanks to all who helped with candy sale and to all that bought them!
Ron is having possible complications. He is going to Phila. on Monday the 12/23/13 for a right heart cath. The transplant team has upgraded him to 1A again due to his LNH and hemoglobin numbers are rising. Plus he has had his second VAD already. We are praying it will be soon for his surgery to have a new heart.
Thank you to everyone for your prayers, support and monetary donations!!
Candy sale was a big success! Thank you!
Chocolate candy bar sell is going great!! Thank you for purchasing one. If you haven't and would like to buy one, see family or Deb Caudle.
Ron has used his 30 days as a 1A and has been moved to 1B group now. Doc says he is still up in the ranks since he is on his 2nd VAD and his condition of his heart. We are still waiting for the call for surgery. They said it could be soon or up to 8 months on average.
Ron is doing better. He had pneumonia this past 2 weeks. Lungs are clear but he still has a cough.
We are having a chocolate candy bar sell as a fundraiser. There are 4 kinds and $2. each. Deb Caudle has arranged for the fundraiser and is doing a great job with it. Anyone want to help out or buy some candy, see Deb or Pat. Also, Gift Rite Way in Red Lion PA is selling it for us. Stop in the store, look around and buy a candy bar!
Deb Caudle 443-223-1979
Pat Lawrence 717-225-1762
Thank all of you that have made a donation to help with all the medical bills. Thank you for your prayers and support.
May everyone have a wonderful Thanksgiving with family and friends!!
Ron went to ortho doctor on Wed. His muscles in his left knee are very weak. Doc said that the replacement knee is looking good but the muscles are weak. This is caused by all of his episodes this year. As he got weaker, the muscles got weaker and it hits that area first since it has been operated on before. He is to do exercises but will get the strength back in the leg.
He is doing great on his treadmill walking daily as instructed to build up all his body strength.
My second LVAD has been working just fine.
GOOD NEWS !
Just got the call that I have been moved up to 1A on the transplant list. This means that I am on the top fo the list.
10/18/13
Ron had a good report from the doctor on 10/15/13. He is getting stronger in body which will help him in transplant surgery.
Ron is able to walk again on his treadmill which he enjoys doing. He is happy to be able to do this again. He is averaging about 15 minutes at this time. This gives him some exercise to help keep his weight down.
Ron has lost 60 pounds this year so far and is keeping it off. This is needed for surgery too.
Thank you all for your support in prayers and funds.
Last one is to say Ron, not tom.auto correct love you guys
ashley merriam
Pat and Ron.you know I love you both like you are my own family and I will spread the word on this and hope and pray people can donate.tom you are the strongest person I know hang in there, this wool happen for you, youwill have a new heart
Ashley merriam
Pat and Ron, my prayers are with you. Things will get better, have faith. He is too tough and ornery!!!!!!! Love and miss you both.
Teresa Shirey
Ron, you are my hero!! I love you!!
Pat
Ron
You have suffered so much this year and made it through. It is wonderful to see you gaining some strength again. We are praying for a heart for you soon and for God to supply the funds needed.
We love you
Frank and Deb Caudle
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Ron Lawrence
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment