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Collin’s Road to Recovery

Collin broke his C5 and C6 vertebrae and suffered a severe spinal cord injury while at the beach with his friends. He has very limited mobility in his arms and hands, and currently no feeling below the chest. Collin is currently working hard with the amazing staff at Craig Hospital to increase his mobility and independence. We’re asking our family, friends, and community to join us in fundraising with the nonprofit Help Hope Live to help with the rising expenses Collin will face during rehabilitation.

Updates (18)

November 16, 2024

Dear Friends,

We are entering the holiday season and there is a lot to be grateful for. Everyday for us doesn't get easier, but at least it gets more familiar. So, in a sense it is easier to look past the blood pressure issues when Collin has AD, the fear of skin issues when he's wearing new shoes or in wet clothes too long, or whether the spasms he has are good or bad news. Truth is, we are just rolling past the bad and focusing on the good - and there's been a LOT of that!

For the past 6 months Collin has been attending every event possible to get back in the ocean: Waves4All, Stoke for Life, Life Rolls On, Ionis Day at the Beach, and Access Surf Hawaii. Yep - Hawaii! His rehab hospital (Craig Hospital) organizes trips for their graduates and when we were in the hospital, we could only dream of the day when Collin had the strength and ability to take a trip. That time came last month when Brian, Collin and I flew to Oahu for our first trip NOT to a hospital. It was scary having to pack all the medical needs and buy things like a travel commode chair in order to care for Collin outside the comfort of our home. But we did it! We learned so much about ourselves and what Collin is capable of...He and his sister LOVED to travel together before his accident and this trip showed us that they WILL be able to do that again in the future. And, of course, the warm air and water of Oahu was just amazing for Collin who is always cold because of his SCI. We really appreciated the support from the Recreational Therapists who came with us from Craig, the other former patients and their families, and the staff from Access Surf. It was great to also see cousins who he hadn't seen it about five years - awesome!

The stoke continued when we got home to San Diego. Challenged Athletes Foundation holds an annual CAF Community Weekend of events. This year they are almost at their goal of raising $1.5 million for children and adult athletes with special needs. For the past two years we have been blessed with the love and support of Team Santa Barbara Strong. They are one of the top fundraising teams for CAF and are all local triathletes, cyclists, IRONMAN men and women who have really rallied around Collin and our family - truly showing us what an AMAZING town Santa Barbara is! This year they worked with CAF to gift Collin the funds for an adaptive surfboard of his own!! (Thanks Jon and Joe!) This was presented to him onstage right before the CAF triathlon start... who knows? Maybe one day Collin will be competing in that as well!

One of the beautiful things about our Craig trip to Hawaii was meeting the fellow patients who also went on the trip. In talking with one of the other quadriplegics on the trip, we were able to learn about a motorized adaption to Collin's manual chair that works for people without function in their hands. We found a local vendor about 2 hours away and just last week went up there and bought it! It cost about $5,000 but thanks to friends like you, we are able to give Collin a growing sense of independence. He still needs a good manual chair that is fitted for him, not the demo model chair he is still using, but that will come in time. His goal is to ditch the cumbersome power chair so that he can be more "low profile" in his manual chair and do things like roll up and fit under a table at a restaurant.

Please enjoy the attached pictures and videos of Collin's latest adventures. You can tell by the size of his smile that he is really trying to embrace life! I love the picture on the beach at Rincon with the many Santa Barbara friends who continue to support Collin along with his SDSU friends and others in the SCI community. This network of friendship that is sticking by his side means THE WORLD to him. We all feel the love and wish that for everyone this holiday season and beyond. Thank you, thank you, thank you! We can't say it enough.

https://youtube.com/shorts/MjXTjiS6GPQ?feature=share

https://youtu.be/Aj-SKmBvQfk

https://youtu.be/zutS95LYB5A

https://youtu.be/R-8o_92-hCw

Much love,

The Bosse Family

xoxo

August 26, 2024

Dear Friends,

Well, here we go... truly back in the "Real World." Just under a year and a half post-injury and Collin is going back to school today at the University of San Diego for an MBA (Master of Business Administration). He has applied, interviewed and received grants from USD, Swim with Mike Organization, and the Department of Rehabilitation. We will still need to pay about $15,000 in tuition, but Collin has found the lion-share of funding needed to pursue his goals and we couldn't be MORE PROUD of him!!!

On this first day, he super excited but also SUPER nervous... because with a Spinal Cord Injury there is SO much more involved than just getting over some jitters about going back to school. I thought maybe an explanation of what it takes to get him up and ready each day might illuminate all that is going through his mind. I woke up at 5:45 am to chug some coffee so I could start waking him up with his meds (for bladder spasms, nerve pain, and blood pressure) at 6:00 am. By the time I detach the night-time leg bag, switch the anchor for that to the other leg, secure him evenly in a sling and hoist him into his commode chair it's about 6:25 am. He spends an hour in his commode chair, periodically manually stimulated, to take care of the morning business we all do in about 10 minutes each day. The difference is Collin has to hope he gets it all out so his body doesn't experience an "invol" (aka shit his pants) during the day. By 7:30am, I'm rolling him in the commode chair to the bathroom and locking that into a sliding track system to get him into the shower. This process has to be fast because with an SCI, you are cold all the time and so he gets the chills easily. After the shower, I need to empty his leg bag of urine again because he is chugging coffee by this time to wake up. So then it's back to the bedroom and the sling to lift him out of the commode chair and laying him back in bed. I finish drying him off, replace the dressing on the suprapubic tube that comes out of his body just below his belly button, and dry his crotch and in between the toes to avoid moisture buildup. Also, after showers his leg bag is soaking wet so we insert it into a black, moisture wicking cover so his leg doesn't stay wet and it won't get his pants that I put on him wet. By this time it's 8:00 am, we are racing with the clock to get his underwear, socks, and pants on him while he's still laying in bed. When you're flat on your back and trying to put underwear or pants on you have to pull them up your leg and then do this back and forth rolling action to get the pants up and over each hip and butt, making sure the material is all flat and not bunched up because this could cause an episode of AD (which is that possible heart attack situation he's already once experienced!) Then it's back to wrapping him in the sling and hoisting him up yet again out of bed and this time into his power chair. A bit of deodorant, a nice shirt, and some cool shoes and he's ready for breakfast. By this time it's 8:15 am and his caregiver has arrived. While Collin finishes eating and brushing his own teeth (which is a great skill he's gained over this past year- YAY!), his caregiver is getting his computer, Kindle, stylus, and water put in his back pack that he keeps on the back of his chair. By 8:40 am, he's ready to go!

So, that's where he's at as I write this. He has a 9:00 am start time, and I'm betting his morning routine is like no other of the students he will meet today. Nor will they be sitting in class like Collin wondering how their leg bag of urine will get emptied at the break, or if they will have an "invol" and have to go home, or how that Kindle and computer will get out of the backpack and actually on the desk in front of them, or how they are going to eat lunch at the break, or.....? The list goes on. But, the most AMAZING thing is that even with this long laundry list of "What about this...?" or "How am I going to manage that?" Collin is GOING FOR IT!!! Like I said we could NOT BE MORE PROUD OF HIM!!!

Thank you all so much for your support of our INCREDIBLE son!! His bravery and strength is a result of the safety he feels. And you all have had a MAJOR role in helping us provide that safe living space for him. We can't thank you enough. As you go through your day today, with all the challenges any day brings to anyone, please send your thoughts, prayers, and good vibes Collin's way. And know that we all appreciate it SO VERY MUCH!!!

Much love,

Bosse Family

xoxo

(PS - In these pictures Collin is in his manual chair... it's just some $400 floor model we bought used. But, he's ready for a new, well-fitted manual chair with some power assist wheels. That costs about $20K total so that is another something we will look to use the HHL funds for since insurance only provides a new chair every 5 years. He will be so stoked to get rid of his bulky power chair!)

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Guestbook

October 31, 2024

Yogurtland Goleta loves Collin!

Anonymous

April 16, 2024

Praying for you all.

Jen Holdren

February 6, 2024

Friend of the Hoyer Nielsen's, thinking about you and admiring your determination.

Nannette Erdtmann - de Groot