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I am a 39-year-old female who at the age of one was diagnosed with a severe physical disability, Spinal Muscular Atrophy type II (form of muscular dystrophy).

I spent most of my life in and out of medical facilities and nursing homes, always waiting and needing assistance from caregivers. When living in a nursing home there are so many limitations and no real independence or freedom. Not only am I confined to a wheelchair but while living in these medical facilities I was always confined to a room that I usually shared with someone much older than me. As a young woman I enjoyed conversations, music, exploring and peer interaction, that wasn’t an option, I felt isolated. Medical facilities usually don’t offer independent forms of transportation, so my interaction with peers was very limited. In 2019, I was finally able to move out of the medical facilities and move into an accessible apartment where caregivers come daily to care for my needs. My lack of independent movement has never limited my desire for freedom. Transportation was a struggle, until 2021 when I was able to purchase a 2001 wheelchair accessible van.

Updates (1)

June 7, 2024

Wow, this is amazing. To everyone that has donated THANK YOU so very much! I am so grateful and blessed for any help. God Bless!

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Guestbook

November 5, 2024

Bingo and donations. So proud of you Crystal and so excited for you to have what you need!!

Holly Nieto

July 8, 2023

You are metal!

Austin King

July 8, 2023

Your awesome Crystal!

Joe Unruh