No results found. Please try modifying your search.

“We want for her the best quality of life. We want to provide for her every tool or opportunity. We want to help her be the happiest and best version of her she can be.”

Anna-Stella was diagnosed in utero with a rare genetic syndrome known as Costello Syndrome. Costello Syndrome, characterized by delayed development and intellectual disability affects many different parts of the body. Anna-Stella has a number of these diagnosis. She has a variety of heart abnormalities including tachycardia and hypertrophic cardiomyopathy. She suffers from chiari malformation, scoliosis, endocrine challenges, gastro intestinal issues, as well as cortical visual impairment, oral aversions/oral motor difficulties and orthopedic diagnosis. Unfortunately, in addition to Costello Syndrome, Anna-Stella was born at 28 weeks. As a result of Anna-Stella’s premature birth she suffered a severe brain bleed which resulted in her later diagnosis of spastic quadriplegia cerebral palsy.

Photo Galleries (1)

Loading Images