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Please help us fundraise in support of John’s ongoing medical expenses as he continues to live with Spinal Muscular Atrophy.

John Robert Ekman was born with Spinal Muscular Atrophy and due to his determination to live his life to the fullest he has surpassed all doctor’s expectations for this type of disorder. He was expected to be wheelchair bound by 4 years of age, but his drive, friends, and family members keeping him active with lots of physical activity; he stretched this timeline until he was 21 years old.

Although John still mourns the loss of his most favorite companion and service dog, Paris, two years ago; he now owns Miss Maisie, a Westie who has quickly become the princess of the whole family. Today at age 36, John continues to stay involved with computer work even building his own computers. He entertains his neice and nephew as well as attends most of their functions. He also keeps in close contact with friends and family members.

Updates (1)

August 4, 2023

Love from Mum Mum

Photo Galleries (1)

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Guestbook

May 16, 2024

I'm excited that you'll have a bit more freedom!

Anna Shugars

December 17, 2023

Much love from the Shenks!

Charlene Shenk

October 25, 2023

Sending love and support! - Jaclyn and Evan

Jaclyn Allavie-Davis