I was diagnosed originally with Peripartum Cardiomyopathy in 2006. As a result, I lost my heart function. It is not uncommon during most pregnancies; however, after childbirth some women’s heart function returns to normal. Mine did not. My heart is currently functioning at a severely decreased level. As of this current date my diagnosis is Advanced Stage IV Systolic Congestive Heart Failure due to Dilated Cardiomyopathy with an LVAD Support System.

After several years of medication management and many hospitalizations, the function of my heart has rapidly changed. Since I have experienced so many recent hospitalizations, I had to be referred back to St. Joseph at Emory Hospital in Atlanta, Georgia. I was immediately placed on a Milrinone IV pump 24 hours per day for 11 months and exhausted that treatment in May of 2016. They advised me that my heart was getting weaker and an emergency procedure was done with the agreement I continue to fundraise. A plan had been put into place for me as it had been determined I need of a heart transplant. A bridge to transplant was done on May 4, 2016. At that time my heart function had dropped to 5%. The procedure that was done to save my life is called LVAD (Heart Pump), as the next form of treatment. This device was placed inside my chest until a heart becomes available. I have been on an LVAD for 7 years and options are few in my current situation. However, I must be listed for transplant and I desperately need to reach my Goal.

I am totally disabled and cannot work; however, my benefits will not cover the things I would need to be considered for the heart transplant list. I have to travel to Emory for my medical care. Some might ask why I don’t move to Atlanta . However, between my income, the expenses of medication and the cost of living, this is not possible. Since I received my LVAD I am still required to depend upon others at times. Each procedure does require me to spend long periods of time in Atlanta as recommended by physicians. All procedures require increased medications to maintain the heart. Weekly visits and biopsy procedures will be conducted as recommended once I am transplanted.

I am currently in need of a heart transplant. I am raising money to be listed for transplant, medications, travel, lodging for lengthy periods of time, caregiving and insurance deductibles due to medical expenses, etc.

Please, help me be listed for transplant. We are not certain of a number to determine a true goal to cover this entire process, but we are asking that you help me meet my current goal. I only have Medicare and was denied the extra help option through Medicaid and Medicare in my area. Helping me to meet my goal will also allow me to consider being listed, as I have currently met the requirements for a second time, in trying to be listed. My family and I are making a plea on my behalf for any financial assistance and contributions to help me meet my goals for transplant. Please, if you can share this campaign with a Friend, Employer, Business, Social Groups and Churches, etc.

My children and I would like to thank you for your support and any contributions that can be made to assist with this cause and for your prayers in advance.

Family and friends of Robin Bennett are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.

Robin has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.

For more information, please contact Help Hope Live at 800.642.8399.

Thank you for your support!