I was born in Moose Jaw, Saskatchewan Canada and lived there 5 years.
From an early age I was extremely flexible and had hyper mobile joints in all of the major joints. .I thought I was just clumsy growing up, it was actually that my ankles were too loose and would just collapse. I now know I have a rare genetic diagnosis of Ehler Dahlos hyper mobility syndrome. It turns out I have four of the 5 genes associated with this disorder which has a lot of different features and impacts most systems in the body. From too much range of motion in joints, chronic pain all over your body, to psychiatric symptoms like anxiety, and depression.
In the last 6 years, the most recent diagnosis they have added are Lupus and Scleroderma. For the last 6 years I have had multiple autoimmune tests come back abnormal. At this point my body is not doing well. I am very limited when it comes to food, I can only eat meat. My body can’t digest histamines which are in everything we eat, as food decomposes it produces them. I currently can only eat beef, salad, cucumbers, fresh herbs like cilantro, oregano, garlic, onions and a little lime. But all food must be cooked from scratch. This had made eating extremely challenging to say the least. Coking takes up a lot of my day. Having the diagnosis of Ehler Dahlos definitely creates pain all over my body. Up until two years ago I had a lot of muscle which stabilized most of my joints. Until I got a significant reaction to the Covid vaccine and mold. The reactivation of Lymes has led to a rapid loss of muscle, which has now ironically locked up my body. Due to a weakening of the fascial tissue and tendons I have been experiencing what is called fascial shearin. Where large portions my fascia will rip. It’s extremely painful and has happened multiple times.
So after this long journey battling with my health I have luckily found a place in Tennesse called the Biologix Center where they specialize in patients like me. I have been happily accepted. They have an intense two week program, developed to treat major dysfunction going on in the body and my immune system. I have not been able to work since February and I am currently out of money at this point. Any help that you can offer would be greatly appreciated!!! The cost of the two week program is $12,000.00 and the cost of a hotel is about $1,400.00 I also have to get bloodwork that runs about $1,200.00 and then some supplements after treatment that could be up to $500.00 so any help you can give. Would be greatly appreciated.
Thank you for your support!
