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Meet Matthew. Matthew was born on May 29, 2013 with a rare condition called ornithine transcarbamylase deficiency (OTC deficiency.) The disorder is one of a group of disorders called urea cycle disorders, and this particular disorder occurs in approximately 1 out of every 800,000 births.

Matthew’s is a more severe manifestation than most, a type that shows up in only about 1 out of every 10 OTC children, and almost always results in death within a few days of birth.

Updates (14)

February 6, 2017

We are making slow but steady progress in Matthew's physical, occupational, and speech therapies. Here he's really enjoying this food, amazing considering his long history of oral aversion.

January 25, 2016

Matthew has had a great new year so far! Thanks in large part to the generosity of the #Architalks bloggers!

Photo Galleries (3)

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January 11, 2016

Hello, just read about Matthew here Thanks to Mr. Borson for sharing. Matthew is gorgeous! And your battle worth fighting!! My very best wishes to you from Paris. You can tell Matthew he has friends here... See what he thinks about the Eiffel tower and tell him we'd love to take him to the top when he'll visit... With very best wishes,